Appendix 1 New Zealand legislation

1^ Please note the two different acronyms: DPA (Disabled Persons Assembly) and DPOs (Disabled Persons Organisations). The former is a pan disability organisation. The latter are disability-specific organisations. Both DPA and DPOs are non-government organisations funded through charities and some government project-based funding.

2^ This dedicated role is currently subject to government review.

3^ In New Zealand local bodies are called Councils (Regional, District or City Councils).

4^ http://www.stats.govt.nz/browse_for_stats/health/disabilities/social-economic-outcomes-13.aspx

5^ http://includingallpeople.org.nz/

6^ http://www.cpag.org.nz/resources-publications/publications/

7^ http://includingallpeople.org.nz/

8^ http://www.stats.govt.nz/

9^ Northland, Whanganui, and the Bay of Plenty are also high deprivation regions. http://www.otago.ac.nz/wellington/otago069936.pdf

10^ http://www.spinz.org.nz/file/FAQs/PDFs/mental-health-survey.pdf;

11^ http://www.health.govt.nz/system/files/documents/publications/mental-health-survey-summary.pdf

12^ http://www.health.govt.nz/publication/new-zealand-health-survey-annual-update-key-findings-2012-13

13^ http://www.health.govt.nz/publication/annual-update-key-results-2013-14-new-zealand-health-survey

14^ http://www.health.govt.nz/system/files/documents/publications/mental-health-survey-summary.pdf

15^ http://www.health.govt.nz/publication/annual-update-key-results-2013-14-new-zealand-health-survey

16^ http://www.health.govt.nz/publication/suicide-facts-deaths-and-intentional-self-harm-hospitalisations-2012

17^ www.health.govt.nz/system/files/documents/publications/suicide-facts-2011-jan14_0.pdf

18^ http://www.health.govt.nz/publication/annual-update-key-results-2013-14-new-zealand-health-survey

19^ http://www.leva.co.nz/about

20^ http://www.health.govt.nz/publication/annual-update-key-results-2013-14-new-zealand-health-survey

21^ http://www.health.govt.nz/publication/health-indicators-new-zealanders-intellectual-disability

22^ www.nzma.org.nz/journal/read-the-journal/all-issues/2010-2019/2014/vol-127-no.-1394/6126

23^ http://www.odi.govt.nz/resources/publications/new-zealand-disability-strategy.html#NewZealandDisabilityStrategy1

24^ http://www.odi.govt.nz/what-we-do/ministerial-committee-on-disability-issues/disability-action-plan/2014-2018/index.html

25^ For further details about the ways in which the framework implementation is promoted, protected and monitored see the Office for Disability Issues website:

http://www.odi.govt.nz/what-we-do/un-convention/framework/index.html

26^ http://www.odi.govt.nz/what-we-do/ministerial-committee-on-disability-issues/index.html

27^ http://www.odi.govt.nz/what-we-do/ministerial-committee-on-disability-issues/disability-action-plan/2014-2018/index.html

28^ A new Minister for Social Development was appointed in 2014. To date the Minister has demonstrated a mono-cultural, dictatorial and adversarial approach to a range of social issues that directly and indirectly affect disabled people, including indigenous people and the many disabled people who live in poverty. The Minister’s approach also reflects a free-market ideology that is antithetical to UNCRPD and social protections for disabled people. For example, the Minister recently hand-picked a panel of ‘experts’ to review New Zealand’s Child, Youth and Families Services (CYFS). The Minister did not consult iwi leaders, or appoint any indigenous leaders, despite more than 50 percent of children in CYFS care being indigenous children. This is a clear breach of the United Nations Declaration on the Rights of Indigenous Peoples and the Treaty of Waitangi.

29^ For example from the Ministries of Health, Education, Justice, Transport, Business, Innovation and Employment, Foreign Affairs and Trade, ACC and Housing New Zealand Corporation.

30^ http://www.odi.govt.nz/about-us/index.html#Ourresponsibilitieswhatwedo2

31^ http://www.odi.govt.nz/about-us/index.html#Ourresponsibilitieswhatwedo2

32^ http://www.odi.govt.nz/what-we-do/ministerial-committee-on-disability-issues/disability-action- plan/2014-2018/we-worked-with-dpos-to-develop-the-new-plan.html

33^ Most DPOs also include non-disabled members; however only disabled members have voting rights.

34^ http://www.nzdsn.org.nz/

35^ http://www.ihc.org.nz/

36^ http://www.ccsdisabilityaction.org.nz/

37^ http://www.healthcarenz.co.nz/

38^ http://www.mashtrust.org.nz/

39^ http://www.health.govt.nz/our-work/disability-services/disability-projects-and-programmes/disability-workforce

40^ http://www.odi.govt.nz/what-we-do/ministerial-committee-on-disability-issues/disability-action-plan/2014-2018/index.html

41^ Article 33 Convention Coalition Monitoring Report. (2015) Disability Rights in Aotearoa New Zealand: Acceptance in Society (page 9).

42^ For example: a) Article 33 Convention Coalition Monitoring Group (2014) Disability Rights in Aotearoa New Zealand: Participation and Poverty; b) Article 33 Convention Coalition Monitoring Group (2013) Disability Rights in Aotearoa New Zealand 2013: Youth; c) Article 33 Convention Coalition Monitoring Group (2012) Disability Rights in Aotearoa New Zealand 2012; Article 33 Convention Coalition Monitoring Group (2010) Media and disabled people. See: http://www.odi.govt.nz/what-we-do/un-convention/framework/index.html - section titled ‘Monitoring the rights of disabled people by the Convention Coalition’.

43^ See Human Rights Commission (2014) Making Disability Rights Real. Wellington: New Zealand http://www.hrc.co.nz/files/5214/2357/0956/Making-disability-rights-real-Print2.pdf

44^ http://www.hrc.co.nz/files/3214/2396/7510/A-BRIEFING-FROM-NEW-ZEALANDS-CRPD-INDEPENDENT-MONITORING-MECHANISM.pdf

45^ http://www.leva.co.nz/disability/faiva-ora-national-leadership-group

46^ http://www.odi.govt.nz/what-we-do/ministerial-committee-on-disability-issues/disability-action-plan/2014-2018/we-worked-with-dpos-to-develop-the-new-plan.html

47^ http://www.health.govt.nz/our-work/disability-services/disability-projects-and-programmes/consumer-consortium

48^ The programme is called Kia Noho Rangatira Ai Tātou.

49^ In New Zealand, Commissions are independent Crown entities that are established (and disestablished) under legislation determined by the government.

50^ GCSB Bill http://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=10897315

51^ The official relationship is between the Crown and indigenous leaders.

52^ The indigenous people; also called Māori.

53^ The Declaration has yet to be comprehensively addressed across the New Zealand disability sector.

54^ Whānau means ‘extended family, family group... and the primary economic unit of traditional Māori society. http://maoridictionary.co.nz/

55^ Hapu means ‘kinship group, clan, tribe, sub-tribe... or section of a large kinship group and the primary political unit in traditional Māori society. It consisted of a number of whānau sharing descent from a common ancestor.’ http://www.maoridictionary.co.nz/

56^ Iwi means extended ‘kinship group’ or ‘tribe’... and often refers to ‘a large group of people descended from a common ancestor and associated with a distinct territory.’ http://www.maoridictionary.co.nz/

57^ http://www.health.govt.nz/publication/whaia-te-ao-marama-maori-disability-action-plan-disability-support-services-2012-2017

58^ http://www.health.govt.nz/our-work/populations/maori-health/he-korowai-oranga

59^ Tangata whenua are the indigenous people of Aotearoa (New Zealand). Also referred to as Māori.

60^ http://www.health.govt.nz/publication/whaia-te-ao-marama-maori-disability-action-plan-disability-support-services-2012-2017

61^ http://www.health.govt.nz/publication/whaia-te-ao-marama-maori-disability-action-plan-disability-support-services-2012-2017

62^ http://www.health.govt.nz/our-work/populations/maori-health/he-korowai-oranga

63^ http://www.health.govt.nz/publication/faiva-ora-national-pasifika-disability-plan-2010-2013

64^ There are at least four Pasifika languages that are widely spoken and are a regular part of Pasifika people’s lives. 

65^ Whānau ora is a philosophical approach and a government endorsed programme. It is based on a holistic approach and seeks to enhance the capacity and capability of the whole family; not just a disabled individual. Whānau Ora (Māori: family health) is ‘a major contemporary indigenous health initiative in New Zealand driven by Māori cultural values. Its core goal is to empower communities and extended families (whānau) to support families within the community context.’ http://www.health.govt.nz/our-work/populations/maori-health/whanau-ora-programme

66^ New Zealanders of European ancestry.

67^ http://www.kapomaori.com/

68^ www.enablinggoodlives.co.nz

69^ http://www.odi.govt.nz/what-we-do/improving-disability-supports/enabling-good-lives/key-messages.html

70^ http://www.odi.govt.nz/what-we-do/improving-disability-supports/enabling-good-lives/index.html#Christchurch4

71^ http://www.odi.govt.nz/what-we-do/improving-disability-supports/enabling-good-lives/waikato.html

72^ http://www.health.govt.nz/our-work/disability-services/new-model-supporting-disabled-people

73^ http://www.health.govt.nz/your-health/services-and-support/disability-services/types-disability-support/individualised-funding

74^ http://www.carers.co.nz/

75^ Te Tāhuhu: Improving Mental Health 2005-2015: The Second New Zealand Mental Health and Addiction Plan; http://www.hdc.org.nz/about-us/mental-health-and-addictions/mental-health-sector-strategy-documents

76^ ‘Rising to the Challenge: The Mental Health and Addiction Service Development Plan 2012–2017’ and ‘Blueprint II How Things Need to Be’ are subsequent plans for improving mental health services and the mental health outcomes of New Zealanders.

http://www.health.govt.nz/our-work/mental-health-and-addictions/rising-challenge; http://www.hdc.org.nz/media/207642/blueprint%20ii%20how%20things%20need%20to%20be.pdf

77^ In situations where disabled people experience psychosocial disability AND other disabilities, services can be provided through mainstream ‘Disability Support Services’ contracted via the Ministry of Health. Likewise, the Ministry of Social Development offers services to people with coexisting disabilities.

78^ Gordon, S. & O’Brien, A. (2014) New Zealand’s mental health legislation needs reform to

avoid discrimination. New Zealand Medical Journal, Vol 127 No 1403.

79^ This group of people are typically forced to take high doses of psychotropic drugs (often multiple different types of medication at once) that have particularly adverse health effects, shorten life expectancy, impair people’s ability to function and compromise quality of life. People can remain under CTOs in the community indefinitely, with little recourse to justice. This practice is akin to preventative detention in the criminal justice system.

80^ New Zealand has a comparatively high rate of Compulsory Treatment Orders (i.e. forced treatment). Seclusion (including stripping) and restraint remain routine practice, despite national policy to reduce these practices. There is a substantial body of international research to show that all of these practices further traumatise people.

81^ Gordon, S. & O’Brien, A. (2014) New Zealand’s mental health legislation needs reform to

avoid discrimination. New Zealand Medical Journal, Vol 127 No 1403.

http://www.nzma.org.nz/journal/read-the-journal/all-issues/2010-2019/2014/vol-127-no-1403/6316

82^ For example: Barnett, H. & Lapsley, H. (2006) Journeys of Despair, Journeys of Hope. Young adults talk about severe mental distress, mental health services and recovery. Wellington: Mental Health Commission. http://www.mentalhealth.org.nz/assets/ResourceFinder/journeys-of-despair-journeys-of-hope-2006.pdf

83^http://www.ombudsman.parliament.nz/system/paperclip/document_files/document_files/715/original/opcat_2013_final_report.pdf?1386810238; https://www.google.co.nz/webhp?sourceid=chrome-instant&rlz=1C1NCHB_enNZ574NZ574&ion=1&espv=2&ie=UTF-8#q=ombudsman+investigates+intellectually+disabled+nz

http://www.ombudsman.parliament.nz/resources-and-publications/latest-reports

84^ http://www.health.govt.nz/system/files/documents/publications/office-of-the-director-of-mental-health-annual-report2012.pdf

85^ http://www.hrc.co.nz/files/6314/3130/4434/HRC_submission_to_CAT_Final.pdf

86^ Gordon, S. & O’Brien, A. (2014) New Zealand’s mental health legislation needs reform to

avoid discrimination. New Zealand Medical Journal, Vol 127 No 1403.

87^ http://www.hrc.co.nz/files/6314/3130/4434/HRC_submission_to_CAT_Final.pdf

88

89

90^ http://www.health.govt.nz/publication/health-indicators-new-zealanders-intellectual-disability;

91^ http://www.tepou.co.nz/uploads/files/resource-assets/summary-paper-the-physical-health-of-people-with-a-serious-mental-illness-andor-addiction.pdf; https://www.rnzcgp.org.nz/assets/documents/Publications/JPHC/February-2014/JPHCOSPWheelerMarch2014.pdf;

http://www.ox.ac.uk/news/2014-05-23-many-mental-illnesses-reduce-life-expectancy-more-heavy-smoking

92^ http://www.weka.net.nz/support/by-region/south-island/otago/donald-beasley-institute-dunedin

93^ http://www.hrc.co.nz/enquiries-and-complaints/what-you-can-complain-about/

94^ http://www.hrc.co.nz/enquiries-and-complaints/how-make-complaint/

95^ http://www.hdc.org.nz/the-act--code/the-code-of-rights

96^ http://www.hrc.co.nz/files/6314/3130/4434/HRC_submission_to_CAT_Final.pdf

97^http://www.ombudsman.parliament.nz/system/paperclip/document_files/document_files/708/original/annual_report_2012_-_2013.pdf?1381799341

98

99^ Gordon, S. & O’Brien, A. (2014) New Zealand’s mental health legislation needs reform to

avoid discrimination. New Zealand Medical Journal, Vol 127 No 1403.

100^ Gordon, S. & O’Brien, A. (2014) New Zealand’s mental health legislation needs reform to

avoid discrimination. New Zealand Medical Journal, Vol 127 No 1403.

101^ http://www.odi.govt.nz/resources/guides-and-toolkits/disability-perspective/eliminating-access-barriers.html

102^ http://www.otago.ac.nz/wellington/departments/publichealth/

103^ http://www.childpoverty.co.nz/

104^ http://nzccss.org.nz/publications/vulnerability-report/

105^ http://www.cpag.org.nz/assets/150317ChildDisability.pdf

106^Kelly, A., Denning-Kemp, G., Geiringer, K., Abdulhamid, A., Albabtain, A., Beard, M., Brimble, J., Campbell, A., Feng, S., Haminudin, M., Hunter, J., Kunac, N., Lin, P., Lundon, N., Keall, M., Howden-Chapman, P., Baker, M. G. (2013). Exposure to harmful housing conditions is common in children admitted to Wellington Hospital. New Zealand Medical Journal, 126 (1387).

107^ Bierre, S., Bennett, M. J., & Howden-Chapman, P. (2014). Decent expectations? The use and interpretation of housing standards in tenancy tribunals in New Zealand. New Zealand Universities Law Review, 26(2), 153-185.

108^ http://www.toiteorapublichealth.govt.nz/vdb/document/196

109^ http://www.cph.co.nz/Files/HousingHeatingAirPHPerspective.pdf

110^ Severinsen, C. A., & Howden-Chapman, P. (2014). The problem and politics of temporary housing. Housing, Theory & Society, 31(2), 125-147. 

111^ Pearson, A. L., Telfar Barnard, L., Pearce, J., Kingham, S., & Howden-Chapman, P. (2014). Housing quality and resilience in New Zealand. Building Research & Information, 42(2), 182-190. 

112^ http://www.toiteorapublichealth.govt.nz/vdb/document/196

113^ http://www.stuff.co.nz/national/6450935/Findings-on-disease-rate-a-disgrace

114^ http://www.parliament.nz/resource/en-nz/50DBSCH_SCR57007_1/a7eb89c92d5234548b9212b2bb58a10c5b5a32fa

115^ http://www.parliament.nz/resource/en-nz/50DBSCH_SCR57007_1/a7eb89c92d5234548b9212b2bb58a10c5b5a32fa

116^ Bierre, S., Bennett, M. J., & Howden-Chapman, P. (2014). Decent expectations? The use and interpretation of housing standards in tenancy tribunals in New Zealand. New Zealand Universities Law Review, 26(2), 153-185.

117^ Bennett, J., Birchfield, D., Rissel, Z., Featherstone, L., Cutler-Welsh, M., Moore, T., Keall, M., Baker, M., Chisholm, E., Howden-Chapman, P. (2014). Towards a minimum housing standard for rentals: Results from New Zealand's first warrant of fitness pre-test. Proceedings of the New Zealand Population Health Congress: Connecting Communities, Policy and Science.

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