International trends in the education of students with special educational needs



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Figure 21.2 A new ecological model

21.5 Summary


    1. Increasingly, in the past two decades or so, there has been a distinct trend towards ‘joined–up thinking’ in providing human services.

    2. This trend calls for radical, transforming systems change manifested in the move from fragmentation to coordinated or integrated intervention and from narrowly-focused and specialist-oriented, ‘silo’ services to comprehensive, general approaches.

    3. Wraparound is a system-level intervention that quite literally aims to ‘wrap’ existing services around children and young people and their families to address their problems in an ecologically comprehensive and coordinated way. The strength of evidence that wraparound can positively affect child and adolescent outcomes is rather mixed, but trending in favour of wraparound, compared with more traditional approaches.

    4. In developing joined-up services for children and young persons with SWSEN, it is essential to see them as being embedded in various systems: their families, classrooms, schools and communities.

    5. A general systems theory has the following features:

  • a social system can be studied as a network of unique, interlocking relationships with discernible structural and communication patterns;

  • all systems are subsystems of other, larger systems;

  • boundaries of varying degrees of permeability give a social system its identity and focus as a system, distinguishing it from other social systems with which it may interact;

  • there is an interdependency and mutual interaction between and among social systems;

  • a change in any one member of the social system affects the nature of the social system as a whole;

  • social systems vary in the extent to which they are purposive, goal-directed and in constant states of interchange with their environments;

  • change within or from without a social system that moves the system to an imbalance in structure will result in an attempt by the system to re-establish that balance;

  • systems may be open or closed, depending on the degree to which they engage in exchanges with their environment (both receiving inputs and delivering outputs);

  • systems reach a ‘steady state’, or equilibrium, with respect to their exchanges with the environment;

    1. Bronfenbrenner identified four levels of nested settings: the microsystem (the family or classroom), the mesosystem (two microsystems in interaction), the exosystem (external environments that indirectly influence development, e.g., parental workplace), and the macrosystem (the larger socio-cultural context, such as the individual’s ethnicity, culture and belief systems).

    2. The present review adapts Bronfenbrenner’s model, drawing attention to: the child in the family, the child in the inclusive classroom, and the child in the whole school.



CHAPTER TWENTY -TWO

PARENT INVOLVEMENT1


Parents2 play important, if not critical, roles in educating and supporting SWSEN. They are first and foremost parents, with all the rights and responsibilities of that role, but they are also sources of information, partners in designing and implementing programmes for their children, and 'consumers' of education (Hornby, 2000). As well, some of them may be in need of direct support, in the form of training, counselling or psychiatric care.

Parents have played and continue to play a critical role in advocating on behalf of their children for better educational services. For example, one of the earliest advocates of family involvement in rehabilitation and special education, Dybwad (1982) recounted how parents of children with mental retardation banded together in many countries during the 1940s and 1950s to demand justice for their children and an end to discriminatory practices. For a discussion of providing parents of children with advocacy training, see Burke (2013).

Parents are most probably the only people who are involved with their child's education throughout their entire school years. They are thus likely to have great interest in their child's learning overall and be the most affected by the outcomes of any schooling decisions. Parents know their child's development and the factors that may be responsible for their special educational needs better than anyone else. They often have insights into what motivates their child and which teaching and management strategies are most effective. Thus, in the US, for example, it is mandatory for parents to be involved in the development of Individual Education Plans and they have due process rights to enforce such plans (Singer , 2011).

Working with parents increases the likelihood of consistency in expectations of behaviour at home and at school. It also increases the opportunities for reinforcing appropriate behaviours and increasing the range of reinforcers that are available to do this. Children will obtain positive messages about the importance of their education if they see their parents and educators working together.



Special consideration must be given to disabled parents’ involvement in their children’s education. A recent UK study reported on findings from 24 case studies involving parents who had a range of impairments. Common themes included the perceived importance and benefits of involvement, the need for effective communication and access, and the significance of an inclusive school ethos (Stalker et al., 2011).

22.1 The Story So Far


So far in this review, parents have been mentioned in a range of contexts. In brief, the following comments have been made:

  • Educators should create collaborative relationships with students and their families, by recognising parents/family members as valuable partners in promoting academic progress and by working with them from a posture of cultural reciprocity (Chapter Fourteen).

  • The strong focus on disability, difference and deficit is upsetting for parents and has deleterious effects on inclusive culture and practice (Chapter Four).

  • Parents should be involved in the decision-making processes in Response to Intervention (Chapter Seven).

  • Many parents of SWSEN do not have the knowledge, skills and contacts to comprehend an increasingly deregulated system (Chapter Eight).

  • The coexistence of inclusive education provisions and special schools (which is the case in almost every country) suggests that choices must be exercised as to where SWSEN are ‘placed’. In this process, the relative weight given to the preferences of SWSEN and their parents and those who administer education systems constitutes a major point of tension (Chapters Thirteen and Seventeen).

  • Subsidiary issues centre on how parents negotiate any choices that are at least nominally available to them and how they can be assisted to make informed choices (Chapter Eight).

  • In countries where funds are tied to individual children, there is more evidence of strategic behaviour by parents and teachers to secure resources (Chapter Nine).

  • Voucher-based funding models provide a direct public payment to parents to cover their child’s public or private school costs. The payment can be made either directly to the parents or to a school on behalf of the parents. The aim of these models is to increase parental choice and to promote competition between schools in order to increase the quality of educational services (Chapter Nine)

  • A 1996 meta-analysis of the effects of behavioural parent training on anti-social behaviours of children yielded a significant effect size of 0.86 for behaviours in the home. There was also evidence that the effects generalised to classroom behaviour and to parents’ personal adjustment (Chapter Twelve).

  • In the UK, the SEN and Disability Act 2001 made it clear that where parents want a mainstream place for their child, everything possible should be done to provide it (Chapter Thirteen).

  • Countries with more segregated provision report parental pressure for inclusion and there is positive parental support in countries with inclusive education policies. However, parents whose children have more severe special needs are said to prefer segregated settings for their children (Chapter Seventeen).

  • Developing school support networks has been identified as an important facilitator of inclusive education, as has encouraging a strong sense of community with professionals and paraprofessionals working collaboratively with parents (Chapter Thirteen).

  • Parents play a critical role in bestowing social validity on inclusion and in facilitating its implementation (Chapter Thirteen).

  • Research indicates that parents of children with disabilities believe that inclusion promoted acceptance by non-disabled peers and helped their children’s social, emotional and academic development. Concerns include a loss of access to specialised personnel (Chapter Thirteen).

  • Parents of children without disabilities value their children’s greater awareness of others’ needs and their enhanced acceptance of human diversity through inclusion. Some, however, were concerned that their children would not receive sufficient assistance from their teachers and they might emulate inappropriate behaviours of children with disabilities (Chapter Thirteen).

  • Australian parents continue to want more special units in primary and secondary schools, not fewer and strongly support a continuum of services (Chapter Seventeen).

  • One of the roles of SENCOs in the UK is ‘Consulting, engaging and communicating with colleagues, parents and carers and pupils to enhance pupils’ learning and achievement’ (Chapter Nineteen).

22.2 Levels of Parental Involvement


Five different levels of parent involvement have been identified (Department of Education 1988):

Level I: Being informed. At this most basic level, the school informs parents about its programmes and, in turn, is asked for information.

Level 2: Taking part in activities. At this level, parents are involved in activities, but to a limited extent. For example, they may be invited to attend various functions.

Level 3: Participating in dialogue and exchange of views. Here, parents are invited to examine school or classroom goals and needs.

Level 4: Taking part in decision-making. At this level, parents are asked about their views when decisions affecting their child are being made. A clear case of this level of involvement is the IEP conference and when parents exercise choice as to their child’s placement.

Level 5: Having responsibility to act. This is the highest level, with parents making decisions in partnership with the school and being involved in both planning and evaluating parts of the school programme. A good example of this would be involving the parents of children with special educational needs in formulating and evaluating school policies. Another example of involvement at this level is the role that parents may play as tutors for their own children.

As well, as we shall see in a later section of this chapter, many parents of SWSEN benefit from behavioural parent training, parent-child interaction therapy and the Triple P Positive Parenting programme.


22.3 Policies on Parent Involvement


Many countries have legislation and/or policies on parent involvement in the education of SWSEN, at a minimum their participation in decisions regarding their children’s placements and their IEPs. In this section, consideration will be given to just one country as an example: the UK.

In the UK, there are quite explicit prescribed statutory duties and guidance about various roles and responsibilities concerning parents’ involvement in the education of their children with special educational needs. The former are expressed in the Special Educational Needs and Disability Act 2001 and the Education Act 1996, and the latter in the Special Educational Needs Code of Practice of 2001 (hereafter referred to as the Code).

One of the fundamental principles underpinning the Code is stated as ‘parents have a vital role to play in supporting their child’s education’ (p.8). Similarly, critical success factors include ‘special education professionals and parents work in partnership’ and ‘special education professionals take into account the views of individual parents in respect of their child’s particular needs’ (ibid., emphasis in original).

Key principles in communicating and working in partnership with parents included the following guidance for professionals:



  • acknowledge and draw on parental knowledge and expertise in relation to their child

  • focus on the children’s strengths as well as areas of additional need

  • recognise the personal and emotional investment of parents and be aware of their feelings

  • ensure that parents understand procedures, are aware of how to access support in preparing their contributions, and are given documents to be discussed well before meetings

  • respect the validity of differing perspectives and seek constructive ways of reconciling different viewpoints

  • respect the differing needs parents themselves may have, such as a disability, or communication and linguistic barriers

  • recognise the need for flexibility in the timing and structure of meetings.

The different roles and responsibilities of local education authorities (LEAs) and schools include the following, as outlined in Chapter 2 of the Code:

LEAs


  • have a statutory duty to provide parent partnership services;

  • should ensure that parents and schools receive clear information about services and providers (including where relevant the involvement of voluntary groups);

  • have responsibility for the provision of a wide range of information material for parents;

  • should inform all parents that all maintained schools are required to publish their SEN policy; and

  • have a statutory duty to provide disagreement resolution arrangements that can demonstrate independence and credibility in working towards early and informal dispute resolution.

Schools

  • should recognise that teachers, SENCOs, pastoral and other staff all have an important role in developing positive and constructive relationships with parents;

  • should accept and value the contribution of parents and encourage their participation;

  • make every effort to identify how parents prefer to work with schools, with the recognition that some families will require both practical help and emotional support if they are to play a key role in the education of their children;

  • should seek to develop partnerships with local parent support groups or voluntary organisations;

  • have a statutory duty to publish their SEN policy;

  • should have a clear and flexible strategy for working with and encouraging parents to play an active role in the education of their children; and

  • in publishing their SEN policy, should seek to ensure it is presented in parent friendly formats.

The Parent Partnership Service1 should:

  • provide flexible services for parents, including access to other agencies and organisations, and, for all parents who want one, access to an Independent Parental Supporter;

  • provide accurate, neutral information on parents’ rights, roles and responsibilities within the SEN process, and on the wide range of options available, to enable them to make informed decisions;

  • provide training for parents, Independent Parental Supporters and school staff;

  • work with schools, LEA officers and other agencies to help them develop positive relationships with parents;

  • establish and maintain links with voluntary organisations; and

  • ensure that parents’ views inform and influence the development of local SEN policy and practice.

Despite these policies, a recent UK survey found that 72% of parents wanted more involvement in their children’s schooling (Department for Education & Skills, 2007).


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