April 2009
FY 2003 Grantees:
Final Report
Janet O’Keeffe, Dr.P.H., R.N.
Christine O’Keeffe, B.A.
Wayne Anderson, Ph.D.
Angela Greene, M.B.A., M.S.
Prepared for
Cathy Cope
Melissa Hulbert
Centers for Medicare & Medicaid Services
7500 Security Boulevard, Mail Stop S2-14-26
Baltimore, MD 21244-1850
Submitted by
Janet O’Keeffe, Project Director
RTI International
Health, Social, and Economics Research
Research Triangle Park, NC 27709
RTI Project Number 0209359.004.004
RTI International is a trade name of Research Triangle Institute
Contents
Section Page
Report Overview vii
Part 1
Community-Integrated Personal Assistance
Services and Supports Grantees 1
1 Section One. Overview 1
Section Two. Individual CPASS Grant Summaries 9
Part 2
Money Follows the Person Grantees 1
2 Section One. Overview 1
Section Two. Individual MFP Grant Summaries 11
Part 3
Independence Plus Grantees 1
3 Section One. Overview 1
Section Two. Individual IP Grant Summaries 13
Part 4
Quality Assurance and Quality Improvement in Home and Community-Based Services Grantees 1
4 Section One. Overview 1
Section Two. Individual QA/QI Grant Summaries 19
Part 5
Family to Family Health Care Information
and Education Center Grantees 1
5 Section One. Overview 1
Section Two. Individual FTF Grant Summaries 7
Part 6
Feasibility Study and Development Grants 1
6 Overview of Respite for Adults and Children Grants 1
Individual Respite for Adults Grant Summaries 3
Individual Respite for Children Grant Summaries 13
Overview of Community-Based
Treatment Alternatives for Children Grants 27
Individual CTAC Grant Summaries 29
Appendix
Real Choice Systems Change Grants for Community Living
Reports on the FY 2003 Grantees 1
Exhibits
Number Page
Exhibit 1-1. FY 2003 CPASS Grantees 1
Exhibit 1-2. Enduring Improvements of the CPASS Grantees 1
Exhibit 2-1. FY 2003 MFP Grantees 1
Exhibit 2-2. Enduring Systems Improvements of the MFP Grantees 2
Exhibit 3-1. FY 2003 Independence Plus Grantees 1
Exhibit 3-2. Enduring Systems Improvements of the IP Grantees 2
Exhibit 4-1. FY 2003 QA/QI Grantees 1
Exhibit 4-2. Enduring Systems Improvements of the QA/QI Grantees 2
Exhibit 5-1. FY 2003 Family to Family Grantees 1
Exhibit 6-1. FY 2003 RFA Grantees 1
Exhibit 6-2. FY 2003 RFC Grantees 1
Exhibit 6-3. FY 2003 CTAC Grantees 27
Report Overview
In fiscal year (FY) 2001, Congress began funding the Real Choice Systems Change Grants for Community Living program (hereafter Systems Change grants) to help states make enduring improvements in their long-term services and supports system infrastructure. The grants’ purpose, as stated in the invitation to apply, was “to enable children and adults of any age who have a disability or long-term illness to (1) live in the most integrated community setting appropriate to their individual support requirements and preferences; (2) exercise meaningful choices about their living environment, the providers of services they receive, the types of supports they use, and the manner in which services are provided; and (3) obtain quality services in a manner as consistent as possible with their community-living preferences and priorities.”
The Centers for Medicare & Medicaid Services (CMS) awarded the third round of 3-year grants on September 30, 2003. Three categories of grants were awarded: Research and Demonstration grants (48), Feasibility Study and Development grants (16), and Technical Assistance grants (9).
The number and type of Research and Demonstration grants awarded were as follows:
-
8 Community-Integrated Personal Assistance Services and Supports (CPASS) grants
-
9 Money Follows the Person Rebalancing Initiative (MFP) grants
-
12 Independence Plus (IP) grants
-
19 Quality Assurance and Quality Improvement in Home and Community-Based Services (QA/QI) grants
The number and type of Feasibility Study and Development grants awarded were as follows:
-
6 Community-Based Treatment Alternatives for Children (CTAC) grants
-
4 Respite for Adults (RFA) grants
-
6 Respite for Children (RFC) grants
Nine states were awarded Family-to-Family Health Care Information and Education Center (FTF) Technical Assistance grants. The total number of grants awarded was 73.
Virtually all of the FY 2003 Grantees received 1 year or longer no-cost extensions to complete their grants, and they submitted their final reports 90 days after the grants ended, most by December 31, 2007. RTI is preparing a series of final reports to document the outcomes of the Systems Change grants. This report documents the outcomes of the FY 2003 Grantees.
Methods
The principal sources of data for this report were (1) Grantees’ semi-annual, annual, and final reports; (2) Grantee-prepared project reports; (3) topic papers prepared by RTI on activities and accomplishments of the FTF Grantees, increasing options for self-direction under the IP Grantees, improving quality management systems under the QA/QI Grantees, and initiatives of the MFP Grantees; and (4) materials developed under the grants. RTI used these reports and materials to prepare final report summaries for each grant, which were then reviewed by key grant staff. The RTI Project Director conducted in-depth interviews to obtain additional information and to clarify information with each Grantee; the revised summary was sent to grant staff for their final review and approval.
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