Since the start of the process of developing a successor framework to the MDGs, the need for more information disaggregated by disability has been highlighted. This call has been made by civil society organizations,559 by the Secretary-General’s Independent Expert Advisory Group on a Data Revolution for Sustainable Development in the data revolution report ‘A world that counts’560, by international human rights mechanisms561 , in the Synthesis Report of the UN Secretary-General released in 2015562, and by the Member States themselves.563 In particular, the 2030 Agenda for Sustainable Development aims for enhancing capacity building support to developing countries to increase significantly the availability of high-quality, timely and reliable data disaggregated by disability, by 2020, i.e. within five years of the adoption of the Agenda.564 In addition, monitoring, reviewing and following-up on progress towards SDG targets which explicitly focusing on persons with disabilities, will require disability specific indicators, focusing on accessible and participation of persons with disabilities. In particular, three SDG targets focus on accessibility of education,565 transport,566 public and green spaces;567 another three targets focus on participation of persons with disabilities in education,568 employment569 as well as in social, economic and political spheres.570 The completion of the SDG global indicator process, to be concluded in March 2016, poses an opportunity to develop appropriate indicators for these targets. Additionally, countries may expand any global disability indicators with national indicators for their policy needs regarding persons with disabilities.
At the national level, disability indicators can be used to assess the success of efforts for inclusive development. With this aim, countries may focus on establishing indicators to be collected regularly to assess in an inclusive manner the situation of persons with disabilities and the barriers they face, and to design disability specific indicators to capture progress in implementing various policies and programs aimed at inclusion and to evaluate in an inclusive manner their final impact. Most of these indicators will fall into one of these categories:
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Indicators to monitor the wellbeing of people with disabilities as compared to people without disabilities, e.g. unemployment rate for persons with disabilities, school attendance for children with disabilities.
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Indicators on accessibility and barriers faced by persons with disabilities, e.g. percentage of public buildings accessible for persons with disabilities; number of sign language interpreters available; percentage of persons with disabilities indicating discriminating prejudices as a reason for not getting a job.571
It is essential that the SDG indicators, as most as possible, be disaggregated by disability, so that countries can monitor whether their development activities are reaching people with disabilities. Apart from disaggregating data by disability, double-disaggregations will be needed to achieve the SDGs for those who are at a double disadvantage, like women with disabilities. Data should be disaggregated:
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simultaneously by disability and sex (to monitor girls and women with disabilities);
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simultaneously by disability and age (to monitor children and older persons with disabilities);
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simultaneously by disability and income groups (to monitor the poor with disabilities);
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by type of disability (to monitor, among others, persons with mental and intellectual disabilities).
Data on refugees should also be disaggregated by disability. In addition, data should be collected on the extra costs incurred by persons with disabilities due to their disability. Without this information, it is difficult to assess the extent of poverty among persons with disabilities. Poverty figures for persons with disabilities should be adjusted for the estimated costs of living with a disability.
At the national level, several approaches to data and information collection can be used to obtain a picture of the participation and barriers faced by persons with disabilities and to provide data to assess progress towards the SDGs for persons with disabilities:
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Adding short set of questions to existing censuses and national surveys, like Demographic Health Survey, Labour Force Surveys, Household Income and Expenditure Surveys, or any other national surveys that will serve as the basis for the SDG indicators. The Washington Group short set of questions have been developed with that aim. These questions will identify people who are at risk of being excluded because of functional difficulties. If gaps exist in the SDG indicators for people with and without these functional difficulties, then this is a sign that barriers are preventing people with disabilities from benefiting from economic development on an equal basis with their non-disabled peers. This approach is low cost as it requires only a modest addition of six questions to existing censuses or surveys.
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Carrying out detailed national disability surveys, ideally every five years, to get a full picture of the situations of persons with disabilities. Examples for such surveys include the WHO Module Disability Survey. These surveys are essential to obtain quantitative data on the nature and extent of disability, the development outcomes for people with disabilities, and the barriers they face.
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Conducting qualitative studies to understand the dynamics underlying how existing barriers affect the lives of people with disabilities, and to provide insights into how best to intervene to remove these barriers.
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Incorporating disability information into Education Management Information Systems (EMIS).572 EMIS’s are based on school censuses administered on an annual basis by ministries of education. These systems should not only identify children with disabilities, but also collect information on the accessibility of structures and materials and the training of teachers on educating children with special needs.
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Monitoring children with disabilities by using disability questions appropriate to them. UNICEF and the Washington Group on Disability Statistics are currently developing disability questions for children.
Rigorous evaluations of the impact of policies and programs on persons with disabilities are lacking. These require not only high-quality data on disability and the environment, but also baseline data and well-constructed comparison or control groups. Such studies are scarce573 and more efforts should be placed into monitoring and evaluating national policies impacting on persons with disabilities. In particular, with the implementation of new policies and programs, care should be taken to establish baseline data and set up proper comparison or control groups so that outcomes can be evaluated properly. These evaluations should be conducted in a participatory manner including persons with disabilities who are ultimately the beneficiaries of the programmes.
Finally, in the current era of digitisation, persons with disabilities should benefit from the data revolution and the opportunities that such a revolution may provide in making them more visible. New technologies should be explored to identify ways to monitor the situation of persons with disabilities at a lower cost. These data should be freely available and accessible.
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