Review of European Union law and policy with reference to disability

Statistics and data collection and monitoring

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1.11Statistics and data collection and monitoring

Regarding statistics and data collection, a number of surveys that produce data on disability, directly or indirectly, have been conducted in the EU. However, only a handful of them are disability-specific.

On the basis of the 1998 Council Regulation on the organisation of a labour force sample survey in the Community (now Union) (document 11.01), Eurostat is provided with yearly employment data from the Member States. In addition to the main survey, a programme of so-called ‘ad hoc’ modules covering various subjects is drawn up annually. The last ad hoc module on the employment of disabled people was conducted in 2011 (document 11.04), the results of which became available in 2014.^⁷² The survey collected information from working age people living in households about their longstanding health conditions and limitations, occupation, use of personal assistance and need for reasonable accommodation measures.
Since 2003, the Survey on Income and Living Conditions (SILC) (document 11.02) has been conducted in all Member States to collect information on living conditions, poverty and social exclusion of people over the age of 16 who live in households in Europe. The last survey conducted in 2012 on housing conditions (document 11.05) includes questions on physical accessibility regarding basic needs, such as grocery, banking, postal services, healthcare and schooling for respondents with disabilities.
The latest wave of the European Health interview Survey (EHIS), which is conducted every five years, as provided by a European regulation (document 11.03), ran in 2014 (document 11.07). it covers health status, chronic conditions, limitations in daily activities, physical and sensory functional limitations, among other things.

The European statistical programme 2013 – 2017 (document 11.06) includes an objective to provide ‘statistics on key areas of social policy where the citizen is the centre of interest’. Disability is one of the key areas under this objective.

Nr	Title of instrument	Type of instrument	Relevant Art(s)	Remarks	CRPD Art(s)
LEGAL INSTRUMENTS
11.01	Council Regulation (EC) No 577/98 of 9 March 1998 on the organisation of a labour force sample survey in the Community	Legislative act	Art 4.2	The article provides for an additional set of variables to supplement the information collected. These variables (‘ad hoc’ modules) are drawn up annually and have already twice focused on the employment of disabled people.	31
11.02	Regulation (EC) No 1177/2003 of the European Parliament and of the Council of 16 June 2003 concerning Community statistics on income and living conditions (EU-SILC) (Text with EEA relevance)	Legislative act		No explicit mention of disability as a topic for statistics. However, ‘poverty’ and ‘exclusion’ are mentioned.	31
11.03	Regulation (EC) No 1338/2008 of the European Parliament and of the Council of 16 December 2008 on Community statistics on public health and health and safety at work	Legislative act	All	Health status under the Regulation includes health perceptions, physical and mental functioning, limitations and disability.	31
11.04	Commission Regulation (EC) No 365/2008 of 23 April 2008 adopting the programme of ad hoc modules, covering the years 2010, 2011 and 2012, for the labour force sample survey provided for by Council Regulation (EC) No 577/98	Legislative act		Employment of disabled people is assigned as an ad hoc module for 2011. Data available.	31
11.05	Commission Regulation (EU) No 1157/2010 of 9 December 2010 implementing Regulation (EC) No 1177/2003 of the European Parliament and of the Council concerning Community statistics on income and living conditions (EU-SILC), as regards the 2012 list of target secondary variables on housing conditions	Legislative act	Annex	Adopts the list of target secondary variables for the 2012 module on housing conditions. Physical accessibility must be assessed in terms of infrastructure and equipment for respondents with disabilities: depending on the ease of access to services within the household by a disabled household member, the housing is qualified as easily accessible or not.	31
11.06	Regulation (EU) No 99/2013 of the European Parliament and of the Council of 15 January 2013 on the European statistical programme 2013-17	Legislative act	Annex – Objective 3.2.1	Statistics are to be provided in key areas of social policy, which includes disability. Statistics should be disaggregated by gender.	6 31
11.07	Commission regulation (EU) No 141/2013 of 19 February 2013 implementing Regulation (EC) No 1338/2008 of the European Parliament and of the Council on Community statistics on public health and health and safety at work, as regards statistics based on the European Health Interview Survey (EHIS)	Implement- Ing act	All	Provides for the collection of data about health and functional limitations of persons.	25 31

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