Stigmatization + Isolation = Vulnerability to unethical human subjects research
Slide 13 Works Cited and Additional Resources
Moreno, Jonathan D. Undue Risk: State Secret Experiments on Humans. New York: Routledge, 2001.
Hornblum, Alan M. Sentenced to Science: One Black Man’s Story of Imprisonment in America. University Park, PA: The Penn State University Press, 2007.
Jones, James H. Bad Blood: The Tuskegee Syphilis Experiment. New York: The Free Press, 1981.
Kluger, Jeffrey. Splendid Solution: Jonas Salk and the Conquest of Polio. New York: G.P. Putnam’s Sons, 2004.
Wikipedia: The Nuremberg Code, the Tuskegee Syphilis Experiment, The Belmont Report.
CITI Program: www.citiprogram.org
American Experience: The Polio Crusade http://www.pbs.org/wgbh/americanexperience/films/polio/player/
American Experience: A Paralyzing Fear http://www.snagfilms.com/films/title/a_paralyzing_fear/
PowerPoint Slides for Lesson 3: The Disability Movement and The Souls Of Black Folk PowerPoint Presentation for Lesson 3: The Disability Movement and the Souls of Black Folk
Slide 1 Disability in DuBois Lecturer, Temple University Department of English Interdisciplinary faculty member, Temple University Institute on Disabilities
Slide 2 A Definition of Disability “Inability to perform activities to an extent or in a way that is necessary for survival and full participation in some major aspect of life in a given society” –Susan Wendell, The Rejected Body
Slide 3 Stigma Discredit, disgrace, or repulsiveness that comes from an undesired difference, which may be:
A physical trait
A character trait
A group membership
Slide 4 Medical Model of Disability versus Social Model of Disability Medical Model
Individual
Problem
Cure/Die
Normalization
Needs of Bourgeois Society
Scientific solutions
Objectified "patient"
Social Model
Collective
Issue
Live with disability
Pluralist society
Quality of life
Social, environmental, and attitudinal solutions
Subjectivities
Slide 5 Fantasies of Disability
Disability is punishment for evil
People with disabilities are embittered
People with disabilities resent and wish to destroy the nondisabled
People with disabilities are asexual
Slide 6 More fantasies about Disability
People with disabilities can never be integrated into society and must die
Fate compensates people with disabilities
All that people with disabilities need is a positive attitude
Slide 7 Even more fantasies about Disability
Disability is a problem of individual emotional coping
People with disabilities are saintly
EEEEK! THAT COULD HAPPEN TO ME!!
18TH and 19TH Century, before and during the Civil War: Blackness is treated as a disability so as to exclude African Americans from society. The Revolutionary Army in “New Hampshire refused to accept ‘lunatics, idiots and Negros,’ implying blackness was a similar mental deficiency.” –Jennifer James
Slide 9 End of 19th Century: Rehabilitation of black bodies
In “post-Civil War African American literature particularly, it was imperative that the black body and the black mind be portrayed as uninjured . . . in order to disprove one of the main anti-black arguments that surfaced after emancipation —that slavery had made blacks ‘unfit’ for citizenship.”—Jennifer James Slide 10 The Civil Rights Era: Black Fitness for Citizenship Image brokers sought to convey the public message that “The Negro is just like you,” with “you” being an imagined able-bodied, empowered, white audience who could aid in the liberation struggle: this meant excluding portrayals of Black Americans that would suggest sexuality, childishness, or disability, all of which were associated with the history of anti-Black stereotypes. Slide 11 The 1960’s Although the idea of wanting to be “just like you” is no longer popular, Black activists still idealize control of one’s body. Huey Newton, tortured in prison, tells us that he had to reclaim his mind’s dominance over his body, in the face of white society’s attempts to fulfill its conception of the black man as wholly menial, “stripped . . . of their mind.” To avoid submission in prison “Newton finds that his body must be mastered like a machine” (Robert Carr). Slide 12 DuBois and Disability Dubois Using Disability
Disability as fruits of oppression
Disability as metaphor for oppression
Able-bodiedness as citizenship
Crippled body/noble soul duality
Disability and sentimental feeling
Disability and pre-industrial community
Disability Using Dubois
Justifying investment in the oppressed
Recognizing non-monetary value
Self-assertion and gaining respect
Transcending self-help ethics
Documenting unenforced law
Group solidarity and shared culture
Slide 13 The language of disability in DuBois A people thus handicapped ought not to be asked to race with the world, but rather allowed to give all its time and thought to its own social problems. In the work of establishing the Negroes as peasant proprietors, the Bureau was from the first handicapped and at last absolutely checked. If now the economic development of the South is to be pushed to the verge of exploitation, as seems probable, then we have a mass of workingmen thrown into relentless competition with the workingmen of the world, but handicapped by a training the very opposite to that of the modern self-reliant democratic laborer. What the black laborer needs is careful personal guidance, group leadership of men with hearts in their bosoms, to train them to foresight, carefulness, and honesty.
Share with your friends: |