The grant was awarded to South Dakota Parent Connection, Inc. (SDPC), which is the State’s only Parent Training and Information Center.
Grant staff produced a brochure with basic information on services and supports for families of CSHCN and professionals who work with families, which is available on the SDPC website.
Grant staff developed workshop curricula for SDPC staff and volunteer Parent Trainers to work with families and health care professionals. The curricula included the following topics: Navigating the Health Care Maze, Patients’/Parents’ Bill of Rights, Health Care Resources in South Dakota, and Child Abuse and Reporting. The workshop handouts are available in English and Spanish, and interpreters are available for Hispanic families.
SDPC staff served on the revisions and reprint committee for the Folder of Information and Life Experiences, a family record-keeping system. Their participation ensured that health care information relevant for families of CSHCN was included in the FILE. The system has 10 folders to help families sort and find papers related to the following: Family Records, Developmental History, Medical, Therapies, Individual Family Service Plan/Individual Education Plan, Letters/Contact Info, Evaluations/Consents, Respite Care/Child Care, Transition, and Legal & Life Planning.
The grant was awarded to Family Voices of Wisconsin (hereafter, Family Voices), a nonprofit organization that is part of the national Family Voices network, which promotes a system of comprehensive health and community supports based on fundamental principles that ensure the health and well-being of CDSHCN and their families. The role of Family Voices is to advocate for the inclusion of these principles in the design, implementation, and delivery of services and supports throughout Wisconsin (see http://www.wfv.org/fv/aboutfvwi.html).
Grant staff paid particular attention to the recruitment of minority parents, and unique versions of the curriculum were developed for Native American families in collaboration with the Great Lakes Intertribal Council, for African American families in collaboration with FACETS, and for Latino families in collaboration with Family Support 360. The curriculum was also translated into Spanish. As of July 2008, more than 500 parents and providers had participated in training offered in 38 locations around the State. An evaluation of the trainings demonstrated very high participant satisfaction.
Report Overview vii
Methods viii
Organization of This Report viii
Enduring Systems Improvements ix
Personal Assistance Services and Supports (PASS) ix
Money Follows the Person Policies (MFP) ix
Self-Directed Services ix
Quality Assurance and Improvement ix
Lessons Learned and Recommendations x
Involving Participants and Stakeholders x
Specific Recommendations xi
Approaches to Bringing about Systems Change xiii
Recommendations for Changes in State and Federal Policy xiii
Money Follows the Person and Transition Policy xiii
Self-Direction xiv
Quality Assurance and Improvement xiv
Increasing Access to HCBS and Supporting Community Living xv
Conclusion xvi
Part 1
Community-Integrated Personal Assistance
Services and Supports Grantees 1
1 Section One. Overview 1
Enduring Systems Improvements 1
New Policies to Enable and Support PASS and Self-Directed PASS 2
Increased Options for Self-Directed PASS 2
Increased Access to PASS 3
Improved PASS Quality for Persons with Serious Mental Illness 3
New Methods to Help Participants Recruit and Retain Workers 4
Systems Improvements Beyond the Grant Period 5
Continuing Challenges to Systems Improvements 5
Funding Issues 5
Policy Challenges 5
Workforce Issues 6
Lessons Learned and Recommendations 6
Lessons Learned 6
Involving Stakeholders 6
Self-Direction Programs 6
Recommendations 7
Systems Change 7
Workforce Recruitment, Retention, Education, and Training 7
Self-Direction Programs: State Policy 7
CMS Policy 8
Section Two. Individual CPASS Grant Summaries 9
Arizona 11
Primary Purpose and Major Goals 11
Role of Key Partners 11
Major Accomplishments and Outcomes 11
Enduring Systems Change 12
Key Challenges 12
Continuing Challenges 12
Lessons Learned and Recommendations 13
Key Products 13
Connecticut 15
Primary Purpose and Major Goals 15
Role of Key Partners 15
Major Accomplishments and Outcomes 15
Enduring Systems Change 16
Key Challenges 16
Continuing Challenges 17
Lessons Learned and Recommendations 17
Key Products 17
Louisiana 19
Primary Purpose and Major Goals 19
Role of Key Participating Partners 19
Major Accomplishments and Outcomes 19
Enduring Systems Change 20
Key Challenges 20
Continuing Challenges 20
Lessons Learned and Recommendations 21
Key Products 21
Massachusetts 23
Primary Purpose and Major Goals 23
Role of Key Partners 23
Major Accomplishments and Outcomes 23
Enduring Systems Change 24
Key Challenges 25
Continuing Challenges 25
Lessons Learned and Recommendations 25
Create additional materials to educate participants and families and empower them to assist themselves and translate these materials into multiple languages. 26
Change state rules to allow more flexibility in funding allocations for budgets, because budgets set at the start of a fiscal year may not appropriately address participants’ changing needs in a specific catchment area. 26
Allow for more flexible funding categories to better accommodate individual needs. 26
Minimize the current delay between eligibility determination and start of services. 26
Provide more emergency funding that agencies can use for participants in crisis. 26
Key Products 26
How Can a Community Advisor Help Me? A Guidebook for Using Community Advisors to Help You Find the Choices and Supports You Want 26
First Step Consumer Handbook. How to Get Organized to Find the Help You Need: A Bilingual Guide for Newly Arrived Latino Individuals and Families to the City of Holyoke, Massachusetts 26
Tools for Tomorrow in English, Spanish, Creole, Russian, and Portuguese 26
Nebraska 29
Primary Purpose and Major Goals 29
Role of Key Partners 29
Major Accomplishments and Outcomes 29
Enduring Systems Change 30
Key Challenges 30
Continuing Challenges 30
Lessons Learned and Recommendations 30
Key Products 30
Oregon 31
Primary Purpose and Major Goals 31
Role of Key Partners 31
Major Accomplishments and Outcomes 31
Enduring Systems Change 32
Key Challenges 32
Continuing Challenges 33
Lessons Learned and Recommendations 33
Key Products 33
Texas 35
Primary Purpose and Major Goals 35
Role of Key Partners 35
Major Accomplishments and Outcomes 35
Enduring Systems Change 36
Key Challenges 36
Continuing Challenges 37
Lessons Learned and Recommendations 37
Key Products 37
Virginia 39
Primary Purpose and Major Goals 39
Role of Key Partners 39
Major Accomplishments and Outcomes 39
Key Challenges 40
Continuing Challenges 41
Lessons Learned and Recommendations 41
Key Products 42
Part 2
Money Follows the Person Grantees 1
2 Section One. Overview 1
Enduring Systems Improvements 2
New Assessment and Budgeting Process for Individualized Portable Budgets 2
New MFP Funding Mechanism 2
New Infrastructure/Funding to Support Transition Services and MFP Policy 3
Training to Support Transitions and MFP Policy 3
Increased Access to and Funding for HCBS 4
Increased Access to and Funding for Supported Housing 4
New Process to Involve Consumers in Policy Development 4
Continuing Challenges to Transition and Balancing 5
Lack of Funding for HCBS 5
Lack of Affordable and Accessible Housing 5
Medicaid and State Policies and Practices 6
Lessons Learned and Recommendations 6
Lessons Learned 7
Recommendations 7
Program Implementation 7
Involving Stakeholders 7
State Policy 8
State Medicaid Policy 8
Federal Policy 9
CMS 9
Section Two. Individual MFP Grant Summaries 11
California 13
Primary Purpose and Major Goals 13
Role of Key Partners 13
Major Accomplishments and Outcomes 13
Enduring Systems Change 14
Key Challenges 14
Continuing Challenges 15
Lessons Learned and Recommendations 15
Key Products 16
Idaho 17
Primary Purpose and Major Goals 17
Role of Key Participating Partners 17
Major Accomplishments and Outcomes 17
Key Challenges 18
Continuing Challenges 18
Lessons Learned and Recommendations 18
Key Products 18
Maine 19
Primary Purpose and Major Goals 19
Role of Key Partners 19
Major Accomplishments and Outcomes 19
Enduring Systems Change 20
Key Challenges 20
Continuing Challenges 21
Lessons Learned and Recommendations 21
Key Products 21
Michigan 23
Primary Purpose and Major Goals 23
Role of Key Partners 23
Major Accomplishments and Outcomes 24
Enduring Systems Change 25
Key Challenges 25
Continuing Challenges 26
Lessons Learned and Recommendations 26
Key Products 26
Nevada 29
Primary Purpose and Major Goals 29
Role of Key Partners 29
Major Accomplishments and Outcomes 29
Enduring Systems Change 30
Key Challenges 30
Continuing Challenges 30
Lessons Learned and Recommendations 31
Key Products 31
Pennsylvania 33
Primary Purpose and Major Goals 33
Role of Key Partners 33
Major Accomplishments and Outcomes 33
Enduring Systems Change 33
Key Challenges 34
Continuing Challenges 34
Lessons Learned and Recommendations 34
Key Products 35
Texas 37
Primary Purpose and Major Goals 37
Role of Key Participating Partners 37
Major Accomplishments and Outcomes 37
Enduring Systems Change 37
Key Challenges 38
Continuing Challenges 38
Lessons Learned and Recommendations 38
Key Products 39
Washington 41
Primary Purpose and Major Goals 41
Role of Key Partners 41
Major Accomplishments and Outcomes 41
Enduring Systems Change 42
Key Challenges 42
Continuing Challenges 42
Lessons Learned and Recommendations 43
Key Products 43
Wisconsin 45
Primary Purpose and Major Goals 45
Role of Key Partners 45
Major Accomplishments and Outcomes 45
Enduring Systems Change 46
Key Challenges 46
Continuing Challenges 47
Lessons Learned and Recommendations 47
Key Products 47
Part 3
Independence Plus Grantees 1
3 Section One. Overview 1
Enduring Systems Improvements 2
New Infrastructure for Self-Direction Programs 2
Financial Management and Counseling/Support Broker Services 2
Individual Budget Methodologies 3
Backup Plans and Critical Incident Management 4
Other Infrastructure 6
New IP Option in Waiver or State Plan Program(s) 6
Continuing Challenges to Systems Improvements 8
Lessons Learned and Recommendations 9
Lessons Learned 9
Recommendations 9
Involving Participants and Other Stakeholders 9
Implementing Self-Direction Programs 11
State and Federal Policy 11
CMS 12
Section Two. Individual IP Grant Summaries 13
Colorado 15
Primary Purpose and Major Goals 15
Role of Key Partners 15
Major Accomplishments and Outcomes 15
Enduring Systems Change 16
Key Challenges 16
Continuing Challenges 16
Lessons Learned and Recommendations 16
Key Products 17
Connecticut 19
Primary Purpose and Major Goals 19
Role of Key Partners 19
Major Accomplishments and Outcomes 19
Enduring Systems Change 20
Key Challenges 20
Continuing Challenges 21
Lessons Learned and Recommendations 21
Key Products 21
Florida 23
Primary Purpose and Major Goals 23
Role of Key Partners 23
Major Accomplishments and Outcomes 23
Enduring Systems Change 24
Key Challenges 24
difficulty securing multi-agency buy-in to the project’s vision and goals; 25
lack of Medicaid Buy-in legislation in Florida; 25
lack of sufficient interagency collaboration; and 25
lack of high-quality benefits planning assistance for individuals with significant disabilities who can earn moderate incomes but need Medicaid coverage. 25
Continuing Challenges 25
Lessons Learned and Recommendations 25
Key Products 26
Georgia 27
Primary Purpose and Major Goals 27
Role of Key Partners 27
Major Accomplishments and Outcomes 27
Enduring Systems Change 28
Key Challenges 29
Continuing Challenges 29
Lessons Learned and Recommendations 29
Key Products 30
Idaho 31
Primary Purpose and Major Goals 31
Role of Key Partners 31
Major Accomplishments and Outcomes 31
Enduring Systems Change 32
Key Challenges 33
Continuing Challenges 33
Lessons Learned and Recommendations 34
Key Products 34
Louisiana 35
Primary Purpose and Major Goals 35
Role of Key Partners 35
Major Accomplishments and Outcomes 35
Enduring Systems Change 36
Key Challenges 37
Continuing Challenges 37
Lessons Learned and Recommendations 38
Key Products 38
Maine 39
Primary Purpose and Major Goals 39
Role of Key Partners 39
Major Accomplishments and Outcomes 39
Enduring Systems Change 41
Key Challenges 41
Continuing Challenges 41
Lessons Learned and Recommendations 41
Key Products 42
Massachusetts 43
Primary Purpose and Major Goals 43
Role of Key Partners 43
Major Accomplishments and Outcomes 43
Enduring Systems Change 44
Key Challenges 44
Continuing Challenges 44
Lessons Learned and Recommendations 45
Key Products 45
Michigan 47
Primary Purpose and Major Goals 47
Role of Key Partners 47
Major Accomplishments and Outcomes 48
Enduring Systems Change 49
Key Challenges 49
Continuing Challenges 50
Lessons Learned and Recommendations 50
Key Products 50
Missouri 53
Primary Purpose and Major Goals 53
Role of Key Partners 53
Major Accomplishments and Outcomes 53
Enduring Systems Change 54
Key Challenges 55
Continuing Challenges 55
Lessons Learned and Recommendations 55
Key Products 55
Montana 57
Primary Purpose and Major Goals 57
Role of Key Partners 57
Major Accomplishments and Outcomes 57
Enduring Systems Change 58
Key Challenges 58
Continuing Challenges 59
Lessons Learned and Recommendations 59
Key Products 59
Ohio 61
Primary Purpose and Major Goals 61
Role of Key Partners 61
Major Accomplishments and Outcomes 61
Enduring Systems Change 62
Key Challenges 62
Continuing Challenges 63
Lessons Learned and Recommendations 63
Key Products 63
Part 4
Quality Assurance and Quality Improvement in Home and Community-Based Services Grantees 1
4 Section One. Overview 1
Enduring Systems Improvements 1
New/Improved Methods to Measure Participant Satisfaction and Other Outcomes 3
New/Improved Provider Standards or Monitoring Tools 5
New/Improved System to Collect, Analyze, and Report Quality Data 5
New/Improved Process or System to Help Ensure Continuous Quality Improvement in Services 6
New/Improved Critical Incident Reporting and/or Remediation Process or System 8
New Methods to Involve Participants in QA/QI Processes and Policy Development 9
Continuing Challenges 10
Lack of Funding 10
Organizational and Administrative Issues 10
Information Technology and Data Collection Issues 11
Policy and Practice Issues 11
Stakeholder Involvement 11
Lessons Learned and Recommendations 12
Lessons Learned 12
Implementing New Participant Surveys 12
Grant Implementation 12
Recommendations 13
Using Peers in Participant Surveys 13
Involving Stakeholders 13
Involving Participants 14
Information Technology and Data Management Systems 14
Quality Management Systems 15
State Policy 15
CMS 16
Section Two. Individual QA/QI Grant Summaries 19
California 21
Primary Purpose and Major Goals 21
Role of Key Partners 21
Major Accomplishments and Outcomes 22
Enduring Systems Change 22
Key Challenges 23
Continuing Challenges 23
Lessons Learned and Recommendations 24
Key Products 24
Colorado 25
Primary Purpose and Major Goals 25
Role of Key Partners 25
Major Accomplishments and Outcomes 25
Enduring Systems Change 26
Key Challenges 27
Continuing Challenges 27
Lessons Learned and Recommendations 27
Key Products 28
Choice Grant Technologies Project Revised Requirements provides a listing of high-level requirements that were used to fully describe all of the requirements of the web-based applications. 28
DDD Web Applications Development (Choices Grant): System Design Document Version 1.3 describes the configuration and functionality of the web-based applications funded under the grant. This document is intended for use by the designers of the system and those who may be required to maintain it. 28
DDD Web Applications Development Project Phase-I (Choices Grant): Software Requirements Specifications Version 2.4 describes the software requirements that were captured through a detailed study of the business work flow and functions for the web-based applications funded by the grant. This document is intended for use by the designers of the system and those who may be required to maintain it. 28
Connecticut 29
Primary Purpose and Major Goals 29
Role of Key Partners 29
Major Accomplishments and Outcomes 29
Enduring Systems Change 30
Key Challenges 31
Continuing Challenges 31
Lessons Learned and Recommendations 31
Key Products 32
Delaware 33
Primary Purpose and Major Goals 33
Role of Key Partners 33
Major Accomplishments and Outcomes 33
Enduring Systems Change 34
Key Challenges 35
Continuing Challenges 35
Lessons Learned and Recommendations 35
Key Products 35
Georgia 37
Primary Purpose and Major Goals 37
Role of Key Partners 37
Major Accomplishments and Outcomes 37
Enduring Systems Change 38
Key Challenges 38
Continuing Challenges 39
Lessons Learned and Recommendations 39
Key Products 39
Indiana 41
Primary Purpose and Major Goals 41
Role of Key Partners 41
Major Accomplishments and Outcomes 41
Enduring Systems Change 42
Key Challenges 43
Grant staff needed to revise work plan timelines many times and had problems recruiting staff for new QA/QI roles in the Division of Aging. 44
Many of the operational processes and procedures for the complaints, incident reporting, and mortality review systems that were based on the models that best served the population with developmental disabilities (the Bureau’s major focus) needed to be reviewed and tailored to the population served by the Division of Aging. 44
Delays in executing contracts for the incident reporting system caused delays in compiling and reporting aggregate data. 44
Continuing Challenges 44
Lessons Learned and Recommendations 44
Key Products 45
Maine 47
Primary Purpose and Major Goals 47
Role of Key Partners 47
Major Accomplishments and Outcomes 47
Enduring Systems Change 48
Key Challenges 49
Continuing Challenges 49
Lessons Learned and Recommendations 49
Key Products 49
Minnesota 51
Primary Purpose and Major Goals 51
Role of Key Partners 51
Major Accomplishments and Outcomes 52
Enduring Systems Change 52
Key Challenges 53
Continuing Challenges 53
Lessons Learned and Recommendations 53
Key Products 54
Missouri 55
Primary Purpose and Major Goals 55
Role of Key Partners 55
Major Accomplishments and Outcomes 55
Enduring Systems Change 56
Key Challenges 56
Continuing Challenges 56
Lessons Learned and Recommendations 56
One of the drawbacks of administering the survey by telephone was the inability to observe the client and anyone else in the home, making it difficult to know whether a client was being “coached” by a family member or caregiver. 56
The broad range of questions in the survey tool proved unwieldy for individuals who receive only a single service, like the Program of All-inclusive Care for the Elderly or home-delivered meals. Ideally, a shorter survey would be used for programs that provide only a few services. 56
The staff at some Residential Care Facilities were reluctant to let surveyors speak to the residents for various reasons, including concerns about the effect of survey results on the facility and concerns about client confidentiality. 57
Locating the clients’ guardians was time consuming, and obtaining permission for their participation in the survey was often difficult. 57
Key Products 57
New York 59
Primary Purpose and Major Goals 59
Role of Key Partners 59
Major Accomplishments and Outcomes 59
Enduring Systems Change 60
The TBI waiver program implemented a statewide across-the-board rate increase for providers and a NYC Metropolitan Area rate differential for select services. 60
Grant funds were used to develop four service-specific training programs and related materials for selected services provided by the TBI and NHTD waivers. The training, which will ensure consistency in provider knowledge of services with an emphasis on person-centered care, is to be used statewide to meet provider staff training requirements. The Department has begun to use the new curricula in the NHTD program. 60
Waiver program staff are developing user-friendly materials for participants that will explain waiver services, address waiver participants’ rights and responsibilities, offer guidance on how to effectively work with service providers, and furnish tools and resources to help participants successfully navigate the HCBS system. 60
Key Challenges 60
Continuing Challenges 61
Lessons Learned and Recommendations 61
Key Products 62
North Carolina 63
Primary Purpose and Major Goals 63
Role of Key Partners 63
Major Accomplishments and Outcomes 63
Enduring Systems Change 64
Key Challenges 65
Obtaining consent from potential interviewees—in particular, those who had guardians—required a great deal of time. 65
Project participants, particularly those who moved into their own apartment, often moved again or had their phone disconnected. Staff asked case managers for contact details, but some were themselves unaware that an individual had moved and others did not return phone calls. 65
Scheduling interviews for demonstration participants who had moved to group homes or residential care facilities was very time consuming. In some instances, interviewers would arrive at the scheduled time and find that the interviewee was out for the day. 66
Continuing Challenges 66
Lessons Learned and Recommendations 66
Key Products 66
Ohio 69
Primary Purpose and Major Goals 69
Role of Key Partners 69
Major Accomplishments and Outcomes 69
Enduring Systems Change 70
Key Challenges 70
Continuing Challenges 71
Lessons Learned and Recommendations 71
Key Products 71
Oregon 73
Primary Purpose and Major Goals 73
Role of Key Partners 73
Major Accomplishments and Outcomes 73
Enduring Systems Change 74
Key Challenges 74
Continuing Challenges 75
Lessons Learned and Recommendations 75
Key Products 75
Pennsylvania 77
Primary Purpose and Major Goals 77
Role of Key Partners 77
Major Accomplishments and Outcomes 77
Enduring Systems Change 78
Key Challenges 79
Continuing Challenges 79
Lessons Learned and Recommendations 79
Key Products 79
South Carolina 81
Primary Purpose and Major Goals 81
Role of Key Partners 81
Major Accomplishments and Outcomes 81
Enduring Systems Change 82
Key Challenges 82
Continuing Challenges 82
Lessons Learned and Recommendations 83
Key Products 83
Tennessee 85
Primary Purpose and Major Goals 85
Role of Key Partners 85
Major Accomplishments and Outcomes 85
Enduring Systems Change 86
Prior to 2004, DMRS’ definitions of abuse, neglect, and exploitation were extremely complex, making it difficult to understand what and when to report. The DMRS investigative Protection from Harm Unit held many meetings with all stakeholders to establish definitions of abuse, neglect, and exploitation that would be more easily understood. Although the new definitions are clear and concise, if in doubt, program participants can report questionable incidents to DMRS staff, who will determine whether the definitions have been met. 86
The Protection from Harm Unit made changes in operational procedures to ensure that participants’ legal representative and/or designated family member are informed about allegations of abuse, neglect, or exploitation, and understand the investigative process. 86
Grant staff developed a new communication system for reporting incidents. Formerly, information was furnished only in aggregated form, which did not provide all of the information needed to enable Adult Protective Services and the Protection from Harm Unit to follow up; the new system requires that reports provide more detailed information about each incident. 86
Key Challenges 86
Continuing Challenges 87
Lessons Learned and Recommendations 87
Key Products 87
Texas 89
Primary Purpose and Major Goals 89
Role of Key Participating Partners 89
Major Accomplishments and Outcomes 89
Enduring Systems Change 90
Key Challenges 91
Continuing Challenges 91
Lessons Learned and Recommendations 91
Key Products 91
West Virginia 93
Primary Purpose and Major Goals 93
Role of Key Partners 93
Major Accomplishments and Outcomes 93
Enduring Systems Change 95
Key Challenges 95
Continuing Challenges 96
Lessons Learned and Recommendations 96
Key Products 96
Wisconsin 97
Primary Purpose and Major Goals 97
Role of Key Partners 97
Major Accomplishments and Outcomes 97
Enduring Systems Change 98
Grant staff developed a preliminary design for an integrated QM system that has given HCBS professionals a shared vocabulary for discussing and thinking about QM processes. The final report has guided the development of contract requirements and certification standards for the expanding managed care system, which will help to ensure that local agencies fulfill QM requirements. 98
Grant staff created a comprehensive quality assurance plan for Wisconsin’s Functional Screen system, which is used to determine eligibility for long-term services and supports programs, for rate setting, and other purposes. This plan includes activities to enable the DHFS to determine whether the screen is working as intended, to correct deficiencies, and to continually improve it. Responsibility for tasks has been assigned to existing staff, and additional funding has been committed for two new positions to carry out the Functional Screen QM system. 98
Grant staff developed a program of QM training and technical assistance for local care managers, agency managers, and QM staff. The training was delivered to 95 participants statewide in June 2007 through a webcast and has received more viewings since then. The webcast includes most of the basic concepts and material developed during the grant project, and will continue to be used during the State’s expansion of managed care for home and community-based long-term services and supports programs. 98
Key Challenges 99
Continuing Challenges 99
Lessons Learned and Recommendations 99
Key Products 100
Part 5
Family to Family Health Care Information
and Education Center Grantees 1
5 Section One. Overview 1
Results 2
Providing Information and Referral Services 3
Developing Informational Materials 3
Providing Education and Training 3
Improving Programs and Informing Policies 4
Lessons Learned 4
Recommendations 5
Policy Issues 5
Services and Supports 6
Section Two. Individual FTF Grant Summaries 7
Alaska 9
Primary Purpose 9
Results 9
Lessons Learned and Recommendations 10
Products 10
Colorado 11
Primary Purpose 11
Lessons Learned and Recommendations 11
Products 12
Indiana 13
Primary Purpose 13
Results 13
Lessons Learned and Recommendations 14
Products 14
Maryland 15
Primary Purpose 15
Results 15
Lessons Learned and Recommendations 16
Products 16
Finding Community Resources, which addresses the specific needs of the participants and matches those needs to local resources. 17
Choosing a Health Care Plan, which offers practical step-by-step information to help families of children with disabilities and special health care needs sort through their health care plan options. 17
Getting Needed Services from Your Managed Care Plan, which explains how managed care health plans work, and takes participants through the steps of referrals, authorizations, and other service barriers. 17
Appealing Insurance Denials covers the appeal process available to families and teaches strategies that can make appeals successful. 17
Montana 19
Primary Purpose 19
Results 19
Lessons Learned and Recommendations 20
Products 20
Nevada 21
Primary Purpose 21
Results 21
Lessons Learned and Recommendations 22
Products 22
New Jersey 23
Primary Purpose 23
Results 23
Lessons Learned and Recommendations 24
Products 24
South Dakota 27
Primary Purpose 27
Results 27
Lessons Learned and Recommendations 28
Products 28
Wisconsin 29
Primary Purpose 29
Results 29
Lessons Learned and Recommendations 30
Products 31
Part 6
Feasibility Study and Development Grants 1
6 Overview of Respite for Adults and Children Grants 1
Individual Respite for Adults Grant Summaries 3
California 5
Primary Purpose 5
Results 5
Lessons Learned and Recommendations 5
Products 6
New York 7
Primary Purpose 7
Results 7
Lessons Learned and Recommendations 7
Products 7
Ohio 9
Primary Purpose 9
Results 9
Lessons Learned and Recommendations 9
Products 10
Rhode Island 11
Primary Purpose 11
Results 11
Lessons Learned and Recommendations 11
Products 11
Individual Respite for Children Grant Summaries 13
Alabama 15
Primary Purpose 15
Results 15
Lessons Learned and Recommendations 15
Products 15
Arkansas 17
Primary Purpose 17
Results 17
Lessons Learned and Recommendations 18
Products 18
Maryland 19
Primary Purpose 19
Results 19
Lessons Learned and Recommendations 19
Products 20
Michigan 21
Primary Purpose 21
Results 21
Lessons Learned and Recommendations 21
Products 21
Oregon 23
Primary Purpose 23
Results 23
Lessons Learned and Recommendations 23
Products 24
Rhode Island 25
Primary Purpose 25
Results 25
Lessons Learned and Recommendations 26
Products 26
Overview of Community-Based
Treatment Alternatives for Children Grants 27
Individual CTAC Grant Summaries 29
Illinois 31
Primary Purpose 31
Results 31
Recommendation 31
Products 31
Maryland 33
Primary Purpose 33
Results 33
Recommendation 33
Products 33
Massachusetts 35
Primary Purpose 35
Results 35
Lessons Learned and Recommendations 35
Products 35
Mississippi 37
Primary Purpose 37
Results 37
Recommendation 37
Products 37
Missouri 39
Primary Purpose 39
Results 39
Lessons Learned and Recommendations 39
Products 39
Texas 40
Primary Purpose 40
Results 40
Lessons Learned and Recommendations 40
Products 40
Appendix
Real Choice Systems Change Grants for Community Living
Reports on the FY 2003 Grantees 1
I. Formative Research Reports 1
Real Choice Systems Change Grant Program: Third Year Report 1
Real Choice Systems Change Grant Program: Fourth Year Report 1
II. Topic Papers 1
Real Choice Systems Change Grant Program: Activities and Accomplishments of the Family to Family Health Care Information and Education Center Grantees 1
Real Choice Systems Change Grant Program: Money Follows the Person Initiatives of the Systems Change Grantees 2
Real Choice Systems Change Grant Program: Increasing Options for Self-Directed Services: Initiatives of the FY 2003 Independence Plus Grantees 2
Real Choice Systems Change Grant Program: Improving Quality Assurance/Quality Improvement Systems for Home and Community-Based Services: Experience of the FY 2003 and FY 2004 Grantees 2
III. Summaries 2
Summaries of the Systems Change Grants for Community Living—FY 2003 Grantees 2