Day 1 Digital Dreams ndis



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I am lucky, I have a human assistant that puts these entries into the Google Calendar for me. Soon we will have a laconic assistants helping us. 

How many people use Google for searching the web? I'm just going to assume all of you do. Research information, you have to initiate the search - for example, what is the weather in Brisbane? 

We now have a product called Google Now it looks at where you are based on GPS, and proactively telling you many things. It is available on Android. 

This is another example of how information is becoming less reactive, meaning we have to figure it out and jump through hoops to work it out, and more proactive - knowing what we have to know, knowing that you have to take your instrument to music lessons, knowing that you have to take that permission slip if you're going to that excursion. 

We should know this and we should be able to give you the advice have time. I'm optimistic that even though your shopping list is very long and very impressive think a lot of this is happening and will happen. 

I don't think it will take 10 years, I think it will take a small number of years, but thank you very much. 

(Applause) 

HUY NGUYEN: 
Are you able to quickly comment on the safety factor? Bailey mentioned verified sources, etc. 

ALAN NOBLE: 
For those of you who use these Google services, it lives in the Cloud. We take caution and care to make sure your data is kept safe. We have an entire team of engineers who make sure that it is taken care of, secure and private. 

We do realise how important this is. We take it very seriously. 

HUY NGUYEN: 
Thank you, Alan. Next, we have Kate and Maud. They met at university. They are both avid users of communication technologies, whether it is social media or other forms. Kate suffers from Fibromyalgia and Chronic Fatigue Syndrome and Bipolar Disorder. She is studying a Masters of Arts and is currently working on a novel. 

Maud has a post-traumatic stress disorder. She likes horror stories and is interested in machinery and robotics. Thank you. 

KATE WOOD: 
I am Kate. The app we have come up with is to help with cognitive impairment issues, or as I call it, the 'confused all the time'. 

I would like to talk about the ideas, and Maud will talk about things that can help when you have a dissociated associative incident and need help. 

This is what my phone looks like, I use the free calendar app that comes with the iPhone. I save my money and try to adapt this to work the best I can. 

It is such a mess, it took me two screenshots to show you, I need to set for reminders for a doctor’s appointment, and I need a week before, a day before, two hours before and (inaudible). 

If I need to call Sarah to (inaudible) dinner (inaudible). Our dream schedule would do all these things, allow infinite alarms to be set, and be set with instructions, not just dinner with Sarah, but in with Sarah, call to confirm, buy a bottle of wine. 

(Inaudible) regular alarm to be switched off for a number of days. I will talk about customisation later. I want it to be able to categorise appointments. I would like to include a list of things, including suggestions by category. 

It should come up with a list of things I need for a medical appointment like my x-rays, Medicare card, a referral, and I could select. 

I would like to have the ability to see day, week, month and what you have got coming up. 

The other element is notetaking. Here is another example of what might find looks like. I cannot remember a random thought half an hour later so I take notes throughout the day about things I need to do. 

If I remember, I check at the end of the day, said more detailed reminders and had (inaudible). It may be to tell the doctor that a mole is concerning me, remind my father about the thing with the garage door, water that thing online for my mother – and I am yet to find an app to (inaudible) the process. 

The dream app would have the capacity to do this as well as quick notes and (inaudible) on the go. Such as the button that says 'medical' or (inaudible). 

I need to keep an eye on my skin for cancers, so I would need shorthand for a mole but (inaudible) can mechanical problem – someone else may. 

I would need the option for a more detailed note, an easy interface for quick notes, often you don't want to explain to someone you need to take notes on your phone. You don't have to disclose that you have a disability. 

I would also like permanent lists that can be easily changed and accessed like shopping lists, current (inaudible). Maud will take a minute to talk about things and it would have for a dissociative incident. 

MAUD BEISSEL: 
I have been living with (inaudible) PTSD for a number of years and one of my goals for an app would be what to do when you experience a panic attack or associative episode when you are going about your business in public. 

The app would tell you, you are here, location A is (inaudible) and you are this many kilometres from home. It should incorporate a single touch option when the user wants to leave the area they are in. 

It should include the (inaudible) and taxi rank. Landmarks for coming back down to earth, if you look (inaudible) you will see a statue of Matthew Flinders. 

Safe spaces are a key part of this app. The opportunity for shops, restaurants and community places to register with the app and the type of space they offer. 

Contact and communication. One touch call for a primary contact. If they are not available it automatically diverts to a secondary caller. 

One touch messaging, mine would call my fiance and say, "Luke, I am having a panic attack in the middle of Coles, please call me ASAP." 

There are problems with one size fits all approach is to mental health and a (inaudible) is very important. 

For example, if you were to download something like a (inaudible) app that is not... The come down techniques that work for you, it may be an alienating experience and feel like a bit of a waste of time. 

Thank you. 

(Applause) 

KATE WOOD: 
I have added two functions since I made this slide – we would like username and password storage for all your accounts and subscriptions. 

Even Google Chrome can do that, so adding it would not be difficult. Medication lists and reminders, your books of pills last for 30 days, it has been 25 days, get a new prescription. 

There would need to be a customisable interface and colour schemes to optimise the interface to their needs. 

Also the ability to record details in a medical style format, your bowel movements, your menstrual cycle, or whatever a doctor has asked you to record. 

Also, it would be good if it is able to help you with... I can't remember what the idea was, but if you want to ask me later. 

The final thing would be to link this in one app. The GPS in your phone (inaudible). When an appointment is listed as medical, your medical issues list could pop up and (inaudible). You sometimes forget you have 4000 other problems you want to mention to the doctor. 

If you have a chronic illness, like I do, that is a problem. 

I would like it to link to other apps. Have you replied to this email yet? Those are the kinds of things you need to remember to do and I need someone to tell me all the time. 

At the end of the day you let the app no you have more time (inaudible). The other thing I would like you to do is be a personal assistant. For I go to bed I could get a rundown of everything scheduled for tomorrow, the app could prompt you to set a series of alarms that would help you wake up in time. 

At the beginning of the day it would tell you what you have going on, these are the things you need to pack, then you would be less confused throughout the day, like having a personal assistant following you around. 

That is pretty much all of our ideas. 

(Applause) 

HUY NGUYEN: 
Thank you. Responses? 

PETER FORD: 
Having a personal, electronic, not just an assistant, but a code or an algorithm that seems to be able to predict or understand your behaviour patterns. 

On the high side, that is a very great assistant, having somebody to remind you to remember on a certain date. Siri does a lot of these things. 

Again, it comes back to having software, probably on the Cloud, that can get to know as much about you as you would like to know, and help you with the medical or social memos that you need help remembering. It becomes a friendly route assistant, wherever it resides. 

ALAN NOBLE: 
Thanks, Kate and Maud. I'm not much of an iPhone user because I work for Google. Google Calendar has a lot of what you want. You can set up multiple notifications, SMS alerts on individual notifications, as well as just the normal (inaudible). 

I encourage you to maybe a least take a look at that. I think you will find some of the things you talked about would be there today. 

The note taking is interesting, too. There are some products out there that Google (unknown term) that set up alerts on your notes, as well. 

We don't have to do is what Maud was talking about - the panic attack app. That seems very doable. It has to be obvious to activate. 

I would imagine that even fiddling for the phone when you're having one of these episodes would be quite difficult. You want something that will basically remind you where you are, who you could contact. 

That, again, all the bits and pieces are there, it is just a matter of somehow bringing these together. 

One other comment - the linking between apps - great idea. The challenge is sometimes that the apps certain users want to link to from different companies. 

I'm not making excuses or anything, but I think we as a technology industry need to do a better job of, I guess, inter-operating between different types of apps. I will take that on to see if we can improve integration. 

I take the point. 

SPEAKER: 
The iPhone does link to the calendar, but it puts every event you have been invited to. I wanted to lipid a things that I want to go to, which seems obvious, but it does not do it. 

ALAN NOBLE: 
We need better information filtering - is an appointment, study? Some (inaudible) have this (inaudible) of layers. 

I am optimistic that some of these components are there and it is just a matter of pulling it together. 

With NDIS and a spotlight on this, there will be some app developers out there who may take a message. 

(Applause) 

PETER FORD: 
Unless you nominate somebody to call (inaudible). I'm sure Android has them as well. If you hit the button, it calls somebody you nominate. 

SPEAKER: 
The original inspiration for that idea was (inaudible) we don't have to unlock your phone, it was something like that. I can't even remember the password to my phone when I am having a panic attack. It is just an emergency function. 

HUY NGUYEN: 
Thank you once again, Maude and Kate. 

(Applause) 

HUY NGUYEN: 
I would like to invite our next speaker, Beryl, on stage. She has a son with down syndrome, is a former schoolteacher. She is part of a group that supports (inaudible) was a mild and (inaudible) intellectual disability. 

They have made great strides to independence. Then again independently as a group without a carer a lot of activity such as bowling, to the beach, stage shows, movies, et cetera. Supported only in planning and by phone when necessary. Thank you very much, Beryl. 

BERYL DYER: 
Thanks are much for the opportunity to do this. I did have a developer, at one stage, who was going to take up (inaudible), but it fell through because of personal reasons. The developer and I could not pay the ordinary cost to develop this app, so it fell by the wayside. 

It is about paying a combined (inaudible) bill. Having mild and moderate intellectual disabilities, they can get through all the steps at a restaurant, together, they can read the menu, they can write down, usually, what they want in the price. They can say or show the written thing to the waiter. They can know whether they have the right meal. 

The one comes to the bill, it is another matter altogether. In my experience, I have found that even though people with mild and moderate disabilities can (inaudible) really well, all of them, in my experience, have trouble with number, i.e. Mathematics. 

They really can't tell when you have to add, subtract or multiply or divide. Getting a restaurant bill together on their own has been absolutely impossible. 

And a little picture on the left hand side, essentially, represents me. I have had to go with them whenever they go to a nice restaurant, and I have had to do all the calculations are making sure that everything is right. 

I have used paper and pen methods, but it is time-consuming, it is just not good. Then, the idea of an app came to me. Most of the guys have an iPhone, several have iPads. 

I thought, if we could get them through the hurdles of being able to handle it by using an iPhone or an iPad, that would be a wonderful thing.

This is the group, I am out of the picture. It is at a fancy restaurant in Chatswood, prior to seeing a movie last Friday. 

You will see little pieces of paper where they wrote out what they wanted and showed it to the waiter. Some of them can speak well, this goes into a video which I can click on. 

(Video plays) 

SPEAKER: 
I am Luke. 

SPEAKER: 
I am Peter. 

SPEAKER: 
I am Lisa. 

SPEAKER: 
I am David. 

BERYL DYER: 
This is what I thought, other people may have different ideas, I have always had to take along a float, enough money for change for the guys. 

I was well equipped with one dollar and two dollars coins, not as well equipped with $20 notes, but enough to give them change. I gather it all together and present the money with the deal. 

The app has to know about the float, what we have in it, how many notes, how many coins. We would have something like a check in box so the app knows who has come to the restaurant that night. 

David, for example, would tap on the green box and the app would say that it is here. A friend that came along could tap and put there name in the space at the bottom. 

The app knows exactly who is here tonight. Then we have to find out how much David has got to spend. David cannot be quite sure, although they have a rough idea, but they are not accurate to the last degree, he needs to know what he has to spend. 

Tonight he taps beside the $20 bill, says he has one of them, that's the $10 bill and says he has one of them. He has $30 to spend. Under the order he writes what he wants, they can all do that. 

In my experience, most people with moderate intellectual disability can do that, copy it from the menu and put the dollars and cents in. 

The app would do the running total. We had to use calculators and it was awkward. 

Most importantly the app would warn if David does not have enough money, so he will cut out the OJ or go for a cheaper main meal. 

Everyone gets the opportunity to do that on their iPad or iPhone. At the same time David is doing this, I had to help with all of them before, at the same time Lisa and Peter are doing there is, naturally is doing hers, they are all linked in some way. 

The total app, so to speak, knows how much money people have, what they ordered, and David's order would look something like that. David would need to know how he will pay for it. 

Say the bill was $24.65, the app will tell him, by means of a visual screen, you need to put in one 20 and one 10 to the person who has the float. 

They can look at something that says you have to give David such and such change. They can look at David's change screen which the kids have to be able to go back and forward between in case they need to alter it. 

The person who is in control of the float, giving out the change, most of our guys would do that, and that is typical of most mild or moderate intellectual disability people. 

David could look and see he needs to give one 10, one 5 and (inaudible), after David has done his ordering and is satisfied he does not want any more. He taps on the green screen, and the app knows that David's change has been give out. 

We need it all connected, everyone's screen, and the float, go to that by tapping at the bottom, and everyone can then see what Bindy ordered, how much change. In particular, the person handling the float can do that by tapping on the name. 

For example, if they wanted to know what Jason had done, what would come up is Jason's order, money, payment and change. The person giving it out would be able to look at that and do the right thing. 

It is (inaudible) that is read only part of the guys are not likely to put anyone else's order on anyone else's, unless they get that wrong. 

Then, they finally get the bill. In my experience, it is hardly different from what I calculated. It is not worth while taking the time working out who is right, it is not normally much, they tap on the dollars and cents, says the bill is $243.25. 

Then, and this is important, they have to be told how to do that. OK, out of your money, after everyone has given their money in, you will get the person one 20, one five, one 10 cent, 5 cent coin (inaudible) they could not do it, I would have to be there. 

Except for these things, I don't have to be there, they can go, order, put their money in, I am sure they can handle it. 

Talking to a few of my friends about it, lots of other groups could also get just that bit more independent. They could go to the restaurant confident they are not causing interest from everyone around because they were having trouble with the deal. 

I have even heard people say they could use that because all of you have experienced what it is like if you have a complicated deal. We can't just divide the total by the number of people – it just does not work. The guys have different budgets and appetites. 

Somebody's bill may only be $8.50 because they only chose fried rice, whereas someone else wants fillet mignon at $35. 

It is not possible for our guys to put it together to pay the bill in the right amount might let alone pick change out of the in mind out to get the correct amount of change. 

I have hunted around for restaurant apps, but they don't appreciate it. As a mathematician, the number is the key thing for people with mild and moderate intellectual disability. Until you talk to people about things like numbers you would not recognise there was a disability there. 

When you go to number, sorry, it is another thing altogether, and it seems to be very common amongst the mild and moderate intellectual disability spectrum. 

I am hoping I can find someone who will write this app for me so people with a disability can go to a restaurant without a carer, go on their own, like a normal person – thanks. 

(Applause) 

PETER FORD: 
I think that is an issue that affects a lot of people who go to share a meal together. 

As a mathematician, you will appreciate that you can get Excel spreadsheet on any platform - Android, iPhone - and you can set up in advance for a person's name. 

You can do conditional formatting. If somebody orders more than they have in cash, it will turn red. 

As the iPad is being passed around the table, person-to-person, or one person may be nominated to be the Treasurer. 

BERYL DYER: 
(Inaudible).

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