National Children’s Study (ncs) Study Center Profile Enhancements
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- Table of Contents
- Enhancing the Study Center Profiles
- Selection of Data Sources and Measures
- Measures
- Data Dictionary and Layout Files
- Appendix 1
- Appendix 2
Table of ContentsEnhancing the Study Center Profiles 3 Enhancing the Study Center Profiles 3 Introduction and Background 3 Selection of Data Sources and Measures 3 Measures 6 Data Dictionary and Layout Files 7 Appendix 1 8 Appendix 1 8 Appendix 2 10 Appendix 2 10 Enhancing the Study Center ProfilesIntroduction and BackgroundBeginning in 2011, The National Children’s Study (NCS) Data Linkages Program under the direction of the National Institute of Health, Eunice Kennedy Shriver, National Institute of Child Health and Human Development (NICHD) compiled a select set of demographic and socio-economic statistics from the ongoing American Community Survey (ACS) program for each of the 37 NCS Vanguard Study locations and 3 Provider Based Sites (PBS) into a Study Center Profile (see Appendix 1 for list of 40 study locations). Study Center Profiles were created using 2010 and 2012 ACS data. In 2015, the NCS PO requested the NCS Study Center Profiles be expanded to include items beyond those found in the ACS. The Data Linkages team identified and evaluated data sources for this effort that would provide supplemental items such as health, neighborhood, environmental, and socioeconomic indicators. These data, when combined with data collected as a part of the NCS protocols, could inform epidemiological analyses by allowing models to control for a broader list of potential confounders, to examine effect modification by participant and neighborhood characteristics, and to determine how parental and neighborhood factors relate to environmental exposures and children's well-being and growth. Enhancements were made to the existing Study Center Profiles, and more years were added so that each year of the NCS (i.e., 2008-2014) had an enhanced profile. Companion all-county files for each year have also been produced and include data for all counties nationally for which the measure was available. In all, 14 datasets have been produced (i.e., seven files specific to the NCS counties and seven files for all counties nationally). These data are expected to enhance the analytic utility of the NCS participant data to be archived. This document summarizes the processes by which data sources and measures were selected, describes the measures included, and the contents of this delivery. Selection of Data Sources and MeasuresThe NCS Extant Data Library1 served as the main resource for identifying data sources that contained additional measures relevant to the NCS. These data sources (see Appendix 2) had already been evaluated as relevant to the NCS as a part of creating the Extant Data Library. Sources were determined relevant to the NCS if they supplied information on the respondents' personal, situational, economic, and health characteristics, along with corresponding information about the social-economic conditions of the communities in which they lived. An expanded search outside the Library was also conducted to identify additional data sources. Databases such as The Health Indicators Warehouse, Data.gov, and HealthData.gov were mined for additional measures that could describe the NCS counties. These databases served as a good starting point for this review as they are a compilation of data sources, some with existing measures available for download. Data sources that could produce measures that were relevant to the NCS, i.e. measures that could describe a child’s environment in its totality, including both the physical (e.g. air quality metrics, number of supermarkets in the vicinity) and social (e.g. percent of county in the Women, Infants, and Children (WIC) program) determinants of health were of interest. Data sources containing measures that could be easily linked to NCS counties, with minimal data processing, were prioritized.2 Table 1 lists the data sources that were consulted in preparing the enhanced study center profiles and notes whether the source already existed in the Extant Data Library or was added outside of those that initially existed on the Library. These sources were eventually added to the Library. Community Commons (CC) and the Health Indicators Warehouse (HIW) were not added to the Library as data sources as they themselves are a library of extant data sources. The indicator retrieved from HIW was based on a model; the main input data source was already included in the library (i.e., EPA’s Air Quality System). Likewise, the data sources used to create the indicators within Community Commons, such as the Census or the American Community Survey, were already in the Library. Table 1. Data sources consulted for profile enhancements
The Data Linkages team reviewed the selected data sources for measures that characterized exposures in the child’s environment. All potential measures were compiled and evaluated for inclusion in the enhanced Study Center Profiles. The following considerations were used in evaluating the feasibility of including the additional measures in the Study Center Profiles. Table 2. Considerations for evaluating potential enhancement measures
MeasuresA suffix denoting the data source been added to each variable in the format VarName_DataSource. Suffixes are as follows: American Community Survey (_ACS) Air Quality System (_AQS) Behavioral Risk Factor Surveillance System (_BRFSS) Community Commons (_CC) Cleanups in my Community (_CUC) EPA Geospatial Data Download (_EPA) Food Environment Atlas (_FEA) Health Resources and Services Administration (_HRSA) National Transportation Atlas (_NTA) Pesticide National Synthesis Project (_PNS) Toxics Release Inventory (_TRI)
Air and Rail Transportation Demographics Environmental Hazard Food and Food Security Health Care Access and Use Health Conditions and Behaviors Neighborhoods Poverty Data Dictionary and Layout FilesThe accompanying data dictionary includes variable attributes, data sources, and indicates for which years each measure is available for all measures included in this delivery. The data dictionary provides a comprehensive overview of the annual files. To supplement these, a layout file is provided to accompany each annual file and includes the attributes for only the variables on that particular dataset. Appendix 1NCS Study Center Locations, by County
The following counties were aggregated into one site for the purposes of NCS data collection. For the purposes of the enhanced Study Center Profiles, these counties have been presented separately.
Note: ACS summary files contain both yearly and multi-year estimates, the availability of which depends on the size of the geography in question, in this case the county, and for some estimates when the question was added. Many of the study locations are located in counties of sufficient size (65,000 persons or greater) to obtain the most recent yearly estimate starting in 2012. However, several of the study locations are associated with counties that, because of the U.S. Census Bureau’s standards for confidentially and survey precision, are not large enough to obtain yearly estimates. For counties that contain more than 20,000 but fewer than 65,000 persons, the U.S. Census Bureau provides three-year estimates rather than yearly values. For example, in Duplin County, NC the U.S. Census Bureau reports the ACS data based on data collected during a three year period from 2010 through 2012. For counties that contain fewer than 20,000 persons, the U.S. Census Bureau provides five-year estimates. See “A Compass for Understanding and Using American Community Survey Data What General Data Users Need to Know” (2008) for a detailed discussion of the ACS, at https://www.census.gov/library/publications/2008/acs/general.html. Appendix 2Alphabetical List of Data Sources contained in the NCS Extant Data Library Access to Jobs and Workers via Transit ACF-801 Child Care Monthly Case Record Form Aerometric Information Retrieval System (AIRS) Aerosol Optical Thickness Aerosol Research and Inhalation Epidemiology Studies (ARIES) Air Quality System (AQS) Air Stagnation Index American Community Survey Restricted-use microdata (ACS) American Community Survey Summary File Data (ACS) American Hospital Association Annual Survey American Hospital Association Annual Survey Database American Housing Survey (AHS) Assessing the New Federalism Behavioral Risk Factor Surveillance System (BRFSS) Building Permits Survey (BPS) Census of Agriculture Census of Population and Housing, Summary File 1 (SF 1) 2000 Census of Population and Housing, Summary File 1 (SF 1) 2010 Census of Population and Housing, Summary File 2 (SF 2) 2000 Census of Population and Housing, Summary File 2 (SF 2) 2010 Census of Population and Housing, Summary File 3 (SF 3) 2000 Census of Population and Housing, Summary File 4 (SF 4) 2000 Census of State and Local Law Enforcement Agencies (CSLLEA) Census Population Density Profiles Census TIGER/Line Shapefiles CensusCD Neighborhood Change Database Characteristics of Statewide Student Data Systems 2009-2010 Civil Rights Data Collection Cleanups in my Community Climate Data Online Common Core of Data (CCD) Comprehensive Environmental Response, Compensation, and Liability Information System (CERCLIS) Cost of Living Index County and City Data Book County Business Patterns Current Employment Statistics (CES) Current Population Survey (CPS) Current Population Survey October Supplement: School Enrollment and Internet Use Supplement (CPS) Economic Census EPA Geospatial Data Download: Facility and Site Information ESRI World Street Map Fair Market Rents Fatality Analysis Reporting System (FARS) Federal Parent Locator Service (FPLS) Find Youth Info Food Environment Atlas Geolytics Demographic Estimates and Projections Google Maps Guttmacher Institute Data Center Hate Crime Statistics Health Professional Shortage Areas Healthcare Cost and Utilization Project Kids' Inpatient Database (HCUP KIDS) Healthcare Cost and Utilization Project State Ambulatory Surgical Database (HCUP SASD) Healthcare Cost and Utilization Project State Inpatient Databases (HCUP SID) Highway Performance Monitoring System (HPMS) Home Mortgage Disclosure Act (HMDA) Homicide Trends in the United States House Price Index (HPI) InfoUSA
Integrated Postsecondary Education Data System (IPEDS) Interagency Monitoring of Protected Visual Environments (IMPROVE) Kaiser Family Foundation State Health Facts Law Enforcement Management and Administrative Statistics (LEMAS) Library Statistics Program Local Area Unemployment Statistics (LAUS) Local Education Agency (School District) Finance Survey (F-33) Longitudinal Employer-Household Dynamics (LEHD) Medicaid Analytic eXtract (MAX) Medicaid Statistical Information System (MSIS) Medical Expenditure Panel Survey (MEPS) Medically Underserved Areas/Populations Metro Market Studies National Ambulatory Medical Care Survey (NAMCS) National Assessment of Educational Progress (NAEP) National Center for Charitable Statistics U.S. Non-profit Sector Data Files (NCCS) National Centers for Coastal Ocean Science (NCCOS) National Child Abuse and Neglect Data System (NCANDS) National Climatic Data Center (NCDC) National Contaminant Occurrence Database (NCOD) National Crime Victimization Survey (NCVS) National Death Index (NDI) National Elevation Dataset (NED) National Emissions Inventory (NEI) National Geochemical Survey National Health and Nutrition Examination Survey (NHANES) National Health Interview Survey (NHIS) National Highway System (NHS) National Hospital Ambulatory Medical Care Survey (NHAMCS) National Human Activity Pattern Survey (NHAPS) National Immunization Survey (NIS) National Incident-Based Reporting System Resource Guide (NIBRS) National Land Cover Database (NLCD) National Map National Pesticide Use Database National Priority List (NPL) National Survey of Children's Health (NSCH) National Survey of Drug Use & Health (NSDUH) National Survey of Family Growth (NSFG) National Transportation Atlas Database National Violent Death Reporting System - Aggregate data (NVDRS) National Violent Death Reporting System - Individual restricted data (NVDRS) National Vital Statistics System Birth Data (NVSS) National Vital Statistics System Fetal Death Data (NVSS) National Vital Statistics System Linked Birth and Infant Death Data (NVSS) National Vital Statistics System Marriages and Divorces (NVSS) National Vital Statistics System Mortality Data (NVSS) National Youth Tobacco Survey (NYTS) National-Scale Air Toxics Assessment (NATA) Occupational Employment Statistics (OES) Pediatric and Pregnancy Nutrition Surveillance System Pesticide National Synthesis Project Pesticide Program Residue Monitoring Reports Population and Housing Unit Estimates Pregnancy Risk Assessment Monitoring System (PRAMS) Primary Care Service Areas Private School Universe Survey (PSS) Proximity One- School District Decision Making Information Quarterly Census of Employment and Wages (QCEW) Quitnet National Directory Regional Economic Accounts Resident Population Data Safe Drinking Water Information System (SDWIS) School District Demographics System (SDDS) School Health Policies and Practices Study (SHPPS) School Segregation 1990-2000 Schools and Staffing Survey (SASS) Selected Metropolitan/Micropolitan Area Risk Trends Sexually Transmitted Disease Morbidity Data Small Area Health Insurance Estimates (SAHIE) Sourcebook of Criminal Justice Statistics State of the Nation's Housing State Tobacco Activities Tracking & Evaluation System (STATE) Statistics on Depository Institutions (SDI) STORET Surveillance Epidemiology and End Results (SEER) The Green Book Nonattainment Areas for Criteria Pollutants The State of the Nation's Cities The Tax Foundation Data Tobacco Control State Highlights 2010 Total Diet Study (TDS) Toxics Release Inventory (TRI) Uniform Crime Reports (UCR) US Syringe Exchange Program Database USA Counties Water Data for the Nation What We Eat in America Youth Risk Behavior Surveillance Survey (YRBSS) 1 http://ncs.orlinpilot.com/pages/show?page=ncs%2Fstudy_centers 2 As directed by the NCS Program Office. Download 108.58 Kb. Share with your friends:
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