Day 1 Digital Dreams ndis
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 13.00-14.45 Day 1 - Digital Dreams - NDIS
HUY NGUYEN: Good afternoon, everyone. If you would like to take your seats, we will get started. Thank you for coming to this afternoon's session. To remind you, the session you have landed in, this is the Digital Dreams session, highlighting consumer and market driven visions for the future. Our speakers will have the opportunity to present to you, creative ways that technology can enhance their lives. This session will be quite interactive with our panel, who I shall introduce shortly. Participants will describe their dreams for technological innovation, that will improve their lives, and our panel, if you could introduce yourselves. PETER FORD: We at (inaudible) using electrical signals inside a muscle, even if the muscle is dysfunctional, it works when most switches do not and allows someone to form a neural loop with a system, and we say they 'become a switch'. It endures through quite (inaudible) levels of disability, including motor neuron disease. ALAN NOBLE: Hello, I am Alan Noble. You probably know Google is a large multinational with 60,000 employees. Google has 1200 people working in Sydney and I am responsible for 600 engineers based in Sydney. You heard about Google innovations like self-driving cars, but lots of other things, making the web more accessible, through browsing technology, that is work being done at Google in addition to other cool products and services. HUY NGUYEN: How this will work, our presenters will come up, they will be Emma Green, Bailey, Kate Wood and Maud Beissel, Beryl Dyer, Susan Proctor and Alison Oakley and Joseph Reynolds. They will present to you for about 10 minutes and we will have a response from our technology panel with their ideas. If time permits we will get questions and comments from the audience. My name is Huy Nguyen and I run Enable Development. I would like to invite Emma Green onto the stage. Emma is a young adult with a passion for life, and travel, she knows technology is her window to the world, Emma has severe dystonic cerebral palsy and cannot use a natural voice to speak and has no use of her hands. She is unable to walk and users a motorised wheelchair and I gaze technology to access (inaudible) sent text messages, read, access social media, paint, draw and make music. This same technology can be used to open and close windows, turn on lights and air-conditioning, and manage tasks around the home. She is learning to use her wheelchair with touch technology – Emma, over to you. EMMA GREEN: Hello everyone, I hope you have been enjoying the conference, it is my pleasure to introduce this session and why technology is important to me. Firstly, I would like to share a poem I wrote a few years ago. It was how to (inaudible) without technology, stuck in a corner, calling you with my eyes, you cannot hear me, I (inaudible) my voice, you can't hear what I said, so I sit and wait. Stuck in a corner I cannot (inaudible) when I don't use my voice, when I (inaudible) I want some control, I want to make choices, listen to me. When I speak without my voice, don't leave me stuck in a corner, I cannot get out of. Now I have the right technology, my life is very different, I feel very empowered. I am 20 years old and I have dystonic cerebral palsy but I am more than my diagnosis. I am a young woman with a passion for life, travel, jokes, parties, conferences, advocacy. What does technology mean to me? It means I can be creative, for example, (inaudible) it is my pleasure to talk about why technology is important to me. I would like to share a poem I wrote a few years ago about (inaudible) technology. Stuck in a corner, calling you with my eyes, you cannot hear me, I use my voice, (inaudible), when I do not use my voice. When I look at you I have something to say, I want some control, I want to make choices. Listen to me, when I speak without my voice, don't leave me stuck in a corner. Now I have the right technology, my life is very different, I feel very empowered. I am 20 years old, I have dystonic cerebral palsy, but I am more than my diagnosis, I am a young woman with a passion for life, travel, jokes, advocacy, and fine. What does technology mean to me? Technology means I can be creative, I can use my eyes to create unique pieces of art, and create music. Technology means I can be involved with my family, I can be part of discussions and, as you can see, I can play games with my young cousin using my eyes to control my game. Technology means I can plan for the future, research things that interest me, and overseas trips. Make enquiries about accessibility, and plan future adventures. With touch drive technology, I am learning to drive my chair with my fingers and (inaudible) on the touchpad. Technology lets me further my passion for travel by (inaudible) Dubai to shopping for Doc Martens in London, (inaudible) the travelling on the underground in Europe – technology allows me to explore. Technology means I can spread the word about augmented and alternative communication. Using eye gaze technology I can (inaudible) in Australia and tell high school students about how I communicate. Technology allows me to meet amazing people and stay connected. I can present at conferences here and overseas and talk to university students about augmented and alternative communication. I can be involved in presentations about home modifications. Technology means I can choose the music that I want to listen to, and the movies that I want to watch. Technology means that in future I will be able to control my environment using my (inaudible), open and close doors, and give visitors access to my home. Most importantly, technology gives me a voice. Without a voice I have no say in how things happen in my life and around me. Technology allows me to say what I want to say, give my opinion and tell people that (inaudible) a voice makes me safe. Personally, I feel that anything that contributes to me living and empowered, and independent life is the most important thing that technology can give me. There are still some things I would like to see developed and made available in the future. I'm excited about Doctor Jordan thought controlled wheelchair, and hope I can try it out soon. I am also excited that more computer and eye gaze related technology is being developed and is constantly improving. For example, there is a computer that can type words as you think them. If I get my hands on this, I could be able to communicate even faster. Something I find challenging right now is shopping because I can't hand over cash or use an EFTPOS card when I shop. Perhaps a credit card could be developed that I could wear like a bracelet. I would be handling my money and making my own purchases - something I really looking forward to. Before I finish, I would like to share a quote from an IBM training manual from 1991, which relates very much to this. "For people with disabilities, technology makes (inaudible) with people with disabilities. Technology makes things possible." Thank you so much for listening. I would now like to hand back to our chairperson, Mr Huy Nguyen. (Applause) HUY NGUYEN: Thank you so much, Emma, that was fantastic. I think you're one of the few people who can pronounce my name right. Nonetheless, we will have to get some feedback from the panel, considering all the technology presented. So, who would like to start? SPEAKER: That was fantastic. It is fantastic to see the power of technology to really assist and make a difference. That thought controlled wheelchair looks pretty awesome, too, and I recently had a talk about that. I'm hoping that is something that can be readily available in the not too distant future. I will just comment on a couple of things. In terms of one of them is that request was to be more independent shopping, and I think, actually, this is something that can be made a reality in a very, very near term. Certainly, the payment side of that is something that we should be able to simplify. I guess, I am thinking of a kind of simplified version of PayWave. Perhaps it could be at a slightly longer range than today. I'm sure that could be readily achieved. I think, in general, there is a lot of technologies that are being developed for people without disabilities that will just naturally be beneficial to everyone. I have not heard that quote from IBM before but I think it is very true that technology can help everyone, but in some cases, it can make a world of difference, economic things possible. I am a big believer in that. This morning, Doctor Geoff Cole got up and talk about how Google is soft running cars had done 3,000,000 miles in California. I personally excited about that is technology that can really help everyone in society, including people like me who would not like to be driving. I will hand over and we can circle back. SPEAKER: Emma, one of the things that came out in your presentation, congratulations on your presentation... We look at the person, not the disability. We saw them (inaudible) was expressing as a person. One of the exciting things coming out of this conference is not how good technology is, or what technology does, all the great things that we love messing with as techies, but it allows each person to declare who they are, regardless of disability they say, "I am here and I matter. You're going to hear the person inside". It is a fact that we can humanise technology and bring out the person and personality inside, that is the most vital thing. Earlier, if you saw me using a phone, I was taking notes. The most important thing is being independent and being empowered. If we can develop technology to make it a servant of the person, no matter what their ability or disability is, this conference will be a big success. Whether it is about an issue on how she pays her groceries or how she wrote poetry, all those things, each of those things are empowering Emma, the person. I think the best thing this technology can do at gatherings like this is not work on the technology on outside, but empower the human on the inside. (Applause) ALAN NOBLE: I totally agree with everything Peter said. I love the thing that, Emma, technology has allowed you to be an artist and let your creativity come out. I think that is fantastic. My daughter is also an artist, by the way, and she loves caricaturing. I think the ability of technology, as Peter said, you can participate more fully, whether it is with your family, planning trips, I think that is fantastic. I am particularly interested in the power of technology is also give a better voice, and able those of us who struggle to communicate. It is not an area I am particularly close to, and I don't profess to be an expert, but I think there is an important opportunity for technology to unlock or augment our ability to communicate with others. I think that is an area where we can and will see some improvements in the not too distant future. PETER FORD: Also, I know we are not meant to talk about branding, one of the things we push for, Alan was talking about the great things that Google does, one of the things we work on is that technology becomes second nature. We now feel that technology has come far enough onto the interface, we are all becoming bionic. We all know people with pacemakers and neuro modulation. The technology inside a human and on a human, so that the signals and data that each of us generates can be interpreted as controls for that technology, so you become more and more swiftly integrated with technology. We already have the technology here and now. When Emma goes into the supermarket, that supermarket should know that she is there and she is Emma, that she has certain buying habits, and when she is ready to buy. It is a seamless integration as each of us as people, see an alliance with technology instead of competition. The alliance will continue to enhance all of us, regardless of disability. HUY NGUYEN: Bailey was born in Silicon Valley and lives with a weird memory and concentration issues. He loves Minecraft, (inaudible) and Clash of the Clans. He recently (inaudible) into Minecraft. Bailey was assisted to come back to earth which reminds him to (inaudible), and get out of the shower, among other things like hitting two clarinet lessons, and getting off the bus before ending up in (inaudible) or Pluto. No one understands his brain, it can take so long for (inaudible) parts to get out of his head. His brother lives with Down Syndrome, (inaudible) which meant their mum got involved in the world of disability. Bailey is interested in sharing ideas about apps (inaudible) and return to a planet when needed – thank you, Bailey, we would love to hear more from you. BAILEY: I am here to share ideas about technology and how to make it better. I am 13, I go to school in Adelaide, play soccer, basketball and clarinet. I also have a ADHD (inaudible), and I got sick a lot. I will admit, I had trouble writing a speech because (inaudible) affects my thinking and processing and getting words down on paper. I have a brother who is 15, one of the volunteers here, probably the only teenager with a dog and Down Syndrome. My mum is watching, so I had to tell the truth. I am here so you guys can find out what kind of technology has changed my life and would help other people live their lives. What does technology help me with? I have been able to use my iPhone to set reminders for events, telling me which stop to get off the bus, and to communicate with my mum. One day, I was too slow in the morning and Mum drove away without me. I called her and she snapped at me to catch a bus. I had never caught the bus in the morning, only the afternoon, but I was able to use an app to get off the bus. Unfortunately, I got off at the wrong stop with a heavy schoolbag and my mum was not sympathetic, but she was proud I did it on my own. Mum said she was refreshing her Find My Friend app every 30 seconds to make sure I had not been taken away. My mum was able to text me to meet her at lunch to pick up my clarinet. I was able to go to band practice even though I forgot my clarinet. I also use my smart phone and my Find My, friend app to fight (inaudible) or my mum. It was set up by Cheryl to remind me of a lot of things but sometimes I forget to put in a reminder and everything falls apart. Last week I forgot to go on a music excursion because I didn't put in a reminder. I am a teenager now, so Mum says I am supposed to ignore her. I would now like to talk about what my perfect app would look like. It would help meet my needs or solve the following problems, catching the right bus at the right time and getting off at the right stop, getting homework done, getting enough sleep, getting organised, finding things I lost, managing my time so I have time for work and fun. Here are some of the ideas, a study search engine with only approved and verified site so you can search very specifically. It would also have a setting where you can search for project templates to tell you what to put where, and the format to present it in. Another one is a diary and calendar with due dates, (inaudible) efficiency and how fast you are completing it, and it shows you which assessments will take the longest, which you should work on, and went. For example, if it was you tomorrow, the app would tell you how much you need to do on each project each night, like Google Maps told you how long it would take you to get somewhere taking into account the route, speed and current traffic conditions. It could know from my sleep pattern whether I am it could tired, and adjust my homework load and expected completion times. I could enter into it if I was feeling sick and it would automatically adjust my homework schedule. Another one would be a 'don't forget to bring...' app, that (inaudible) goes into my school bag when I go away. I want to be able to send it for Mum to check and go a step further rather than it being an electronic checklist. I would like it to link to RFD chips to tell me if something is missing from my backpack. My uncle John is a (inaudible) who runs a company called (inaudible) and has an RFT chip that was injected into a (inaudible) – mum thinks he is a total nerd. He can unlock his car and open his office door by waving it in front of the lock. I would like my app to get information from a device to (inaudible) during the day to see how much physical activity I was doing. It would tell me the best time to go to sleep each night depending on when I set my alarm, and how tired the monitor judges need to be. It would be based on how much exercise I have done that day, and whether I had something important the next day – it knows to adjust, if I can be a slob, sleep in late, and go to bed late too. How cool would it be if I had an RFID chip like my uncle? So many possibilities. All of these are just ideas. I would love to be able to design them myself, but I'm happy to take commission, especially to take my ideas. I feel very privileged to be here and thank you for listening to me today. (Applause) HUY NGUYEN: Thank you so much, Bailey. I think Bailey is almost ready to be recruited to go to Google. I would love to hear responses and the risks associated with presentation, etc.. PETER FORD: That was great. On the International Space Station, they have been experimenting with personal robots. They can follow an astronaut around and respond in certain ways. The general idea is that you will have this buddy that will become your intelligent apparatus, an alter ego. What Bailey has been describing is what I would call 'eMum' - an electronic mother on your shoulder that can check all these things for you. I have only known Alan for less than half an hour, and am aware of the scope of Google, but I know that Alan is a super coder. What I can collate from that, Google already has a database and the ability to feed it through the Web to allow all this data to become available. The most important thing is - how do you collate it? And then, have you turn this into eMum or G-Mum if it goes to Google? You already know that all the data is available. Catching the school bus is a combination of GPS, Google maps and a reminder. The accumulated knowledge base about you, Bailey, it will get to know what your habits are. I think the data accumulation is already there, it is just a matter of channelling it into something that becomes Bailey's eMum or G-Mum. Those of you who are concerned about us being tagged, branded with things like the RFID chip, if they leave the house and it comes up on whatever he is carrying and reminds him about whether he forgot his schoolbag or his homework. All those things, you know the logic - the data is already there. I think it could be massively useful for everyone, regardless of whether we have ADHD, which I do, but it's a great idea and something you could code. ALAN NOBLE: A couple of things - keep studying science and maths and come work for Google one day. We have bits and pieces of a lot of this stuff. You may be surprised to know, for example, my entire life is in a product called Google Calendar, it tells you what ousted in half-hour chunks. I would not function without you telling me what to do. 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