2.3 Summary
Valuing diversity can bring about several desirable outcomes, including: (a) enhancing social development by expanding the pool of people with whom individuals can associate and develop relationships; (b) preparing students for future career success by becoming sensitive to human differences and able to relate to people of different abilities; (c) increasing individuals’ knowledge base and creative thinking by interacting with a diverse group of people; (d) enhancing self-awareness by students comparing and contrasting their life experiences with others who may differ sharply.
Morally, there is a strong argument for valuing diversity, arising from the doctrine of human rights, which aims at identifying the fundamental prerequisites for each human being to lead a minimally good life and to enjoy the full rights of citizenship. It rests upon belief in the existence of a truly universal moral community comprising all human beings.
A related position on human rights argues that each individual owes a basic and general duty to respect the rights of every other individual because, by doing so, one’s individual self-interest is furthered. From this perspective, individuals accept and comply with human rights because this is the best means for protecting one’s interests against actions and omissions that might endanger themselves.
When considering human rights, it is useful to distinguish between ‘positive claims rights’ and ‘negative claims rights.’ The former enjoins us to treat individuals in a positive manner by, for example, providing appropriate education, irrespective of an individual’s degree of disability. The guiding principle in the latter is that we should do no harm to people who are different.
In understanding the basis of human rights, we must consider arguments about which economic framework and which resulting distribution of wealth is morally preferable. Deciding on the principles of ‘distributive justice’ that should apply is extremely significant for determining how societies respond to differences among its citizens, particularly how they behave towards those who are disadvantaged – and especially towards SWSEN. Consideration is given to five main approaches to distributive justice:
Strict egalitarianism calls for the allocation of equal material goods to all members of society, on the grounds that people are morally equal. This approach has been criticised as being untenable and that it conflicts, for example, with what people might deserve and their freedom rights.
Libertarianism centres on the moral demands of liberty or self-ownership. Advocates argue for unrestricted markets and limited government regulation or interference in the name of human freedom. With its emphasis upon individualism, managerialism, and competition within education, it is not a strong philosophical basis for achieving equity for SWSEN.
Utilitarianism argues that actions are right if they are useful or for the benefit of a majority. Only those actions that maximise utility (i.e., produce pleasure or happiness and prevent pain or suffering) are deemed to be morally right. Further, the greatest happiness of the greatest number of people should guide our conduct.
Immanuel Kant argued for the ideal of a potentially universal community of rational individuals autonomously determining the moral principles for securing rights. His emphasis on human dignity and doing the right thing because it is right, not for some ulterior motive, informs present-day notions of universal human rights.
John Rawls put forward two essential principles of justice. The first is that each person has equal basic rights and liberties, such as freedom of speech and religion. The second he referred to as the ‘difference principle’, in which he argued that divergence from strict equality is permitted so long as the inequalities in question would make the least advantaged in society materially better off than they would be under strict equality.
CHAPTER THREE PARADIGMS OF
A paradigm is an ideology or frame of reference. It is the way one perceives, understands, or interprets a topic or issue. Individuals interpret (often unknowingly) everything they experience through paradigms, frequently without questioning their accuracy. People simply assume that the way they view things is the way things really are or the way things should be. Paradigms are so ingrained in culture that they seem “natural”. They are a primary source of our attitudes and actions. (Baglieri & Shapiro, 2012, p.20)
Thomas Kuhn defines a paradigm as `universal achievements that for a time provide model problems and solutions to a community of practitioners' (Kuhn, 1962, p.10).
During its history, the broad field of special education has been the site of quite different paradigms which posit certain relationships between individuals with disabilities and their environments. This chapter will examine the three most dominant paradigms: the psycho-medical paradigm, the socio-political paradigm and the organisational paradigm.
3.1 Psycho-medical Paradigm
Until recently, special education has been dominated by a psycho-medical paradigm, which focuses on the assumption that deficits, or pathologies, are located within individual students (Clark et al., 1995). This paradigm may have grown out of the view that disability is a sign of the moral status of the person or as a sign of divine disfavour, with the remedy lying in salvation or redemption. Such a view existed in the past in many western societies and continues to exist among some people in developing countries.
Historically, the psycho-medical paradigm has been the most widespread and has been used in both the diagnosis and educational treatment of children with disabilities. As noted by Ackerman et al. (2002), in this model students receive a medical diagnosis based on their psychological and/or physical impairments across selected domains and both strengths and weakness are identified for education and training. Those with similar diagnoses and functional levels are grouped together for instructional purposes.
This paradigm is problematic for several reasons. Christensen (1996) identified four. Firstly, it leads to the attribution of student failure to a defect or inadequacy within the individual, thus masking the role that highly constraining educational systems play in creating failure. Secondly, it wrongly suggests homogeneity within various diagnostic categories. Thirdly, many students enrolled in special education do not manifest demonstrable pathologies. Fourthly, instruction based on categories are of limited value.
With its emphasis on deficit theory, consideration of the psycho-medical paradigm, draws attention to such issues as ‘disablism’, ‘racism’ and ‘classism’. In both cases, students are defined by their weaknesses rather than their strengths, without reference to systemic conditions that contribute, even cause, their condtions (Gorski, 2008). As well, the less powerful members are frequently stereotyped and discriminated against.
3.2 Socio-political Paradigm
In contrast to the psycho-medical paradigm, several writers regard disability as a socio-political construct, which draws attention to structural inequalities at the macro-social level being reproduced at the institutional level (Christensen, 1996; Clark, et al., 1995; Skidmore, 2002; Skrtic et al., 1996). Some writers are critical of this socio-political perspective, however, blaming it and its derivatives for what they consider to be an unscientific approach to special education (see Heward, 2003; Kauffman, 1999; Kavale & Mostert, 2003; and Sasso, 2001).
An interesting variant of the socio-political paradigm is a socio-cultural view presented by Danesco (1997) on the basis of her examination of international studies of parental beliefs about the nature and causation of childhood disabilities and about treatment and intervention. These studies revealed a commonly held duality of beliefs, with many parents in some cultures simultaneously holding both biomedical and socio-cultural views, the latter derived from magical, religious, supernatural, or metaphysical beliefs. Among the socio-cultural views is the belief espoused by cultural groups that adhere to the idea of reincarnation, where a disability is perceived as a condition affecting a present life but not necessarily the preceding or following lives. This duality of beliefs leads parents to pursue both formal biomedical help and support from informal networks, including eliciting the help of folk healers, performing religious rituals and changing their own behaviours to atone for past transgressions. Danesco argued that professionals need to identify where their and parents’ beliefs are convergent, divergent, or in conflict, and to develop strategies to deal with these circumstances.
Danesco’s argument is echoed by Kalyanpur et al. (2000), who contended that the equity and advocacy expectations embedded in mandates for parent participation in special education decision-making processes may well be in conflict with the values held by many families from culturally diverse backgrounds. This is particularly so in the case of those who do not share beliefs in the primacy of participatory democracy, individual rights and freedom of choice. Instead of equity, some cultures may believe that inequality is a right and proper principle; instead of asserting individual rights, some cultures emphasise social obligations; instead of valuing choice, some cultures accept the primacy of ascribed roles. It is therefore incumbent on professionals that they develop an awareness of their own cultural and ethical values and understand that these may not be universally shared.
3.3 Organisational Paradigm
To these two paradigms, Clark et al. (1995) have added a third, an organisational paradigm, which they have identified in the writings of scholars such as Ainscow (1995) and Lipsky & Gartner (1999). In this newly-emerged paradigm, special education is seen as the consequence of inadequacies in mainstream schools and, consequently, ways should be found to make them more capable of responding to student diversity.
This perspective evokes the World Health Organization’s (2001) distinction between ‘impairment’ and ‘disability’. The former is usually taken to mean any loss or abnormality of psychological, physiological or anatomical structure or function. The latter refers to disadvantages or restrictions of activity caused by a society and its agencies which take little account of people who have impairments and thus excludes them from participation in the mainstream of social activities (i.e., the organisational paradigm). Or, as expressed by the National Institute on Disability and Rehabilitation Research, disability is a product of an interaction between characteristics (e.g., conditions or impairments, functional status, or personal and social qualities) of the individual and characteristics of the natural, built, cultural, and social environments.
In the organisational paradigm, then, disabilities are perceived as a function of the interaction between individual students and their physical, social and psychological environments. Instructional techniques and learning opportunities should therefore be structured to compensate for environmental deficiencies to ensure that children learn and achieve skills of adaptive living. This can be achieved through such means as schools implementing findings from research into effective teaching (see Chapter Twelve), operating as problem-solving organisations, and supporting teachers through the change process. Or, as Potok (2001) rather graphically expressed it, ‘disability is the problem of the guys who design and build the steps, not the problem of the person in the wheelchair for not being able to walk’ (p.65)
While recognising that their own work has largely been based on many of the assumptions of the organisational paradigm, Clark et al. have come to have some concerns with certain aspects of it. These include the difficulty in bringing about even minor changes in schools, given their ‘actual complexity and messiness’, and an apparently absolutist position lurking beneath the paradigm. While their own research shows that in individual schools it is possible to identify one of the three paradigms as being dominant (i.e., held by the powerful members of staff, especially principals), subordinate perspectives invariably co-exist among less powerful members of staff (i.e., teachers) and have to be taken into account by policy analysts.
3.4 Paradigm Shifts
While in most countries a mix of all three paradigms underlie their educational provisions for SWSEN, the preponderant one remains the psycho-medical model. It continues to retain its adherents even when other paradigms that place an emphasis on the environment have gained traction in recent years. It cannot yet be said that that the field has undergone a Kuhnian ‘paradigm shift’, in which traditional paradigms are discarded in favour of the new. The field of special education and its various players do not appear to be ready to make the shift away from the psycho-medical paradigm to a socio-political or organisational paradigm, just as there is continuing reluctance to make the shift away from segregated education paradigm to an inclusive education paradigm (see Chapter Thirteen). As Roach (2003) points out, paradigm shifts require what Argyris (1993) calls a move from ‘single loop’ learning to ‘double loop’ learning. In the former, changes occur only in surface behaviour, while in the latter there is deep conceptual change.
3.5 Summary
A paradigm is an ideology or frame of reference. It is the way one perceives, understands, or interprets a topic or issue.
During its history, the broad field of special education has been the site of quite different paradigms, or models, which posit certain relationships between individuals with disabilities and their environments.
This chapter examined the three most dominant paradigms:
the psycho-medical paradigm, which focuses on the assumption that deficits are located within individual students,
the socio-political paradigm, which focuses on structural inequalities at the macro-social level being reproduced at the institutional level, and
the organisational paradigm, in which special education is seen as the consequence of inadequacies in mainstream schools.
While most countries have a mix of paradigms underlying their educational provisions for SWSEN, the preponderant paradigm remains the psycho-medical model, which still retains its adherents even when other paradigms that place an emphasis on the environment have gained traction in recent years.
It cannot yet be said that that the field has undergone a Kuhnian ‘paradigm shift’, in which traditional paradigms are discarded in favour of the new.
CHAPTER FOUR DEFINITIONS, CATEGORISATION AND TERMINOLOGY
Given the diversity of paradigms outlined in the previous chapter, it is not surprising to find that making international comparisons of provisions for SWSEN is fraught with difficulties. As we shall see in this chapter, there is no universal agreement as to how this group of students should be referred to, how they should be defined and what, if any, categories they should be divided into. As well, these differences interact to determine differences in the structure and function of special education services and how they should be funded.
This diversity reflects a variety of factors, including different philosophical positions, such as those outlined in the previous chapter; the history of organisations/systems; local traditions within school districts; legal foundations; and fiscal policies and constraints (Weishaar & Borsa, 2001). It is further compounded by the recent UNESCO International Conference on Education resolution that Member States should adopt a broadened concept of inclusive education that addresses the diverse needs of all learners (UNESCO, 2009). In relation to the countries it covers, the European Agency for Development in Special Needs Education (EADSNE) commented on this diversity: ‘These differences between countries are strongly related to administrative, financial and procedural regulations. They do not reflect variations in incidence and the types of special educational needs between these countries’ (EADSNE, 2003, p.8).
This chapter will examine various definitions and classifications of SWSEN, discuss some problems with classification systems, and terminological issues.
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