PedsQL Publications

Manlhiot, C., Knezevich, S., Radojewski, E., Cullen-Dean, G., Williams, W.G., & McCrindle, B.W. (in press). Functional health status of adolescents after the Fontan procedure: Comparison with their siblings. Canadian Journal of Cardiology.

Montpetit, K., Hamdy, R.C., Dahan-Oliel, N., Zhang, X., & Narayanan, U.G. (2009). Measurement of health-related quality of life in children undergoing external fixator treatment for lower limb deformities. Journal of Pediatric Orthopedics, 29, 920-926.

Gorton, G.E., Abel, M.F., Oeffinger, D.J., Bagley, A., Rogers, S.P., Damiano, D., Romness, M., & Tylkowski, C. (2009). A prospective cohort study of the effects of lower extremity orthopaedic surgery on outcome measures in ambulatory children with cerebral palsy. Journal of Pediatric Orthopedics, 29, 903-909.

Hamdy R.C., Montpetit, K., Raney, E.M., Aiona, M.D., Fillman, R.R., MacKenzie, W., McCarthy, J., Chafetz, R.S., Thomas, S.S., Tamayo, C.M., Littleton, A.G., Ruck-Gibis, J., Takahashi, S.N., Rinaldi, M., Finley, G.A., Platt, R.W., & Dahan-Oliel, N. (2009). Botulinum toxin type A injection in alleviating postoperative pain and improving quality of life in lower extremity limb lengthening and deformity correction: A pilot study. Journal of Pediatric Orthopedics, 29, 427-434.

Modi, A.C., King, A.S., Monahan, S.R., Koumoutsos, J.E., Morita, D.A., & Glauser, T.A. (2009). Even a single seizure negatively impacts pediatric health-related quality of life. Epilepsia, 50, 2110–2116.

Feichtl, R.E., Rosenfeld, B., Tallamy, B., Cairo, M.S., & Sands, S.A. (in press). Concordance of quality of life assessments following pediatric hematopoietic stem cell transplantation. Psycho-Oncology.

Damiano, D.L., Arnold, A.S., Steele, K.M., & Delp, S.L. (in press). Can strength training predictably improve gait kinematics? A pilot study on the effects of hip and knee extensor strengthening on lower-extremity alignment in cerebral palsy. Physical Therapy.

Brandsema J.F., Stephens, D., Hartley, J., & Yoon, G. (2010). Intermediate-dose idebenone and quality of life in Friedreich ataxia. Pediatric Neurology, 42, 338-342.

Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (in press). Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school-aged children with disabilities. Child: Care, Health and Development.

Hamiwka, L.A., Cantell, M., Crawford, S., & Clark, C. G. (2009). Physical activity and health related quality of life in children following kidney transplantation. Pediatric Transplantation, 13, 861-867.

Petersen, S., Hagglof, B., Stenlund, H., & Bergstrom, E. (2009). Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Acta Paediatrica, 98, 1504-1512.

Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams, A., & Pollock-Barziv, S.M. (in press). Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatric Transplantation.

Marlais, M., Fishman, J.R., Rawat, D.J., & Haddad, M. (in press). Development and validation of a disease-specific quality-of-life measure for children with achalasia. European Journal of Pediatric Surgery.

Goldstein, S.L., Rosburg, N.M., Warady, B.A., Seikaly, M., McDonald, R. Limbers, C.A., & Varni, J.W. (2009). Pediatric end stage renal disease health-related quality of life differs by modality: A PedsQL™ ESRD analysis. Pediatric Nephrology, 24, 1553-1560.

Ringold, S., Wallace, C.A., & Rivara, F.P. (2009). Health-related quality of life, physical function, fatigue, and disease activity in children with established polyarticular juvenile idiopathic arthritis. Journal of Rheumatology, 36, 1330-1336.

Hinds, P.S, Gattuso, J.S., Billups, C.A., West, N.K., Wu, J., Rivera, C., Quintana, J., Villarroel, M., Daw, N.C. (2009). Aggressive treatment of non-metastatic osteosarcoma improves health-related quality of life in children and adolescents. European Journal of Cancer, 45, 2007-2014.

Hainsworth, K.R., Davies, W.H., Khan, K.A., & Weisman, S.J. (2009). Co-occurring chronic pain and obesity in children and adolescents: The impact on health-related quality of life. Clinical Journal of Pain, 25, 715-721.

Brunner, H.I., Higgins, G.C., Wiers, K., Lapidus, S.K., Olson, J.C., Onel, K., Punaro, M., Ying, J., Klein-Gitelman, M.S., & Seid, M. (2009). Health-related quality of life and its relationship to patient disease course in childhood-onset systemic lupus erythematosus. Journal of Rheumatology, 36, 1536-1545.

Anderson, C.J., Kelly, E.H., Klaas, S.J., Russell, H., Daharsh, E., & Vogel, L.C. (2009). Anxiety and depression in children and adolescents with spinal cord injuries. Developmental Medicine and Child Neurology, 51, 826–832.

Quinlan, N.P., Kolotkin, R.L., Fuemmeler, B. F., & Costanzo, P.R. (2009). Psychosocial outcomes in a weight loss camp for overweight youth. International Journal of Pediatric Obesity, 4, 134-142.

Owen, R., Sikich, L., Marcus, R.N., Corey-Lisle, P., Manos, G., McQuade, R.D., Carson, W.H., & Findling, R.L. (2009). Aripiprazole in the treatment of irritability in children and adolescents with autistic disorder. Pediatrics, 124, 1533–1540.

Flores, G., Bridon, C., Torres, S., Perez, R., Walter, T., Brotanek, J., Lin, H., & Tomany-Korman, S. (2009). Improving asthma outcomes in minority children: A randomized, controlled trial of parent mentors. Pediatrics, 124, 1522–1532.

van Tilburg, M. A. L., Chitkara, D.K., Palsson, O.S., Turner, M., Blois-Martin, N., Ulshen, M., & Whitehead, W.E. (2009). Audio-recorded guided imagery treatment reduces functional abdominal pain in children: A pilot study. Pediatrics, 124, e890–e897.

Penn, A., Lowis, S.P., Stevens, M.C.G., Hunt, L.P., Shortman, R.I., McCarter, R.J., Pauldhas, D., Curran, A.L., & Sharples, P.M. (2009). Family, demographic and illness-related determinants of HRQL in children with brain tumours in the first year after diagnosis. Pediatric Blood and Cancer, 53, 1092–1099.

Barrera, M., & Schulte, F. (2009). Group social skills intervention program for survivors of childhood brain tumors. Journal of Pediatric Psychology, 34, 1108–1118.

Marcus, R.N., Owen, R., Kamen, L., Manos, G., McQuade, R.D., Carson, W.H., & Aman, M.G. (2009). A placebo-controlled, fixed-dose study of Aripiprazole in children and adolescents with irritability associated with autistic disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 48, 1110-1119.

Mathers, M., Canterford, L., Olds, T., Hesketh, K., Ridley, K., & Wake, M. (in press). Electronic media use and adolescent health and well-being: Cross-sectional community study. Academic Pediatrics.

Makay, B., Ünsal, E., Arslan, N. & Varni, J.W. (2009). Health-related quality of life of school-age children with familial Mediterranean fever. Clinical and Experimental Rheumatology, 27, (2 Suppl. 53), S96-101.

Janssens, L., Gorter, J.W., Ketelaar, M., Kramer, W.L.M., & Holtslag, H.R. (in press). Long-term health-related quality of life in major pediatric trauma: A pilot study. European Journal of Trauma and Emergency Surgery.

Thomas-Stonell, N.L., Oddson, B., Robertson, B., Rosenbaum, P.L. (in press). Development of the FOCUS (Focus on the Outcomes of Communication Under Six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology.

Xin, B., Guo, L.T., Li, X.R., Shan, Y.H., Fang, H., Liu, K.Z., & Situ, M.J. (2009). Quality of life of children with attention deficit hyperactivity disorders. Sichuan Da Xue Xue Bao (Journal of Sichuan University), 40, 1091-5. (Article in Chinese)

Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (in press). Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care.

Clarke, M.C., Chase, J.W., Gibb, S., Hutson, J.M., & Southwell, B.R. (2009). Improvement of quality of life in children with slow transit constipation after treatment with transcutaneous electrical stimulation. Journal of Pediatric Surgery, 44, 1268-1272.

Lack, C.W., Storch, E.A., Keeley, M.L., Geffken, G.R., Ricketts, E.D., Murphy, T.K., & Goodman, W.K. (2009). Quality of life in children and adolescents with obsessive-compulsive disorder: Base rates, parent-child agreement, and clinical correlates. Social Psychiatry and Psychiatric Epidemiology, 44, 935–942.

Moore, M.H., Mah, J.K., & Trute, B. (2009). Family-centered care and health-related quality of life of patients in pediatric neurosciences. Child: Care, Health, and Development, 35, 454-461.

Tsiros, M.D., Olds, T., Buckley, J.D., Grimshaw, P., Brennan, L., Walkley, J., Hills, A.P., Howe, P.R., & Coates, A.M. (in press). Health-related quality of life in obese children and adolescents. International Journal of Obesity.

Zeller, M.H., Modi, A.C., Noll, J.G., Long, J.D. & Inge, T.H. (2009). Psychosocial functioning improves following adolescent bariatric surgery. Obesity, 17, 985-990.

Wallander, J.L., Taylor, W.C., Grunbaum, J.A., Franklin, F.A., Harrison, G.G., Kelder, S.H., & Schuster, M.A. (in press). Weight status, quality of life, and self-concept in African American, Hispanic, and White fifth-grade children. Obesity.

Sheffler, L.C., Hanley, C., Bagley, A., Molitor, F., & James, M.A. (2009). Comparison of self-reports and parent proxy-reports of function and quality of life of children with below-the-elbow deficiency. Journal of Bone and Joint Surgery, 91, 2852-2859.

Driscoll, K.A., Killian, M. Johnson, S.B., Silverstein, J.H., & Deeb, L.C. (2009). Predictors of study completion and withdrawal in a randomized clinical trial of a pediatric diabetes adherence intervention. Contemporary Clinical Trials, 30, 212-220.

Huang, I.C., Shenkman, E.A., Leite, W., Knapp, C.A., Thompson, L.A., & Revicki, D.A. (2009). Agreement was not found in adolescents’ quality of life rated by parents and adolescents. Journal of Clinical Epidemiology, 62, 337-346.

Wake, M., Canterfored, L., Patton, G., Hesketh, K., Hardy, P., Williams, J., Waters, E., & Carlin, J. (in press). Comorbidities of overweight/obesity experienced in adolescents: Longitudinal study. Archives of Disease in Childhood.

Gold, J.I., Mahrer, N.E., Yee, J., & Palermo, T.M. (2009). Pain, fatigue, and health-related quality of life in children and adolescents with chronic pain. Clinical Journal of Pain, 25, 407-412.

Weissberg-Benchell, J., Nansel, T.R., Holmbeck, G.N., Chen, R., Anderson, B.J., Wysocki, T., & Laffel, L. (2009). Generic and diabetes-specific parent-child behaviors and quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 34, 977-988.

Wysocki, T., Nansel, T.R., Holmbeck, G.N., Chen, R., Laffel, L., Anderson, B.J., & Weissberg-Benchell, J. (2009). Collaborative involvement of primary and secondary caregivers: Associations with youths' diabetes outcomes. Journal of Pediatric Psychology, 34, 869-881.

Yackobovitch-Gavan, M., Nagelberg, N., Phillip, M., Ashkenazi-Hoffnung, L., Hershkovitz, E., & Shalitin, S. (2009). The influence of diet and/or exercise and parental compliance on health-related quality of life in obese children. Nutrition Research, 29, 397-404.

Limond, J., Dorris, L., & McMillan, T.M. (2009). Quality of life in children with acquired brain injury: Parent perspectives 1-5 years after injury. Brain Injury, 23, 617-622.

Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J.W. (2009). The Italian version of the PedsQL™ in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373-380.

Jung, M., Hohne, A., Varni, J.W., Klingebiel, T., & Landenberger, M. (2009). The measurement of fatigue in pediatric oncology: The first German version of the PedsQL™ Multidimensional Fatigue Scale. Kinder- und Jugendmedizin, 9, 218-224. (German).

Panepinto, J.A., Pajewski, N.M., Foerster, L.M., Sabnis, S., & Hoffmann, R.G. (2009). Impact of family income and sickle cell disease on the health-related quality of life of children. Quality of Life Research, 18, 5-13.

Zeller, M.H., & Modi, A.C. (in press). Development and initial validation of an obesity-specific quality of life measure for children: Sizing me up. Obesity.

Ewing, J.E., King, M.T., & Smith, N.F. (2009). Validation of modified forms of the PedsQL
Generic Core Scales and Cancer Module scales for adolescents and young adults (AYA) with cancer or a blood disorder. Quality of Life Research, 18, 231-244.

Mistry, R.D., Stevens, M.W., & Gorelick, M.H. (2009). Health-related quality of life for pediatric emergency department febrile illnesses: An evaluation of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 7:5, 1-9.

Conlon, N.P., Breatnach, C., O’Hare, B.P., Mannion, D.W., & Lyons, B.J. (2009). Health-related quality of life after prolonged pediatric intensive care unit stay. Pediatric Critical Care Medicine, 10, 41-44.

Miró, J., Castarlenas, E., & Huguet, A. (2009). Evidence for the use of a numerical rating scale to assess the intensity of pediatric pain. European Journal of Pain, 13, 1089–1095.

Engelen, V., Haentjens, M.M., Detmar, S.B., Koopman, H.M., & Grootenhuis, M.A. (2009). Health related quality of life of Dutch children: Psychometric properties of the PedsQL in the Netherlands. BMC Pediatrics, 9:68, 1-8.

Penn, A., Lowis, S.P., Stevens, M.C., Hunt, L.P., Shortman, R.I., McCarter, R.J., Pauldhas, D., Curran, A.L., & Sharples, P.M. (2009). Family, demographic and illness-related determinants of HRQL in children with brain tumours in the first year after diagnosis. Pediatric Blood and Cancer, 17, 1092-1099.

Nansel, T.R., Anderson, B.J., Laffel, L.M.B., Simons-Morton, B.G., Weissberg-Benchell, J., Wysocki, T., Iannotti, R.J., Holmbeck, G.N., Hood, K.K., & Lochrie, A.S. (2009). A multisite trial of a clinic-integrated intervention for promoting family management of pediatric type 1 diabetes: Feasibility and design. Pediatric Diabetes, 10, 105-115.

Saps, M., Seshadri, R., Sztainberg, M., Schaffer, G., Marshall, B.M., & Di Lorenzo, C. (2009). A prospective school-based study of abdominal pain and other common somatic complaints in children. Journal of Pediatrics, 154, 322-326.

Tsiros, M.D., Olds, T., Buckley, J.D., Grimshaw, P., Brennan, L. Walkley, J., Hills, A.P., Howe, P.R.C., & Coates, A.M. (2009). Health-related quality of life in obese children and adolescents. International Journal of Obesity, 33, 387-400.

Klassen, A., Klaassen, R.J., Dix, D., Pritchard, S., Yanofsky, R., & Sung, L. (in press). Caregiving demands in parents of children with cancer: Psychometric validation of the care of my child with cancer questionnaire. Journal of Pediatric Nursing.

Haley, S.M., Fragala-Pinkham, M.A., Dumas, H.M., Ni, P., Gorton, G.E., Watson, K., Montpetit, K., Bilodeau, N., Hambleton, R.K., & Tucker, C.A. (in press). Evaluation of an item bank for a computerized adaptive test of activity in children with cerebral palsy. Physical Therapy.

Mannix, M.M., Feldman, J.M., & Moody, K. (in press). Optimism and health-related quality of life in adolescents with cancer. Child: Care, Health and Development.

Sherifali, D., Ciliska, D., & O’Mara, L. (in press). Parenting children with diabetes: Exploring parenting styles on children living with type 1 diabetes mellitus. The Diabetes Educator.

Cotton, S., Kudel, I., Roberts, Y.H., Pallerla, H., Tsevat, J., Succop, P., & Yi, M.S. (in press). Spiritual well-being and mental health outcomes in adolescents with or without inflammatory bowel disease. Journal of Adolescent Health.

Young, N.L., Varni, J.W., Snider, L., McCormick, A., Sawatzky, B., Scott, M., King, G., Hetherington, R., Sear, E., & Nicholas, D. (2009). The Internet is valid and reliable for child-report: An example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL). Journal of Clinical Epidemiology, 62, 314-320.

Aitken, M.E., McCarthy, M.L., Slomine, B.S., Ding, R., Durbin, D.R., Jaffe, K.M., Paidas, C.N., Dorsch, A.M., Christensen, J.R., & Mackenzie, E.J. (2009). Family burden after traumatic brain injury in children. Pediatrics, 123, 199-206.

Seid, M., Opipari, L., Huange, B., Brunner, H.I., & Lovell, D.J. (2009). Disease control and health-related quality of life in juvenile idiopathic arthritis. Arthritis and Rheumatism, 61, 393-399.

Storch, E.A., Keeley, M., Merlo, L.J., Amant, J.B., Jacob, M., Storch, J.F., Spencer, C., & Byrne, B.J. (2009). Psychosocial functioning in youth with Barth Syndrome. Children’s Health Care, 38, 137-156.

Panepinto, J.A., Hoffmann, R.G., & Pajewski, N.M. (2009). A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease. Health and Quality of Life Outcomes, 7:32 1-11.

Janssens, L., Gorter, J.W., Ketelaar, M., Kramer, W.L., & Holtslag, H.R. (in press). Long-term health-related quality of life in major pediatric trauma: A pilot study. European Journal of Trauma and Emergency Surgery.

Dieruf, K., Burtner, P.A., Provost, B., Phillips, J., Bernitsky-Beddingfield, A, & Sullivan, K.J. (2009). A pilot study of quality of life in children with cerebral palsy after intensive body weight-supported treadmill training. Pediatric Physical Therapy, 21, 45-52.

Brothers, J.A., McBride, M.G., Marino, B.S., Tomlinson, R.S., Seliem, M.A., Pampaloni, M.H., Gaynor, J.W., Spray, T.L., & Paridon, S.M. (2009). Exercise performance and quality of life following surgical repair of anomalous aortic origin of a coronary artery in the pediatric population. Journal of Thoracic and Cardiovascular Surgery, 137, 380-384.

Modi, A.C., Guilfoyle, S.M., & Zeller, M.H. (2009). Impaired health-related quality of life in caregivers of youth seeking obesity treatment. Journal of Pediatric Psychology, 34, 147-155.

Yi, M.S., Britto, M.T., Sherman, S.N., Moyer, M.S., Cotton, S., Kotagal, U.R., Canfield, D., Putman, F.W., Carlton-Ford, S., & Tsevat, J. (2009). Health values in adolescents with or without inflammatory bowel disease. Journal of Pediatrics, 154, 527-534.

Seid, M., Opipari-Arrigan, L.A., Gelhard, L.R, Varni, J.W. & Driscoll, K.A. (2009). Barriers to Care Questionnaire: Reliability, validity, and responsiveness to change among parents of children with asthma. Academic Pediatrics, 9 106-113.

Ramchandren, S., Leonard, M., Mody, R.J., Donohue, J.E., Moyer, J., Hutchinson, R., & Gurney, J.G. (2009). Peripheral neuropathy in survivors of childhood acute lymphoblastic leukemia. Journal of the Peripheral Nervous System, 14, 184-189.

Dietz, F.R., Tyler, M.C., Leary, K.S., & Damiano, P.C. (2009). Evaluation of a disease-specific instrument for idiopathic clubfoot outcome. Clinical Orthopaedics and Related Research, 467, 1256-1262.

Crawford, J.M., Warne, G., Grover, S., Southwell, B.R., & Hutson, J.M. (2009). Results from a pediatric surgerical centre justify early intervention in disorders of sex development. Journal of Pediatric Surgery, 44, 413-416.

Kilanowski, J.F. (2009. Health-related quality of life in two itinerant samples: Carnival and migrant farm worker children. Pediatric Nursing, 35, 149-53.

Dhoundiyal, M., & Venkatesh, R. (2009). The psychological world of adolescence: A comparative evaluation between rural and urban girls. Indian Journal of Psychological Medicine, 31, 35-38.

Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (2009). Development of the Assistance to Participate Scale (APS) for children's play and leisure activities. Child: Care, Health and Development, 35, 738-45.

Kunkel, N., Oliveira, W.F., & Peres, M.A. (2009). Overweight and health-related quality of life in adolescents of Florianopolis, Southern Brazil. Revista de saúde pública (in Portuguese).

Nansel, T.R., Weisberg-Benchell, J., Wysocki, T., Laffel, L. & Anderson, B. (2008). Quality of life in children with Type 1 diabetes: A comparison of general and disease-specific measures and support for a unitary diabetes quality of life construct. Diabetic Medicine, 25, 1316-1323.

Naughton, M.J., Ruggiero, A.M., Lawrence, J.M., Imperatore, G., Klingensmith, G.J. Waitzfelder, B., McKeown, R.E., Standiford, D.A., Liese, A.D., & Loots, B. (2008). Health-related quality of life of children and adolescents with type 1 or type 2 diabetes mellitus: SEARCH for Diabetes In Youth Study. Archives of Pediatrics and Adolescent Medicine, 162, 649-657.

Nuboer, R., Borsboom, G.J., Zoethout, J.A., Koot, H.M., & Bruining, J. (2008). Effects of insulin pump vs. injection treatment on quality of life and impact of disease in children with type1 diabetes mellitus in a randomized, prospective comparison. Pediatric Diabetes, 9, 291-296.

Parekh, A.D., Thomas, J.C., Trusler, L., Ankerst, D.P., Deshpande, J.K., Adams, M.C., Pope, J.C., & Brock, J.W. (2008). Prospective evaluation of health related quality of life for pediatric patients with ureteropelvic junction obstruction. Journal of Urology, 180, 2171-2176.

Sung, L., Klaassen, R.J., Dix, D., Pritchard, S., Yanofsky, R., Dzolganovski, B., Almeida, R., & Klassen, A. (2009). Identification of paediatric cancer patients with poor quality of life. British Journal of Cancer, 100, 82-88.

Modi, A.C., & Zeller, M.H. (in press). Validation of a parent-proxy, obesity-specific quality of life measure: Sizing them up. Obesity.

Trapanotto, M., Giorgino, D., Zulian, F., Benini, F., & Varni, J.W. (2009). The Italian version of the PedsQL™ in children with rheumatic diseases. Clinical and Experimental Rheumatology, 27, 373-380.

Tessier, S., Vuillemin, A., Lemelle, J.-L., & Brianc, S. (2009). Psychometric properties of the French Pediatric Quality of Life Inventory Version 4.0 (PedsQL™ 4.0) generic core scales (French). Revue Européenne de Psychologie Appliquée, 59, 291–300.

Sitaresmi, M.N., Mostert, S., Gundy, C.M., Sutaryo, S., & Veerman, A. J. P. (in press). Health-related quality of life asssessment in Indonesian childhood acute lymphoblastic leukemia. Health and Quality of Life Outcomes.

King, R.M., Knibb, R.C., & Hourihane, J.O. (in press). Impact of peanut allergy on quality of life, stress and anxiety in the family. Allergy.

Wong, H.B., Machin, D., Tan, S.B., Wong, T.Y., & Saw, S.M. (in press). Visual impairment and its impact on health-related quality of life. American Journal of Ophthalmology.

Hsieh, R.L., Huang, H.Y., Lin, M.I., Wu, C.W., & Lee, W.C. (2009). Quality of life, health satisfaction and family impact on caregivers of children with developmental delays. Child: Care, Health and Development, 35, 243–249.

Janssens, L., Gorter, J.W., Ketelaar, M., Kramer, W. L, & Holtslag, H.R. (in press). Long-term health-related quality of life in major pediatric trauma: A pilot study. European Journal of Trauma and Emergency Surgery.
Seid, M., Opipari-Arrigan, L., Gelhard, L.R., Varni, J.W., & Driscoll, K. (2009). Barriers to Care Questionnaire: Reliability, validity, and responsiveness to change among parents of children with asthma Academic Pediatrics, 9, 106–113.
Wang, M., Wu, L. Zheng, Y., Zhang, Q., & Li, C. (2009). The Chinese QOLIE-AD-48.: Translation, validity, and reliability. Epilepsy and Behavior, 14, 476-480.

Majnemer, A., Shevell, M., Law. M., Poulin, C., & Rosenbaum, P. (2008). Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy. Quality of Life, 17, 1163-1171.

Modi, A.C., Loux, T.J., Bell, S.K., Harmon, C.M., Inge, T.H., & Zeller, M.H. (in press). Weight-specific health-related quality of life in adolescents with extreme obesity. Obesity,

Davis, E., Davies, B., Waters, E., & Priest, N. (2008). The relationship between proxy reported health-related quality of life and parental distress: Gender differences. Child: Care, Health and Development, 34, 830-837.

Hinds, P.S., Billups, C.A., Cao, X., Gattuso, J.S., Burghen, E., West, N., Rubnitz, J.E., & Daw, N.C. (in press). Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia. European Journal of Oncology Nursing.

Emmanouilidou, E., Galli-Tsinopoulou, A., Karavatos, A. & Nousia-Arvanitakis, S. (in press). Quality of life of children and adolescents with diabetes of Northern Greek origin. Hippokratia.

Palta, M., & Sadek-Badawi, M. (2008). PedsQL™ relates to function and behavior in very low and normal birth weight 2- and 3-year-olds from a regional cohort. Quality of Life Research, 17, 691-700.

Greenley, R.N., Josie, K.L. & Drotar, D. (2008). Self-reported quality of life among inner-city youth with asthma. An empirical examination of the PedsQL™ 3.0 Asthma Module. Annals of Allergy, Asthma and Immunology, 100, 106-111.

Banks, B.A., Barrowman, N.J., & Klaassen, R. (2008). Health-related quality of life: Changes in children undergoing chemotherapy. Journal of Pediatric Hematology/Oncology, 30, 292-297.

Parekh, A.D., Thomas, J.C., Trusler, L., Ankerst, D.P., Deshpande, J.K., Adams, M.C., Pope J.C., & Brock, J.W. (2008). Prospective evaluation of health related quality of life for pediatric patients with ureteropelvic junction obstruction. Journal of Urology, 180, 2171-2175.

de Wit, M., de Waal, H.A., Alle Bokma, J., Haasnoot, K., Houdijk, M.C., Gemke, R.J., & Snoek, F.J. (2008). Monitoring and discussing health related quality of life in adolescents with type 1 diabetes improves psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521–1526.

Panepinto, J.A., Pajewski, N.M., Foerster, L.M., & Hoffmann, R.G. (2008). The performance of the PedsQL™ Generic Core Scales in children with sickle cell disease. Journal of Pediatric Hematology/Oncology, 30, 666-673.

Reinfjell, T., Hjemdal, O., Aune, T., Vikan, A., & Diseth, T.H. (2008). The Pediatric Quality of Life Inventory™ (PedsQL™) 4.0 as an assessment measure for depressive symptoms: A correlational study with young adolescents. Nordic Journal of Psychiatry, 62, 279-286.

Huguet, A., & Miro, J. (2008). The severity of chronic pediatric pain: An epidemiological study. Journal of Pain, 9, 226-236.

Wade, T.J., Mansour, M.E., Line, K., Huentelman, T., & Keller, K.N. (2008). Improvements in health-related quality of life among school-based health center users in elementary and middle school. Ambulatory Pediatrics, 8, 241-249.

Hommel, K.A., Davis, C.M., & Baldassano, R.N. (2008). Medication adherence and quality of life in pediatric inflammatory bowel disease. Journal of Pediatric Psychology, 33, 867–874.

Yackobovitch-Gavan, M., Nagelberg, N., Demol, S., Phillip, M., & Shalitin, S. (2008). Influence of weight-loss diets with different macronutrient compositions on health-related quality of life in obese youth. Appetite, 51 697-703.

Russo, R.N., Goodwin, E.J., Miller, M.D., Haan, E.A., Connell, T.M., & Crotty, M. (in press). Self-esteem, self-concept, and quality of life in children with hemiplegic cerebral palsy. Journal of Pediatrics,

Mah, J.K., Thannhauser, J.E., Kolski, H., & Dewey, D. (2008). Parental stress and quality of life in children with neuromuscular disease. Pediatric Neurology, 39,102-107.

Cheuk, D.K., Mok, A.S., Lee, A.C., Chiang, A.K., Ha, S.Y., Lau, Y.L., & Chan, G.C. (in press). Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT. Bone Marrow Transplantation.

Allan, C.L., Flett, B., & Dean, H.J. (2008). Quality of life in First Nation youth with type 2 diabetes. Maternal and Child Health Journal, 12, Suppl 1, 103-109.

Redman, T.A., Finn, J.C., Bremner, A.P., & Valentine, J. (in press). Effect of upper limb botulinum toxin-A therapy on health-related quality of life in children with hemiplegic cerebral palsy. Journal of Paediatrics and Child Health.

Matziou, V., Perdikaris, P., Feloni, D., Moshovi, M., Tsoumakas, K., & Merkouris, A. (in press). Cancer in childhood. Children’s and parents’ aspects for quality of life. European Journal of Oncology Nursing.

Soresina, A., Nacinovich, R., Bomba, M., Cassani, M., Molinaro, A. et al. (in press). The quality of life of children and adolescents with x-linked Agammaglobulinemia. Journal of Clinical Immunology.

Veleminsky, M, & Buresova, G. (in press). Health related quality of life of children and adolescents with Type 1 diabetes. Neuro Endocrinology Letter.

Gkoltsiou, K., Dimitrakaki, C., Tzavara, C., Papaevangelou, V., Varni, J.W., Tountas, Y. (2008). Measuring health-related quality of life in Greek children: Psychometric properties of the Greek version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales. Quality of Life Research, 17, 299-305.

Kook, S.H., & Varni, J.W. (2008). Validation of the Korean version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in school children and adolescents using the Rasch model. Health and Quality of Life Outcomes, 6:41, 1-15.

Felder-Puig, R., Baumgartner, M., Topf, R., Gadner, H., & Formann, A.K. (2008). Health-related quality of life in Austrian elementary school children. Medical Care, 46, 432-439.

Felder-Puig, R., Topf, R., Gadner, H., & Formann, A.K. (2008). Measuring health-related quality of life in children from different perspectives using the Pediatric Quality of Life Inventory™ (PedsQL™) and teachers’ ratings. Journal of Public Health, 16, 317-325.

Janssens, L. Gorter, J.W., Ketelaar, M., Kramer, W.L., Holtslag, H.R. (2008). Health-related quality of life measures for long-term follow-up in children after major trauma. Quality of Life Research, 17, 701-713.

Wood, L.J., Sherman, E., Hamiwka, L.D., Blackman, M., & Wirrel. E. (2008). Depression, anxiety, and quality of life in siblings of children with intractable epilepsy. Epilepsy and Behavior, 13, 144-148.

Penn, A., Lowis, S.P., Hunt, L.P., Shortman, R.I., Stevens, M.C., McCarter, R.L., Curran, A.L., & Sharpies, P.M. (2008). Health related quality of life in the first year after diagnosis in children with brain tumors compared with matched healthy controls: A prospective longitudinal study. European Journal of Cancer, 44, 1243-1252.

Laaksonen, C., Aromaa, M., Heinonen, O.J., Koivusilta, L., Koski, P., Suominen, S., Vahlberg, T., Salantera, S. (2008). Health related quality of life in 10-year-old schoolchildren. Quality of Life Research, 17, 1049-1054.

Russo, R.N., Miller, M.D., Haan, F., Cameron, I.D., & Crotty, M. (2008). Pain characteristics and their association with quality of life and self-concept in children with hemiplegic cerebral palsy. Clinical Journal of Pain, 24, 335-342.

Maher, C.A., Olds, T., Williams, M.T., & Lane, A.E. (2008). Self-reported quality of life in adolescents with cerebral palsy. Physical and Occupational Therapy in Pediatrics, 28, 41-57.

Scarpelli, A.C., Paiva, S.M., Pordeus, I.A., Varni, J.W., Viegas, C.M., & Allison, P.J. (2008). The Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: Reliability and validity of the Brazilian version. Health and Quality of Life Outcomes, 6:35, 1-8.

Feldman, D., Swaine, B., Gosselin, J., Meshefedjian, G., & Grilli, L. (2008). Is waiting for rehabilitation services associated with changes in function and quality of life in children with physical disabilities? Physical and Occupational Therapy in Pediatrics, 28, 291-304.

Calvert, S., Miller, H.E., Curran, A., Hameed, B., McCarter, R., Edwards, R.J., Hunt, L., & Sharples, P.M. (2008). The King’s outcome scale for childhood head injury and injury severity and outcome measures in children with traumatic brain injury. Developmental Medicine and Child Neurology,

Roizen, M., Rodriguez, S., Bauer, G., Medin, G., Bevilacqua, S., Varni, J.W., & Dussel, V. (2008). Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: Acceptability and comprehensibility in low-income settings. Health and Quality of Life Outcomes, 6:59, 1-15.

Sung, V., Hiscock, H., Sciberras, E., & Efron, D. (2008). Sleep problems in children with attention-deficit/hyperactivity disorder: Prevalence and the effect on the child and family. Archives of Pediatrics & Adolescent Medicine, 162, 336-342.

Limbers, C.A., Turner, E., & Varni, J.W. (2008). Promoting healthy lifestyles: Behavior modification and motivational interviewing in the treatment of childhood obesity. Journal of Clinical Lipidology, 2, 169-178.

Klatchoian, D.A., Len, C.A., Terreri, M.T., Silva, M., Itamoto, C., Ciconelli, R.M., Varni, J.W., & Hilário, M.O.E. (2008). Quality of life of children and adolescents from Sao Paulo: Reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales. Jornal de Pediatria (Brazilian Journal of Pediatrics), 84, 308-315.

Vetter, T.R. (2008). A clinical profile of a cohort of patients referred to an anesthesiology-based pediatric chronic pain medicine program. Anesthesia and Analgesia, 106, 786-794.

Clarke, M.C., Chow, C.S., Chase, J.W., Gibb, S., Hutson, J.M., & Southwell, B.R. (2008). Quality of life in children with slow transit constipation. Journal of Pediatric Surgery, 43, 320-324.

De Bolle, M., De Clercq, B., De Fruyt, F., & Benoit, Y. (2008). Self and parental perspectives on quality of life in children with cancer. Journal of Psychosocial Oncology, 26, 35-47.

Lampard, A.M., Byrne, S.M., Zubrick, S.R., & Davis, E.A. (2008). Parents’ concern about their children’s weight. International Journal of Pediatric Obesity, 3, 84-92.

Langer, M.M., Hill, C.D., Thissen, D., Burwinkle, T.M., Varni, J.W., & DeWalt, D.A. (2008). Item response theory detected differential item functioning between healthy and ill children in quality-of-life measures. Journal of Clinical Epidemiology, 61, 268-276.

Perrin, J.M., Kuhlthau, K., Chughtai, A., Romm, D. Kirschener, B.S., Ferry G.D., Cohen, S.A., Gold, B.D., Heyman, M.B., Baldassano, R.N., & Winter, H.S. (2008). Measuring quality of life in pediatric patients with inflammatory bowel disease: Psychometric and clinical characteristics. Journal of Pediatric Gastroenterology and Nutrition, 46, 164-171.

Carno, M.A., Ellis, E., Anson, E., Kraus, R., Black, J., Short, R., & Connolly, H.V. (2008). Symptoms of sleep apnea and polysomnography as predictors of poor quality of life in overweight children and adolescents. Journal of Pediatric Psychology, 33, 269-278.

Uneri, O.S., Agaoglu, B., Coskun, A., & Memik, N.C. (2008). Validity and reliability of Pediatric Quality of Life Inventory for 2- to 4-year-old and 5- to 7-year-old Turkish children. Quality of Life Research, 17, 307-315.

Scarpelli, A.C., Paiva, S.M., Pordeus, I.A., Ramos-Jorge, M.L., Varni, J.W., & Allison, P.J. (2008). Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory™ (PedsQL™) Cancer Module Scale. Health and Quality of Life Outcomes, 6:7, 1-11.

Huguet, A., & Miro, J. (2008). Development and psychometric evaluation of a Catalan self- and interviewer-administered version of the Pediatric Quality of Life Inventory™ Version 4.0. Journal of Pediatric Psychology, 33, 63-79.

Upton, P., Lawford, J., & Eiser, C. (2008). Parent-child agreement across child health-related quality of life instruments: A review of the literature. Quality of Life Research, 17, 895-913.

de Geurts, M.A., van Litsenburg, R.R., Huisman, J., Grootenhuis, M.A., Versluys, B.A., Kaspers, G.J., & Gemke, R.J. (2008) Effects of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: A prospective observational study. Health and Quality of Life Outcomes.

Chen, Y.M., He, L.P., Mai, J.C., Hao, Y.T., Xiong, L.H., Chen, W.Q., & Wu, J.N. (2008). Validity and reliability of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in Chinese children and adolescents (article in Chinese). Zhonghua Liu Xing Bing Xue Za Zhi, 29, 560-563.

McClellan, C.B., Schatz, J., Sanchez, C., & Roberts, C.W. (2008). Validity of the Pediatric Quality of Life Inventory for youth with sickle cell disease. Journal of Pediatric Psychology, 33, 1153-1162.

Newcombe, P.A., Sheffield, J.K., Juniper, E.F., Marchant, J.M., Halsted, R.A., Masters, I.B., & Chang, A.B. (2008). Development of a parent-proxy quality of life chronic cough-specific questionnaire: Clinical impact vs. psychometric evaluations. Chest, 133, 386-395.

Lau, L., Stuurman, K., & Weitzman, S. (2008). Skeletal langerhans cell histiocytosis in children: Permanent consequences and health-related quality of life in long-term survivors. Pediatric Blood and Cancer, 50, 607-612.

Oeffinger, D., Bagley, A., Rogers, S., Gorton, G., Kryscio, R., Abel, M., Damiano, D., Barnes, D., & Tylkowski, C. (2008). Outcome tools used for ambulatory children with cerebral palsy: Responsiveness and minimum clinically important differences. Developmental Medicine and Child Neurology, 50, 918-925.

Winner, P. (2008) Pediatric headache. Current Opinion in Neurology, 21, 316-322.

Chiang, Y.C., Hinds, P.S., Yeh, C.H., & Yang, C.P. (2008). Development and psychometric testing of a Chinese version of the fatigue scale-children in Taiwan. Journal of Clinical Nursing, 17, 1201-1210.

Chen, X., Origasa, H., Ichida, F., Kamibeppu, K., & Varni, J.W. (2007). Reliability and validity of the Pediatric Quality of Life Inventory™ (PedsQL™) Short Form 15 Generic Core Scales in Japan. Quality of Life Research, 16, 1239-1249.

Fullerton, G., Tyler, C., Johnston, C.A., Vincent, J.P., Harris, G.E., & Foreyt, J.P. (2007). Quality of life in Mexican-American children following a weight management program. Obesity, 15, 2553-2556.

Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Power, M., Duer, W., Auquier, P., Cloetta, B., Czemy, L., Mazur, J., Czimbalmos, A., Tountas, Y., Hagquist, C., & Kilreo, J. (2008). The Kidscreen-52 quality of life measure for children and adolescents. Psychometric results from a cross-sectional survey in 13 European countries. Value in Health, 11, 645-658.

Reinfjell, T., Lofstad, G.E., Veenstra, M., Vikan, A., & Diseth, T.H. (2007). Health-related quality of life and intellectual functioning in children in remission from acute lymphoblastic leukaemia. Acta Paediatrica, 96, 1280-1285.

Hill, C.D., Edwards, M.C., Thissen, D., Langer, M.M., Wirth, R.J., Burwinkle, T.M., & Varni, J.W. (2007). Practical issues in the application of item response theory: A demonstration using items from the Pediatric Quality of Life Inventory™ (PedsQL™) 4.0 Generic Core Scales. Medical Care, 45, S39-S47.

Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J.G., Russell, I.T., Jackson, S., & Jenney, M.E.M. (2008). Development of a parent version of the Manchester-Minneapolis quality of life survey for use by parents and carers of UK children. Health and Quality of Life Outcomes, 6:19.

Cuomo, A.V., Gamradt, S.C., Kim, C.O., Pirpiris, M., Gates, P.E., McCarthy, J.J. & Otsuka, N.Y. (2007). Health-related quality of life outcomes improve after multilevel surgery in ambulatory children with cerebral palsy. Journal of Pediatric Orthopaedics, 27, 653-657.

Gurney, J.G., Tersak, J.M., Ness, K.K., Landier, W., Matthay, K.K., & Schmidt, M.L. (2007). Hearing loss, quality of life, and academic problems in long-term neuroblastoma survivors: A report from the Children’s Oncology Group. Pediatrics, 120, e1229-e1236.

Josie, K.L., Greenley, R.N., & Drotar, D. (2007). Health-related quality of life measures for children with asthma: Reliability and validity of the Children’s Health Survey for Asthma and the Pediatric Quality of Life Inventory 3.0 Asthma Module. Annals of Allergy, Asthma and Immunology, 98, 218-224.

Holterman, A.X., Browne, A., Dillard, B.E., Tussing, L., Gorodner, V., Stahl, C., Browne, N., Labott, S., Herdegen, J., Guzman, G., Rink, A., Nwaffo, I., Galvani, C., Horgan, S., & Holterman, M. (2007). Short-term outcome in the first 10 morbidly obese adolescent patients in the FDA-approved trial for Laparoscopic adjustable gastric banding. Journal of Pediatric Gastroenterology and Nutrition, 45, 465-473.

Varni, J.W., Burwinkle, T.M., Limbers, C.A., & Szer, I.S. (2007). The PedsQL™ as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains. Health and Quality of Life Outcomes, 5:9, 1-12.

Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Literature review: Health-related quality of life measurement in pediatric oncology: Hearing the voices of the children. Journal of Pediatric Psychology, 32, 1151-1163.

Vetter, T.R. (2007). A primer on health-related quality of life in chronic pain medicine. Anesthesia and Analgesia, 104, 703-718.

Majnemer, A., Shevell, M., Rosenbaum, P., Law. M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. Journal of Pediatrics, 151, 470-475.

Laplant, M.M., Adams, B.S., Haftel, H.M., & Chervin, R.D. (in press). Insomnia and quality of life in children referred for limb pain. Journal of Rheumatology.

Bitsko, M.J., Stern, M., Dillon, R., Russell, E.C., & Laver, J. (in press). Happiness and time perspective as potential mediators of quality of life and depression in adolescent cancer. Pediatric Blood and Cancer.

Abresch, R.T., McDonald, D.A., Widman, L.M., McGinnis, K., & Hickey, K.J. (2007). Impact of spinal cord dysfunction and obesity on the health-related quality of life of children and adolescents. Journal of Spinal Cord Medicine, 30, S112-S118.

Janicke, D.M., Marciel, K.K., Ingerski, L.M., Novoa, W., Lowry, K.W., Sallinen, B.J., & Silverstein, J.H. (2007). Impact of psychosocial factors on quality of life in overweight youth. Obesity, 15, 1799-1807.

Murphy, H.R., Wadham, C. Rayman, G., & Skinner, T.C. (in press). Approaches to integrating paediatric diabetes care and structured education: Experiences from the Families, Adolescents, and Children’s Teamwork Study (FACTS). Diabetes Medicine.

Storch, E.A., Merlo, L.J., Lack, C., Milsom, V.A., Geffken, G.R., Goodman, W.K., & Murphy, T.K. (2007). Quality of life in youth with Tourette’s Syndrome and chronic tic disorder. Journal of Clinical Child and Adolescent Psychology, 36, 217-227.

Damiano, P.C., Tyler, M.C., Romitti, P.A., Momany, E.T., Jones, M.P., Canady, J.W., Karnell, M.P., & Murray, J.C. (2007). Health-related quality of life among preadolescent children with oral clefts: The mother’s perspective. Pediatrics, 120, e283-e290.

Cakin Memik, N., Agaoglu, B., Coskun, A.S., Uneri, O., & Karakaya, I. (2007) The validity and reliability of the Turkish Pediatric Quality of Life Inventory for children 13-18 years old. Turk Psikiyatri Derg (Turkish Journal of Psychiatry), 18, 353-363.

Packman, W., Henderson, S.L., Mehta, I., Ronen, R. Danner, D., Chesterman, B., & Packman, S. (2007). Psychosocial issues in families affected by maple syrup urine disease. Journal of Genetic Counseling,

Chung, P.J., Garfield, C.F., Elliott, M.N., Carey, C., Eriksson, C., & Schuster, M.A. (2007). Need for and use of family leave among parents of children with special health care needs. Pediatrics, 119, e1047-e1055.

Hankins, J., Hinds, P., Day, S., Carroll, Y., Li, C.S., Garvie, P., & Wang, W. (2007). Therapy preferences and decision-making among patients with severe sickle cell anemia and their families. Pediatric Blood and Cancer, 48, 705-710.

Hiscock, H., Canterford, L., Ukoumunne, O.C., & Wake, M. (2007). Adverse associations of sleep problems in Australian preschoolers: National population study. Pediatrics, 119, 865-93.

Berrin, S.J., Malcarne, V.L., Varni, J.W., Burwinkle, T.M., Sherman, S.A., Artavia, K., & Chambers, H.G. (2007). Pain, fatigue, and school functioning in children with cerebral palsy: A path-analytic model. Journal of Pediatric Psychology, 32, 330-337.

Laaksonen, C., Aromaa, M., Heinonen, O.J., Suominen, S., & Salantera, S. (2007). Pediatric health-related quality of life instrument for primary school children: Cross-cultural validation. Journal of Advanced Nursing, 59, 542-550.

Ingerski, L.M., Janicke, D.M., & Silverstein, J.H. (2007). Quality of life in overweight youth: The role of multiple informants and perceived social support. Journal of Pediatric Psychology, 32, 869-874.

Hughes, A.R., Farewell, K., Harris, D., & Reilly, J.J. (2007). Quality of life in a clinical sample of obese children. International Journal of Obesity, 31, 39-44.

Makari, J., Zaborskis, A., Labanauskas, L., & Rageliene, L. (2007). The quality of life of children suffering from oncologic diseases in Lithuania. Medicina, 43, 726-735.

Lai, J.S., Cella, D., Kupst, M.J., Holm, S., Kelly, M.E., & Bode, R.K. (2007). Measuring fatigue for children with cancer: Development and validation of the Pediatric Functional Assessment of Chronic Illness Therapy-Fatigue (pedsFACIT-F). Journal of Pediatric Hematology/Oncology, 29, 471-479.

de Wit, M., Delemarre-van de Waal, H.A., Pouwer, F., Gemke, R.J., & Snoek, F.J. (2007). Monitoring health-related quality of life in adolescents with diabetes: A review of measures. Archives of Disease in Childhood, 92, 434-439.

Tyler, C., Johnston, C.A., Fullerton, G., & Foreyt, J.P. (2007). Reduced quality of life in very overweight Mexican American adolescents. Journal of Adolescent Health, 40, 366-368.

Klaassen, R.J., Blanchette, V.S., Barnard, D., Wakefield, C.D., Curtis, C., Bradley, C.S., Neufeld, E.J., Buchanan, G.R., Silva, M.P., Chan, A.K., & Young, N.L. (2007). Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: The Kids’ ITP Tools. Pediatrics, 150, 510-515.

Flores, A., Alessandrini, E.A., Mattheuse-Kairys, M., Mistry, R., Fiks, A.G., & Kazak, A. (2007). Health related quality of life after an acute illness in emergency department (ED) and primary care (PC) settings. Pediatric Emergency Care, 23, 765-766.

Young, H.K., Lowe, A., Fitzgerald, D.A., Seton, C., Waters, K.A., Kenny, E., Hynan, L.S., Iannaccone, S.T., North, K.N., & Ryan, M.M. (2007). Outcome of noninvasive ventilation in children with neuromuscular disease. Neurology, 68, 198-201.

Talarska, D., & Zgorzalewicz-Stachowiak, M. (2007). The influence of selected factors on the quality of life of children with headaches. Advances Medical Science, 52, Suppl. 1, 123-125.

Wong, B.L., Hynan, L.S., & Iannaccone, S.T. (2007). A randomized, placebo-controlled trial of creatine in children with spinal muscular atrophy. Journal of Clinical Neuromuscular Disease, 8, 101-110.

Ravens-Sieberer, U., Auquier, P., Erhart, M., Gosch, A., Rajmil, L., Bruil, J., Power, M., Duer, W., Cloetta, B., Czemy, L., Mazur, J., Czimbalmos, A., Tountas, Y., Hagquist, C., & Kilroe, J. (2007). The Kidscreen-27 quality of life measure for children and adolescents: Psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research,

Robitail, S., Ravens-Sieberer, U., Simeoni, M.C., Rajmil, L., Bruil, J., Power, M., Duer, W., Cloetta, B., Czemy, L., Mazure, J., Czimbalmos, A., Tountas, Y., Hagquist, C., Kilroe, J., & Auquier, P. (2007). Testing the structural and cross-cultural validity of the Kidscreen-27 quality of life questionnaire. Quality of Life Research, .

Simenoni, M.C., Schmidt, S., Muehlan, H., Debensason, D., & Bullinger, M. (2007). Field testing of a European quality of life instrument for children and adolescents with chronic conditions: The 37-item Disabkids chronic generic module. Quality of Life Research, 16, 881-893.

Oeffinger, D., Gorton, G., Bagley, A., Nicholson, D., Barnes, D., Calmes, J., Abel, M., Damiano, D., Kryscio, R., Rogers, S. & Tylkowski, C. (2007). Outcome assessments in children with cerebral palsy. Part I: descriptive characteristics of GMFCS levels I to III. Developmental Medicine and Child Neurology, 49, 172-180.

Russo, R.N., Crotty, M., Miller, M.D., Murchland, S., Flett, P., & Haan, E. (2007). Upper-limb botulinum toxin A injection and occupational therapy in children with hemiplegic cerebral palsy identified from a population register: A single-blind, randomized, controlled trial. Pediatrics, 119, e1149-1158.

Chak, M.H., Rahi, J.S., & Bccig, B.C. (2007). The quality of life of children with congenital cataract: Findings of the British Congenital Cataract Study. British Journal of Ophthalmology, .

Stern, M., Mazzero, S.E., Gerke, C.K., Porter, J.S., Bean, M.K., & Laver, J.H. (2007). Gender, ethnicity, psychosocial factors, and quality of life among severely overweight, treatment-seeking adolescents. Journal of Pediatric Psychology, 32, 90-94.

Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J., Russell, I., Jackson, S., & Jenny, M. (in press). Adaptation of the Manchester-Minneapolis quality of life survey for use in the UK population. Archives of Disease in Childhood.

Hainsworth, K.R., Davies, W.H., Khan, K.A., & Weisman, S.J. (in press). Development and preliminary validation of the child activity limitations questionnaire: Flexible and efficient assessment of pain-related functional disability. Journal of Pain.

Dowie, R., Mistry, H., Young, T.A., Weatherburn, G.C., Gardiner, H.M., Rigby, M., Rowlinson, G.V., & Franklin R.C. (2007). Telemedicine in pediatric and perinatal cardiology: Economic evaluation of a service in English hospitals. International Journal of Technology Assessment in Health Care, 23, 116-125.

Bagley, A.M., Gorton, G., Oeffinger, D., Barnes, D., Calmes, J., Nicholson, D., Damiano, D., Abel, M., Kryscio, R., Rogers, S., & Tylkowski, C. (2007). Outcomes assessments in children with cerebral palsy. Part II: discriminatory ability of outcome tools. Developmental Medicine and Child Neurology, 49, 181-186.

deBeer, M., Hofsteenge, G.H., Koot, H., Hirasing, R., Delemarre-van de Waal, H., & Gemke, R. (2007). Health-related quality of life in obese adolescents is decreased and inversely related to BMI. Acta Paediatrica, .

Beijen, S.W., Snik, A.F., & Mylanus, E.A. (2007). Sound localization ability of young children with bilateral cochlear implants. Otology and Neurotology, 28, 479-485.

Barr, L., Thibeault, S.L., Muntz, H., & de Serres, L. (2007). Quality of life in children with velopharyngeal insufficiency. Archives of Otolaryngology and Head and Neck Surgery, 133, 224-229.

Brosig, C.L., Mussatto, K.A., Kuhn, E.M., & Tweddell, J.S. (2007). Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatric Cardiology, 28, 255-262.

Sullivan, E., Barnes, D., Linton, J.L., Calmes, J., Damiano, D., Oeffinger, D., Bagley, A.M., Gorton, G., Nicholson, D., Rogers, S., & Tylkowski, C. (2007). Relationships among functional outcomes measures used for assessing children with ambulatory CP. Developmental Medicine and Child Neurology, 49, 338-344.

Oladeji, O., Johnston, T.E., Smith, B.T., Mulcahey, M.J., Betz, R.R., & Lauer, R.T. (2007). Quality of life in children with spinal cord injury. Pediatric Physical Therapy, 19, 296-300.

Chiu, M.C., Ng, C.F., Lee, L.P., Lai, W.M., & Lau, S.C. (2007). Automated peritoneal dialysis in children and adolescents – benefits: A survey of patients and parents on health-related quality of life. Peritoneal Dialysis International, 27, S138-S142.

Varni, J.W., Lane, M.M., Burwinkle, T.M., Fontaine, E.N., Youssef, N.N., Schwimmer, J.B., Pardee, P.E., Pohl, J.F., & Easley, D.J. (2006). Health-related quality of life in pediatric patients with irritable bowel syndrome: A comparative analysis. Journal of Developmental and Behavioral Pediatrics, 27, 451-458.

Seid, M., Varni, J.W., Cummings, L., & Schonlau, M. (2006). The impact of realized access to care on health-related quality of life: A two-year prospective cohort study of children in the California State Children’s Health Insurance Program. Journal of Pediatrics, 149, 354-361.

Razzouk, B.I., Hord, J.D., Hockenberry, M., Hinds, P.S., Feusner, J., Williams, D., & Rackoff, W.R. (2006). Double-blind, placebo-controlled study of quality of life, hematologic endpoints, and safety of weekly epoetin alfa in children with cancer receiving myelosuppressive chemotherapy. Journal of Clinical Oncology, 24, 3583-3589.

Varni, J.W., & Burwinkle, T.M. (2006). The PedsQL™ as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder. Health and Quality of Life Outcomes, 4(26), 1-10.

Goldstein, S.L., Graham, N., Burwinkle, T.M., Warady, B., Farrah, R., & Varni, J.W. (2006). Health-related quality of life in pediatric patients with ESRD. Pediatric Nephrology, 21, 846-850.

McCarthy, M.L., Mackenzie, E.J., Durbin, D.R., Aitken, M.E., Jaffe, K.M., Paidas, C.N., Slomine, B.S., Dorsch, A.M., Christensen, J.R., & Ding, R. (2006). Health-related quality of life during the first year after traumatic brain injury. Archives of Pediatrics and Adolescent Medicine, 160, 252-260.

Connelly, M., & Rapoff, M.A. (2006). Assessing health-related quality of life in children with recurrent headache: Reliability and validity of the PedsQL 4.0 in a pediatric sample. Journal of Pediatric Psychology, 31, 698-702.

Sherman, S.A., Eisen, S., Burwinkle, T.M., & Varni, J.W. (2006). The PedsQL™ Present Functioning Visual Analogue Scales: Preliminary reliability and validity. Health and Quality of Life Outcomes, 4:75, 1-10.

Oddson, B.E., Clancy, C.A., & McGrath, P.J. (2006). The role of pain in reduced quality of life and depressive symptomology in children with spina bifida. Clinical Journal of Pain, 22, 784-789.

Hassan, K., Loar, R., Anderson, B.J., & Heptulla, R.A. (2006). The role of socioeconomic status, depression, quality of life, and glycemic control in type 1 diabetes mellitus. Journal of Pediatrics, 149, 526-531.

Meeske, K.A., Patel, S.K., Palmer, S.N., Nelson, M.B., & Parow. A.M. (2006). Factors associated with health-related quality of life in pediatric cancer survivors. Pediatric Blood and Cancer, .

Mah, J.K., Tough, S., Fung, T., Douglas-England, K., & Verhoef, M. (2006). Adolescent quality of life and satisfaction with care. Journal of Adolescent Health, 38, 607.e1-607.e7.

Zeller, M.H., Roehrig., H.R., Modi, A.C., & Inge, T.H. (2006). Health-related quality of life and depressive symptoms in adolescents with extreme obesity presenting for bariatric surgery. Pediatrics, 117, 1155-1161.

Felder-Puig, R., diGallo, A., Waldenmair, M., Norden, P., Winter, A., Gadner, H., & Topf, R. (2006). Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: Results of a longitudinal, multi-center study. Bone Marrow Transplantation, 38, 119-126.

Hays, R.M., Valentine, J., Haynes, G., Geyer, J.R., Villareale, N., McKinstry, B., Varni, J.W., & Churchill, S.S. (2006). The Seattle Pediatric Palliative Care Project: Effects on family satisfaction and health-related quality of life. Journal of Palliative Medicine, 9, 716-728.

Willis, C.D., Gabbe, B.J., Butt, W., & Cameron, P.A. (2006). Assessing outcomes in paediatric trauma populations. Injury, 37, 1185-1196.

Cremeens, J., Eiser, C., & Blades, M. (2006). Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 4:58.

Valenzuela, J.M., Patino, A.M., McCullough, J., Ring, C., Sanchez, J., Eidson, M., Nemery, R., & Delamater, A.M. (2006). Insulin pump therapy and health-related quality of life in children and adolescents with Type 1 diabetes. Journal of Pediatric Psychology, 31, 650-660.

Brunner, H.I., Taylor, J., Britto, M.T., Corcoran, M.S., Kramer, S.L., Melson, P.G., Kotagal, U.R., Graham, T.B., & Passo, M.H. (2006). Differences in disease outcomes between Medicaid and privately insured children: Possible health disparities in juvenile rheumatoid arthritis. Arthritis Care and Research, 55, 378-384.

Thomas, C., Mitchell, P., O’Rourke, P., & Wainwright, C. (2006). Quality of life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland. Journal of Pediatrics, 148, 508-516.

Ding, R., McCarthy, M.L., Houseknecht, E., Ziegfeld, S. Knight, V.M., Korehbandi, P., Parnell, D., & Klotz, P. (2006). The health-related quality of life of children with an extremity fracture: A one-year follow-up study. Journal of Pediatric Orthopedics, 26, 157-163.

Pirpiris, M., Gates, P.E., McCarthy, J.J., D’Astous, J., Tylkowksi, C., Sanders, J.O., Dorey, F.J., Ostendorff, S., Robles, G., Caron, C., & Otsuka, N.Y. (2006). Function and well-being in ambulatory children with cerebral palsy. Journal of Pediatric Orthopaedics, 26, 119-124.

Youssef, N.N., Murphy, T.G., Langseder, A.L., & Rosh, J.R. (2006). Quality of life for children with functional abdominal pain: A comparison study of patients’ and parents’ perceptions. Pediatrics, 117, 54-59.

Zeller, M.H., & Modi, A.C. (2006). Predictors of health-related quality of life in obese youth. Obesity Research, 14, 122-130.

Parekh, A.D., Trusler, L.A., Pietsch, J.B., Byrne, D.W., DeMarco, R.T., Pope, J.C., Adams, M.C., Deshpande, J.K., & Brock, J.W. (2006). Prospective, longitudinal evaluation of health related quality of life in the pediatric spina bifida population undergoing reconstructive urological surgery. Journal of Urology, 176, 1878-1882.

Riddle, R., Ryser, C.N., Morton, A.A., Sampson, J.D., Browne, R.H., Punaro, M.G., & Gatchel, R.J. (2006). The impact on health-related quality of life from non-steriodal anti-inflammatory drugs, methotrexate, or steroids in treatment for juvenile idiopathic arthritis. Journal of Pediatric Psychology, 31, 262-271.

Wysocki, T. and The Diabetes Research in Children Network Study Group. (2006). Psychological aspects of continuous glucose monitoring in pediatric type 1 diabetes. Pediatric Diabetes, 7, 32-38.

Kolotkin, R.L., Zeller, M., Modi, A.C. et al. (2006). Assessing weight-related quality of life in adolescents. Obesity, 14, 448-457.

Pinhas-Hamiel, O., Singer, S., Pilpel, N., Fradkin, A., Modan, D., & Reichman, B. (2006). Health-related quality of life among children and adolescents: Associations with obesity. International Journal of Obesity, 30, 267-272.

Slomine, B.S., McCarthy, M.L., Ding, R., Mackenzie, E.J., Jaffe, K.M., Aitken, M.E., Durbin, D.R., Christensen, J.R., Dorsch, A.M., & Paidas, C.N. (2006). Health care utilization and needs after pediatric traumatic brain injury. Pediatrics, .

Rudolf, M., Christie, D., McElhone, S., Sahota, P., Dixey, R., Walker, J., & Wellings, C. (2006). WATCH IT: A community based programme for obese children and adolescents. Archives of Disease in Childhood, 91, 736-739.

Grilli L., Feldman, D.E., Majnemer, A., Couture, M., Azoulay, L., & Swaine, B. (2006). Associations between a functional independence measure (WeeFIM) and the Pediatric Quality of Life Inventory (PedsQL 4.0) in young children with physical disabilities. Quality of Life Research, 15, 1023-1031.

James, M.A., Bagley, A.M., Brasington, K., Lutz, C., McConnell, S., & Molitor, F. (2006). Impact of prostheses on function and quality of life for children with unilateral congenital below-the-elbow deficiency. Journal of Bone and Joint Surgery, 88, 2356-2365.

Lau, K.M., Chow, S.M., & Lo, S.K. (2006). Parents’ perception of the quality of life of preschool children at risk or having developmental disabilities. Quality of Life Research,

Ismail, A., Campbell, M.J., Mohd Ibrahim, H., & Jones, G.L. (2006). Health-related quality of life in Malaysian children with thalassemia. Health and Quality of Life Outcomes, 4(1):39.

Favreau, A., Legendre, A., Bergoend, E. et al. (2006). Quality of life of patients with total cavopulmonary anastomosis. Arch Mal Coeur Vaiss, 99, 463-469.

Reinfjell, T., Diseth, T.H., Veenstra, M., & Vikan, A. (2006). Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 4:61.

Svavarsdottir, E.K. & Orlygsdottir, B. (2006). Health-related quality of life in Icelandic school children. Scandinavian Journal of Caring Sciences, 20, 209-215.

Svavarsdottir, E.K. & Orlygsdottir, B. (2006). Comparison of health-related quality of life among 10- to 12-year-old children with chronic illnesses and health children: The parents’ perceptive. Journal of School Nursing, 22, 178-185.

Stern, M., Mazzeo, S.E., Porter, J., Gerke, C., Bryan, D., & Laver, J. (2006). Self-esteem, teasing and quality of life: African American adolescent girls participating in a family-based pediatric overweight intervention. Journal of Clinical Psychology in Medical Settings, 13, 217-228.

Pohl, J.F., Anding, J., Wong, W., Grimes, R., Varni, J.W. et al. (2006). Pediatric obesity in Texas: Does the Texas Public School Nutrition Policy affect child nutrition? Texas Medicine, 102, 47-57

McKenna, A.M. Keating, L.E., Vigneux, A., Stevens, S., Williams, A., & Geary, D.F. (2006). Quality of life in children with chronic kidney disease: Patient and caregiver assessments. Nephrology, Dialysis, and Transplant, .

Young, N.L., Bradley, C.S., Wakefield, C.D., Barnard, D., Blanchette, V.S., & McCusker, P.J. (2006). How well does the Canadian Haemophilia Outcomes-Kids’ Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia? Pediatric Blood and Cancer, 47, 305-311.

Johnson, P., Thomas-Stonell, N., Rumney, P., & Oddson, B (2006). Long-term outcomes of pediatric acquired brain injury. Brain and Cognition, 60, 205-206.

Ungar, W.J., Mirabelli, C., Cousins, M., & Boydell, K.M. (2006). A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma. Social Science and Medicine, 63, 2354-2366.

Goyal, A., Williams, J.M., Kenny, S.E., Lwin, R., Baillie, C.T., Lamont, G.L., & Turnock, R.R. (2006). Functional outcome and quality of life in anorectal malformations. Journal of Pediatric Surgery, 41, 318-322.

Hicks, C.L., von Baeyer, C. L., & McGrath, P.J. (2006). Online psychological treatment of pediatric recurrent pain: A randomized evaluation. Journal of Pediatric Psychology, 31, 724-736.

McCarthy, M.L., MacKenzie, E.J., Durbin, D.R., Aitken, M.E., Jaffe, K.M., Paidas, C.N. et al. (2005). The Pediatric Quality of Life Inventory: An evaluation of its reliability and validity for children with traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 86, 1901-1909.

Mistry, R., Stevens, M.W., Gorelick, M.H. (2005). Validity and responsiveness of the PedsQL™ 4.0 for emergency department febrile illness. Pediatric Academic Societies, 57, 777.

Bhat, S.R., Goodwin, T.L., Burwinkle, T.M., Lansdale, M. F., Dahl, G.V., Huhn, S.L., Gibbs, I.C., Donaldson, S.S., Rosenblum, R.K., Varni, J.W., & Fisher, P.G. (2005). Profile of daily life in children with brain tumors: An assessment of health-related quality of life. Journal of Clinical Oncology, 23, 5493-5500.

Varni, J.W., Burwinkle, T.M., Sherman, S.A., Hanna, K., Berrin, S.J., Malcarne, V.L., & Chambers, H.G. (2005). Health-related quality of life of children and adolescents with cerebral palsy: Hearing the voices of the children. Developmental Medicine and Child Neurology, 47, 592-597.

Williams, J., Wake, M., Hesketh, K., Maher, E., & Waters, E. (2005). Health-related quality of life of overweight and obese children. JAMA (Journal of the American Medical Association), 293, 70-76.

Wigal, S.B., McGough, J.J., McCracken, J.T., Biederman, J. et al. (2005). A laboratory school comparison of mixed amphetamine salts extended release (Adderall XR®) and Atomoxetine (Strattera®) in school-aged children with Attention Deficit/Hyperactivity Disorder. Journal of Attention Disorders, 9, 275-289.

Mangione-Smith, R., Schonlau, M., Chan, K.S., Keesey, J., Rosen, M., Louis, T.A., & Keeler, E. (2005). Measuring the effectiveness of a collaborative for quality improvement in pediatric asthma care: Does implementing the chronic care model improve processes and outcomes of care? Ambulatory Pediatrics, 5, 75-82.

Hinds, R.S., Hockenberry, M., Feusner, J., Hord, J.D., Rackoff, W., & Rozzouk, B.J. (2005). Hemoglobin response and improvements in quality of life in anemic children with cancer receiving myelosuppressive chemotherapy. Journal of Supportive Oncology, 3, Suppl. 4, 10-11.

Bastiaansen, D., Koot, H.M., & Ferdinand, R.F. (in press). Psychopathology in children: Improvement of quality of life without psychiatric symptom reduction? European Child & Adolescent Psychiatry.

Bastiaansen, D., Koot, H.M., & Ferdinand, R.F. (2005). Determinants of quality of life in children with psychiatric disorders. Quality of Life Research, 14, 1599-1612.

Sawyer, M.G., Carbone, J.A., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2005). The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis: A one year prospective study. Quality of Life Research, 14, 1585-1598.

Chan, K.S., Keller, E., Schonlau, M., Rosen, M., & Mangione-Smith, R. (2005). How do ethnicity and primary language spoken at home affect management practices and outcomes in children and adolescents with asthma? Archives of Pediatrics and Adolescent Medicine, 159, 283-289.

Upton, P., Eiser, C., Cheung, I., Hutchings, H.A., Jenney, M., Maddocks, A., Russell, I.T., & Williams, J.G. (2005). Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales. Health and Quality of Life Outcomes, 3, 22:1-7.

Chan, L.F.P., Chow, S.M.K., & Lo, S.K. (2005). Preliminary validation of the Chinese version of the Pediatric Quality of Life Inventory. International Journal of Rehabilitation Research, 28, 219-227.

Powell, M., Seid, M., & Szer, I.S. (2005). Efficacy of custom foot orthotics in improving pain and functional status in children with juvenile idiopathic arthritis: A randomized trial. Journal of Rheumatology, 32, 943-950.

Brunner, H.I., Johnson, A.L., Barron, A.C., Passo, M.H., Griffin, T.A., Graham, T.B., & Lovell, D.J. (2005). Gastrointestinal symptoms and their association with health-related quality of life of children with juvenile rheumatoid arthritis: Validation of a gastrointestinal symptom questionnaire. Journal of Clinical Rheumatology, 11, 194-204.

Youssef, N.N. Langseder, A.L., Verga, B.J., Mones, R.L., & Rosh, J.R. (2005). Chronic childhood constipation is associated with impaired quality of life: A case-controlled study. Journal of Pediatric Gastroenterology and Nutrition, 41, 56-60.

Varni, J.W., Burwinkle, T.M., & Lane, M.M. (2005). Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health and Quality of Life Outcomes, 3:34, 1-9.

Seid, M., Yu, H., Lotstein, D., & Varni, J.W. (2005). Using health-related quality of life to predict and manage pediatric health care. Expert Review of Pharmacoeconomics and Outcomes Research, 5, 489-498.

Eiser, C., Davies, H., Jenney, M., Stride, C., & Glaser, A. (2005). HRQOL implications of treatment with dexamethasone for children with acute lymphoblastic leukemia (ALL). Pediatric Blood & Cancer.

Eiser, C., Vance, Y.H., Glaser, A., Glavin, H., Home, B., Picton, S., Stone, A., & Butler, G. (2005). Growth hormone treatment and quality of life among survivors of childhood cancer. Hormone Research, 63, 300-304.

Eiser, C., Eiser, J.R., & Stride, C.B. (2005). Quality of life in children newly diagnosed with cancer and their mothers. Health and Quality of Life Outcome, 3:29, 1-5.

Pongwilairat, K., Louthrenno, O., Charnsil, C., & Witoonchart, C. (2005). Quality of life of children with attention-deficit/hyperactivity disorder. Journal of the Medical Association of Thailand, 88, 1062-1066.

Rose, B.L., Mansour, M., & Kohake, K. (2005). Building a partnership to evaluate school-linked health services: The Cincinnati School Health Demonstration Project. Journal of School Health, 75, 363-369.

Chase, P. & Diabetes Research in Children Network (DirecNet) Study Group (2005). A randomized multicenter trial comparing the GlucoWatch Biographer with standard glucose monitoring in children with Type 1 diabetes. Diabetes Care, 28, 1101-1106.

Schwimmer, J.B., Middleton, M.S., Deutsch, R., & Lavine, J.E. (2005). A phase 2 trial of metformin as a treatment for non-diabetic pediatric non-alcoholic steatohepatitis. Alimentary Pharmacology & Therapeutics, 21, 871-879.

Casey, P.H., Szeto, K.L., Robbins, J.M., Stuff, J.E., Connell, C., Gossett, J.M., Simpson, P.M. (2005). Child health-related quality of life and household food security. Archives of Pediatric and Adolescent Medicine, 159, 51-56.

Moorthy, L.N., Harrison, M.J., Peterson, M., Onel, K.B. & Lehman, T.J. (2005). Relationship of quality of life and physical function measures with disease activity in children with systematic lupus erythematosus. Lupus, 14, 280-287.

Soo, I., Mah, J.K., Barlow, K., Hamiwka, L., & Wirrell, E. (2005). Use of complementary and alternative medical therapies in a pediatric neurology clinic. Canadian Journal of Neurological Sciences, 32, 524-528.

Upton, P., Maddocks, A., Eiser, C., Barnes, P.M., & Williams, J. (2005). Development of a measure of the health-related quality of life of children in public care. Child: Care, Health & Development, 31, 409-415.

Sheppard, L., Eiser, C., & Kingston, J. (2005). Mothers’ perceptions of children’s quality of life following early diagnosis and treatment for retinoblastoma (Rb). Child: Care, Health & Development, 31, 137-142.

Talarska, D. (2005). Quality of life in healthy children and in children with tension headaches – A comparative analysis. Rocz. Akad. Med. Bialymst, 50 Suppl. 1, 126-128.

Alpert, S.A., Cheng, E.Y., Zebold, K.F., & Kaplan, W.E. (2005). Clean intermittent catherization in genitally sensate children: Patient experience and health related quality of life. Journal of Urology, 174, 1616-1619.

Lindman, J.P., Lewis, L.S., Accortt, N., & Wiatrak, B.J. (2005). Use of the Pediatric Quality of Life Inventory to assess the health-related quality of life in children with recurrent respiratory papillomatosis. Ann. Otol. Rhinol. Laryngol., 114, 499-503.

Seid, M., & Varni, J.W. (2005). Measuring primary care for children of Latino farmworkers: Reliability and validity of the Parent’s Perceptions of Primary Care measure (P3C). Maternal and Child Health Journal, 9, 49-57.

Eiser, C., Eiser, J.R., Mayhew, A.G., & Gibson, A.T. (2005). Parenting the premature infant: Balancing vulnerability and quality of life. Journal of Child Psychology and Psychiatry, .

Biar, J.M., Johnson, M.P., Carr, M.C., Wilson, R.D., Hedrick, H.L., Pavlock, C., & Adzick, N.S. (2005). Long-term outcomes in children treated by prenatal vesicoamniotic shunting for lower urinary tract obstruction. Obstetrics and Gynecology, 106, 503-508.

Packman, W., Greenhalgh, J., Chesterman, B. et al. (2005). Siblings of pediatric cancer patients: The quantitative and qualitative nature of quality of life. Journal of Psychosocial Oncology, 23, 87-108.

Ribi, K., Relly, C., Landolt, M.A. (2005). Outcome of medulloblastoma in children: Long-term complications and quality of life. Neuropediatrics, 36, 357-365.

Meeske, K., Katz, E.R., Palmer, S.N., Burwinkle, T.M., & Varni, J.W. (2004). Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer, 101, 2116-2125.

Seid, M., Varni, J.W., Segall, D., & Kurtin, P.S. (2004). Health-related quality of life as a predictor of pediatric healthcare costs: A two-year prospective cohort analysis. Health and Quality of Life Outcomes, 2 (48), 1-10.

Sallee, F.R., Ambrosini, P.J., Lopez, F.A., Shi, L., & Michaels, M.A. (2004). Health-related quality of life and treatment satisfaction and preference in a community assessment study of extended-release mixed amphetamine salts for children with attention-deficit/hyperactivity disorder. Journal of Outcomes Research, 8, 27-49.

Razzouk, B.I., Hockenberry, M., Hinds, P.S., et al. (2004). Influence of hemoglobin response to epoetin alfa on quality of life in anemic children with cancer receiving myelosuppressive chemotherapy. Program and abstracts of the 46^th Annual Meeting of the American Society of Hematology; December 4-7, San Diego, California, Abstract 2218.

Youssef, N.N., Rosh, J.R., Loughran, M., Schuckalo, S.G., Cotter, A.N., Verga, B.G., & Mones, R.L. (2004). Treatment of functional abdominal pain in childhood with cognitive behavioral strategies. Journal of Pediatric Gastroenterology and Nutrition, 39, 192-196.

Varni, J.W., Sherman, S.A., Burwinkle, T.M., Dickinson, P.E., & Dixon, P. (2004). The PedsQL Family Impact Module: Preliminary reliability and validity. Health and Quality of Life Outcomes, 2 (55), 1-6.

Varni, J.W., Burwinkle, T.M., & Katz, E.R. (2004). The PedsQL in pediatric cancer pain. A prospective longitudinal analysis of pain and emotional distress. Journal of Developmental and Behavioral Pediatrics, 25, 239-246.

Bastiaansen, D., Koot, H.M., Bongers, I.L., Varni, J.W., & Verhulst, F.C. (2004). Measuring quality of life in children referred for psychiatric problems: Psychometric properties of the PedsQL 4.0 Generic Core Scales. Quality of Life Research, 13, 489-495.

Bastiaansen, D., Koot, H.M., Ferdinand, R.F., & Verhulst, F.C. (2004). Quality of life in children with psychiatric disorders: Self, parent, and clinician report. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 221-230.

Felder-Puig, R., Frey, E., Proksch, K., Varni, J.W., Gadner, H., & Topf, R. (2004). Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy. Quality of Life Research, 13, 223-234.

Varni, J.W., Burwinkle, T.M., Dickinson, P., Sherman, S.A., Dixon, P., Ervice, J.A., Leyden, P.A. & Sadler, B.L. (2004). Evaluation of the built environment at a Children’s Convalescent Hospital: Development of the Pediatric Quality of Life Inventory Parent and Staff Satisfaction Measures for pediatric health care facilities. Journal of Developmental and Behavioral Pediatrics, 25, 10-25.

Crabtree, V.M., Varni, J.W., & Gozal, D. (2004). Health-related quality of life and depressive symptoms in children with suspected sleep-disordered breathing. Sleep, 27, 1131-1138.

Poretti, A., Grotzer, M.A., Ribi, K., Schonle, E., & Boltshauser, E. (2004). Outcome of craniopharyngioma in children: Long-term complications and quality of life. Developmental Medicine and Child Neurology, 46, 220-229.

Brunner, H.I., Klein-Gitelman, M.S., Miller, M.J., Trombley, M., Baldwin, N., Kress, A., Johnson, A.L., Barron, A.C., Griffin, T.A., Passo, M.H., & Lovell, D.J.. (2004). Health of children with chronic arthritis: Relationship of different measures and the quality of parent proxy reporting. Arthritis Care and Research, 51, 763-773.

Sawyer, M.G., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2004). The relationship between health-related quality of life, pain, and coping strategies in juvenile idiopathic arthritis. Rheumatology, 43, 325-330.

Powers, S.W., Patton, S.R., Hommel, K.A., & Hershey, A.D. (2004). Quality of life in pediatric migraine: Characterization of age-related effects using PedsQL 4.0. Cephalalgia, 24, 120-127.

Friefeld, S., Yeboah, O., Jones, J.E., & DeVeber, G. (2004). Health-related quality of life and its relationship to neurological outcome in child survivors of stroke. CNS Spectrums, 9, 465-475.

Packman, W., Fine, J., Chesterman, B., vanZutphen, K., Golan, R., & Amylon, M.D. (2004). Camp Okizu: Preliminary investigation of a psychological intervention for siblings of pediatric cancer patients. Children’s Health Care, 33, 201-216.

De Clercq, B., De Fruyt, F., Koot, H.M., & Benoit, Y. (2004). Quality of life in children surviving cancer: A personality and multi-informant perspective. Journal of Pediatric Psychology, 29, 579-590.

Windle, M., Grunbaum, A., Elliott, M., Tortolero, S.R., Berry, S., Gilliland, J., Kanouse, D.E., Parcel, G.S., Wallander, J., Kelder, S., Collins, J., Kolbe, L., & Schuster, M. (2004). Healthy Passages: A multilevel, multimethod longitudinal study of adolescent health. American Journal of Preventive Medicine, 27, 164-172.

Eiser, C., Eiser, J.R., & Greco, V. (2004). Surviving childhood cancer: Quality of life and parental regulatory focus. Personality and Social Psychology Bulletin, 30, 123-133.

Curran, A.L., Miller, H.E., McCarter, R.J. et al. (2004). Health related quality of life and its determinants in head injured children 1 and 6 months after injury. Archives of Disease in Childhood, 89, A21.

Seid, M., Sobo, E.J., Gelhard, L.R., & Varni, J.W. (2004). Parents’ reports of barriers to care for children with special health care needs: Development and validation of the Barriers to Care Questionnaire. Ambulatory Pediatrics, 4, 323-331.

Sawyer, M.G., Reynolds, K.E., Couper, J.J., French, D.J., Kennedy, D., Martin, J., Staugas, R., Ziaian, T., & Baghurst, P.A. (2004). Health-related quality of life of children and adolescents with chronic illness: A two year prospective study. Quality of Life Research, 13, 1309-1319.

Schwimmer, J.B., Burwinkle, T.M., & Varni, J.W. (2003). Health-related quality of life of severely obese children and adolescents. JAMA (Journal of the American Medical Association), 289, 1813-1819.

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