Cathy Cope Melissa Hulbert Centers for Medicare & Medicaid Services



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Conclusion


Bringing about enduring change in any state’s long-term services and supports system is a difficult and complex undertaking that requires the involvement of many public and private entities. As Congress and CMS intended, most states used the grants as catalysts for new initiatives or to expand existing initiatives; many used them to leverage funding for existing state efforts to develop and improve home and community-based services.

Despite their many accomplishments and enduring systems improvements, most Grantees described continuing barriers to community living for people of all ages with disabilities. These barriers include insufficient funding for home and community-based services and for infrastructure changes; lack of affordable, accessible housing and transportation; continuing difficulty in recruiting and retaining direct care workers because of low wages and lack of benefits; and outdated or inflexible administrative, statutory, and regulatory provisions.

This report provides an overview of 73 Grantees’ initiatives to improve their long-term services and supports systems and the enduring systems improvements they achieved. It includes lessons learned and recommendations that can guide states that are undertaking similar initiatives. As the population ages, increasing the demands on the service system, these Grantees’ efforts will prove invaluable, helping states to provide a greater choice of high-quality participant-directed home and community-based services. These services will enable people of all ages with disabilities or chronic illnesses to live in the most integrated setting consistent with their needs and preferences.

Part 1

Community-Integrated Personal Assistance
Services and Supports Grantees


Report Overview vii

Methods viii

Organization of This Report viii

Enduring Systems Improvements ix

Personal Assistance Services and Supports (PASS) ix

Money Follows the Person Policies (MFP) ix

Self-Directed Services ix

Quality Assurance and Improvement ix

Lessons Learned and Recommendations x

Involving Participants and Stakeholders x

Specific Recommendations xi

Approaches to Bringing about Systems Change xiii

Recommendations for Changes in State and Federal Policy xiii

Conclusion xvi

Part 1

Community-Integrated Personal Assistance


Services and Supports Grantees 1


1Section One. Overview 1

Enduring Systems Improvements 1

New Policies to Enable and Support PASS and Self-Directed PASS 2

Increased Options for Self-Directed PASS 2

Increased Access to PASS 3

Improved PASS Quality for Persons with Serious Mental Illness 3

New Methods to Help Participants Recruit and Retain Workers 4

Systems Improvements Beyond the Grant Period 5

Continuing Challenges to Systems Improvements 5

Funding Issues 5

Policy Challenges 5

Workforce Issues 6



Lessons Learned and Recommendations 6

Lessons Learned 6

Recommendations 7

Section Two. Individual CPASS Grant Summaries 9

Arizona 11

Connecticut 15

Louisiana 19

Massachusetts 23

Nebraska 29

Oregon 31

Texas 35

Virginia 39

Part 2

Money Follows the Person Grantees 1



2Section One. Overview 1

Enduring Systems Improvements 2

New Assessment and Budgeting Process for Individualized Portable Budgets 2

New MFP Funding Mechanism 2

New Infrastructure/Funding to Support Transition Services and MFP Policy 3

Increased Access to and Funding for HCBS 4

Increased Access to and Funding for Supported Housing 4

New Process to Involve Consumers in Policy Development 4

Continuing Challenges to Transition and Balancing 5

Lack of Funding for HCBS 5

Lack of Affordable and Accessible Housing 5

Medicaid and State Policies and Practices 6



Lessons Learned and Recommendations 6

Lessons Learned 7

Recommendations 7

Section Two. Individual MFP Grant Summaries 11

California 13

Idaho 17

Maine 19

Michigan 23

Nevada 29

Pennsylvania 33

Texas 37

Washington 41

Wisconsin 45

Part 3

Independence Plus Grantees 1



3Section One. Overview 1

Enduring Systems Improvements 2

New Infrastructure for Self-Direction Programs 2

New IP Option in Waiver or State Plan Program(s) 6

Continuing Challenges to Systems Improvements 8

Lessons Learned and Recommendations 9

Lessons Learned 9

Recommendations 9

Section Two. Individual IP Grant Summaries 13

Colorado 15

Connecticut 19

Florida 23

Georgia 27

Idaho 31

Louisiana 35

Maine 39

Massachusetts 43

Michigan 47

Missouri 53

Montana 57

Ohio 61

Part 4

Quality Assurance and Quality Improvement in Home and Community-Based Services Grantees 1



4Section One. Overview 1

Enduring Systems Improvements 1

New/Improved Methods to Measure Participant Satisfaction and Other Outcomes 3

New/Improved Provider Standards or Monitoring Tools 5

New/Improved System to Collect, Analyze, and Report Quality Data 5

New/Improved Process or System to Help Ensure Continuous Quality Improvement in Services 6

New/Improved Critical Incident Reporting and/or Remediation Process or System 8

New Methods to Involve Participants in QA/QI Processes and Policy Development 9

Continuing Challenges 10

Lack of Funding 10

Organizational and Administrative Issues 10

Information Technology and Data Collection Issues 11

Policy and Practice Issues 11

Stakeholder Involvement 11



Lessons Learned and Recommendations 12

Lessons Learned 12

Recommendations 13

Section Two. Individual QA/QI Grant Summaries 19

California 21

Colorado 25

Connecticut 29

Delaware 33

Georgia 37

Indiana 41

Maine 47

Minnesota 51

Missouri 55

New York 59

North Carolina 63

Ohio 69

Oregon 73

Pennsylvania 77

South Carolina 81

Tennessee 85

Texas 89

West Virginia 93

Wisconsin 97

Part 5

Family to Family Health Care Information


and Education Center Grantees 1


5Section One. Overview 1

Results 2

Providing Information and Referral Services 3

Developing Informational Materials 3

Providing Education and Training 3

Improving Programs and Informing Policies 4

Lessons Learned 4

Recommendations 5

Policy Issues 5

Services and Supports 6

Section Two. Individual FTF Grant Summaries 7

Alaska 9

Colorado 11

Indiana 13

Maryland 15

Montana 19

Nevada 21

New Jersey 23

South Dakota 27

Wisconsin 29

Part 6

Feasibility Study and Development Grants 1



6Overview of Respite for Adults and Children Grants 1

Individual Respite for Adults Grant Summaries 3

California 5

New York 7

Ohio 9

Rhode Island 11

Individual Respite for Children Grant Summaries 13

Alabama 15

Arkansas 17

Maryland 19

Michigan 21

Oregon 23

Rhode Island 25

Overview of Community-Based
Treatment Alternatives for Children Grants 27


Individual CTAC Grant Summaries 29

Illinois 31

Maryland 33

Massachusetts 35

Mississippi 37

Missouri 39

Texas 40

Exhibits

Exhibit 1-1. FY 2003 CPASS Grantees 1

Exhibit 1-2. Enduring Improvements of the CPASS Grantees 1

Exhibit 2-1. FY 2003 MFP Grantees 1

Exhibit 2-2. Enduring Systems Improvements of the MFP Grantees 2

Exhibit 3-1. FY 2003 Independence Plus Grantees 1

Exhibit 3-2. Enduring Systems Improvements of the IP Grantees 2

Exhibit 4-1. FY 2003 QA/QI Grantees 1

Exhibit 4-2. Enduring Systems Improvements of the QA/QI Grantees 2

Exhibit 5-1. FY 2003 Family to Family Grantees 1

Exhibit 6-1. FY 2003 RFA Grantees 1

Exhibit 6-2. FY 2003 RFC Grantees 1

Exhibit 6-3. FY 2003 CTAC Grantees 27



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