PedsQL Publications

Del Rosario-Montejo, O., Molina-Rueda, F., Muñoz-Lasa, S., & Alguacil-Diego, I.M. (in press). Effectiveness of equine therapy in children with psychomotor impairment. Neurologia.

Ezon, D.S., Khan, M.S., Adachi, I., Jeewa, A., Morris, S.A., Nagy, C.Z., Morales, D.L., & Heinle, J.S. (2014). Pediatric ventricular assist device use as a bridge to transplantation does not affect long-term quality of life. Journal of Thoracic and Cardiovascular Surgery, 147, 1334-1343.

McStay, R.L., Dissanayake1, C., Scheeren, A., Koot, H.M., & Begeer, S. (in press). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism.

Ng, V., Nicholas, D., Dhawan, A., Yazigi, N., Ee, L., Stormon, M., Gilmour, S., Schreiber, R., Taylor, R., & Otley, A. (in press). Development and validation of the pediatric liver transplantation quality of life: A disease-specific quality of life measure for pediatric liver transplant recipients. Journal of Pediatrics.

Eagleson, K.J., Justo, R.N., Ware, R.S., Johnson, S.G., & Boyle, F.M. (in press). Health-related quality of life and congenital heart disease in Australia. Journal of Paediatrics and Child Health.

Lynch, F., Owen-Smith, A., Bent, S., Coleman, K., Yau, V., Pearson, K., Crawford, P., Massolo, M., Freiman, H., Pomichowski, M., & Croen, L. (2013) PS1-14: Health-related quality of life in children with Autism Spectrum Disorders: Findings from the Mental Health Research Network Autism Registry Web Survey. Clinical Medicine & Research, 11, 166.

Akdemir, D., Uzun, O., Pehlivantürk Özsungur, B, & Topçu, M. (in press). Health-related quality of life in adolescents with psychogenic nonepileptic seizures. Epilepsy & Behavior.

Soee, A.B., Skov, L., Skovgaard, L.T., & Thomsen, L.L. (in press). Headache in children: Effectiveness of multidisciplinary treatment in a tertiary paediatric headache clinic. Cephalalgia.

Hornsby, B.W., Werfel, K., Camarata, S., & Bess, F.H. (in press). Subjective fatigue in children with hearing loss: Some preliminary findings. American Journal of Audiology.

Hilliard, M.E., Lawrence, J.M., Modi, A.C., Anderson, A., Crume, T., Dolan, L.M., Merchant, A.T., Yi-Frazier, J.P., & Hood, K.K. (2013). Identification of minimal clinically important difference scores of the Pediatric Quality of Life Inventory in children, adolescents, and young adults with Type 1 and Type 2 diabetes. Diabetes Care, 36, 1891–1897.

Kulkarni, A.V., Piscione, J., Shams, I, & Bouffet, E. (in press). Long-term quality of life in children treated for posterior fossa brain tumors. Journal of Neurosurgery: Pediatrics.

Idorn, L., Jensen, A.S., Juul, K., Overgaard, D., Nielsen, N.P., Sørensen, K., Reimers, J.I., & Søndergaard, L. (in press). Quality of life and cognitive function in Fontan patients, a population-based study. International Journal of Cardiology.

Lu, P.L., Teich, S., Di Lorenzo, C., Skaggs, B., Alhajj, M., & Mousa, H.M. (2013). Improvement of quality of life and symptoms after gastric electrical stimulation in children with functional dyspepsia. Neurogastroenterology and Motility, 25, 567-574.

Huang, I.C., Anderson, M., Gandhi, P., Tuli, S., Krull, K., Lai, J.S., Nackashi, J., & Shenkman, E. (in press). The relationships between fatigue, quality of life, and family impact among children with special health care needs. Journal of Pediatric Psychology.

Demirdas, S., Maurice-Stam, H., Boelen, C.C., Hofstede, F.C., Janssen, M.C., Langendonk, J.G., Mulder, M.F., Rubio-Gozalbo, M.E., van Spronsen, F.J., de Vries, M., Grootenhuis, M.A., & Bosch, A.M. (in press). Evaluation of quality of life in PKU before and after introducing tetrahydrobiopterin (BH4): A prospective multi-center cohort study. Molecular Genetics and Metabolism.

van Litsenburg, R.R., Huisman, J., Pieters, R., Verhaak, C., Kaspers, G.J., & Gemke, R.J. (in press). Determinants of quality of life during induction therapy in pediatric acute lymphoblastic leukemia. Supportive Care in Cancer.

Jacob, E., Chan, V.W., Hodge, C., Zeltzer, L., Zurakowski, D., & Sethna, N.F. (in press). Sensory and thermal quantitative testing in children with sickle cell disease. Journal of Pediatric Hematology/Oncology.

Hao, W., Chorney, J.M., Bezuhly, M., Wilson, K., & Hong, P. (in press). Analysis of health-related quality-of-life outcomes and their predictive factors in pediatric patients who undergo otoplasty. Plastic and Reconstructive Surgery.

Barrera, M., Hancock, K., Rokeach, A., Cataudella, D., Atenafu, E., Johnston, D., Punnett, A., Nathan, P., Bartels, U., Silva, M., Cassidy, M., Jansen, P., Shama, W., & Greenberg. C. (in press). External validity and reliability of the psychosocial assessment tool (PAT) among Canadian parents of children newly diagnosed with cancer. Pediatric Blood & Cancer.

Tarbell, S.E., & Li, B.U. (in press). Health-related quality of life in children and adolescents with cyclic vomiting syndrome: A comparison with published data on youth with irritable bowel syndrome and organic gastrointestinal disorders. Journal of Pediatrics.

Jansen, P.W., Mensah, F.K., Clifford, S., Nicholson, J.M., & Wake, M. (in press). Bidirectional associations between overweight and health-related quality of life from 4-11 years: Longitudinal Study of Australian Children. International Journal of Obesity.

Angeles-Han, S.T., McCracken, C., Jenkins, K., Myoung, E., Stryker, D., Ponder, L., Stevens, K.R., Vogler, L.B., Kennedy, C., Yeh, S., Drews-Botsch, C., & Prahalad, S. (2014). The effects of youngsters' eyesight on quality of life as a measure of uveitis activity, visual function and vision related quality of life in childhood uveitis. Arthritis & Rheumatology, 66, Suppl 11, S61-62.

Johnston, D.L., Nagarajan, R., Caparas, M., Schulte, F., Cullen, P., Aplenc, R., & Sung, L. (2013). Reasons for Non-Completion of Health Related Quality of Life Evaluations in Pediatric Acute Myeloid Leukemia: A Report from the Children's Oncology Group. PLoS One, 6; 8(9):e74549.

Lukács, A., Varga, B., Kiss-Tóth, E., Soós, A., & Barkai, L. (in press). Factors influencing the diabetes-specific health-related quality of life in children and adolescents with type 1 diabetes mellitus. Journal of Child Health Care.

Pieper, P., & Garvan, C. (2014). Health-related quality of life in the first year following a childhood concussion. Brain Injury, 28, 105-113.

Ferracini, G.N., Dach, F., & Speciali, J.G. (2014). Quality of life and health-related disability in children with migraine. Headache, 54, 325-334.

Sritipsukho, P., & Mahasup, N. (2014). Correlations between gross motor functions and health-related quality of life in Thai children with spastic diplegia. Journal of the Medical Association of Thailand, 97, Suppl 8:S199-204.

Wang, C., Shang, L., Zhang, Y., Tian, J., Wang, B., Yang, X., Sun, L., Du, C., Jiang, X., & Xu, Y. (2013) Impact of functional constipation on health-related quality of life in preschool children and their families in Xi’an, China. PLoS ONE, 8(10): e77273.

Har, A.F., Rescorla, F.J., & Croffie, J.M. (2013). Quality of life in pediatric patients with unremitting constipation pre and post Malone Antegrade Continence Enema (MACE) procedure. Journal of Pediatric surgery, 48, 1733-1737.

Maskell, J., Newcombe, P., Martin, G., & Kimble, R. (in press). Psychosocial functioning differences in pediatric burn survivors compared with healthy norms. Journal of Burn Care & Research.

Khetani, M.A., Collett, B.R., Speltz, M.L., & Werler, M.M. (in press). Health-related quality of life in children with hemifacial microsomia: Parent and child Perspectives. Journal of Developmental and Behavioral Pediatrics.

Kashikar-Zuck, S., Zafar, M., Barnett, K.A., Aylward, B.S., Strotman, D., Slater, S.K., Allen, J.R., Lecates, S.L., Kabbouche, M.A., Ting, T.V., Hershey, A.D., & Powers, S.W. (in press). Quality of life and emotional functioning in youth with chronic migraine and juvenile fibromyalgia. Clinical Journal of Pain.

Burke, A. (2014). Zen Shiatsu: A longitudinal case study measuring stress reduction in a child with Autism Spectrum Disorder. International Journal of Therapeutic Massage & Bodywork, 2; 7(4):23-28.

De Grandis, E.S., Armelini, P.A., & Cuestas, E. (in press). Evaluation of quality of life in school children with a history of early severe malnutrition. Anales de Pediatría.

Poeta, L.S., Duarte, M.D., Giuliano, I.D., & Mota, J. (in press). Interdisciplinary intervention in obese children and impact on health and quality of life. Jornal de Pediatria.

Pratt, K.J., Lazorick, S., Lamson, A.L., Ivanescu, A., & Collier, D.N. (2013). Quality of life and BMI changes in youth participating in an integrated pediatric obesity treatment program. Health and Quality of Life Outcomes, 11(1):116.

Olesen JD, Kiddoo DA, Metcalfe PD. (2013). The association between urinary continence and quality of life in paediatric patients with spina bifida and tethered cord. Paediatrics & Child Health, 18, e32-38.

Lyon, M.E., Jacobs, S., Briggs, L., Cheng, Y.I., & Wang, J. (in press). A longitudinal, randomized, controlled trial of advance care planning for teens with cancer: Anxiety, depression, quality of life, advance directives, spirituality. Journal of Adolescent Health.

Saffari, M., Gholamrezaei, A., Saneian, H., Attari, A., & Bruni, O. (in press). Linguistic validation of the Sleep Disturbance Scale for Children (SDSC) in Iranian children with Persian language. Sleep Medicine.

Grano, C., Bucci, S., Aminoff, D, Lucidi, F., & Violani, C. (in press). Quality of life in children and adolescents with anorectal malformation. Pediatric Surgery International.

Grano, C., Bucci, S., Aminoff, D., Lucidi, F., & Violani, C. (in press). Does mothers' perception of social support mediate the relationship between fecal incontinence and quality of life of the child? Pediatric Surgery International.

Ringold, S., Ward, T.M., & Wallace, C. (2013). Disease activity and fatigue in juvenile idiopathic arthritis. Arthritis Care & Research, 65, 391–397.

Tham, S.W., Holley, A.L., Zhou, C., Clarke, G.N., & Palermo, T.M. (2013). Longitudinal course and risk factors for fatigue in adolescents: The mediating role of sleep disturbances. Journal of Pediatric Psychology, 38, 1070–1080.

Okano, Y., Kobayashi, K., Ihara, K., Ito, T., Yoshino, M., Watanabe, Y., Kaji, S., Ohura, T., Nagao, M., Noguchi, A., Mushiake, S., Hohashi, N., & Hashimoto-Tamaoki, T. (in press). Fatigue and quality of life in citrin deficiency during adaptation and compensation stage. Molecular Genetics and Metabolism.

Jones, S., Monagle, P., Manias, E., Bruce, A.A., & Newall, F. (in press). Quality of life assessment in children commencing home INR self-testing. Thrombosis Research.

Li, J., Yuan, L., Wu, Y., Luan, Y., & Hao, Y. (2013). The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) healthcare satisfaction generic module (version 3.0): Psychometric evaluation. Health and Quality of Life Outcomes, 11(1):113.

Terer, C.C., Bustinduy, A.L., Magtanong, R.V., Muhoho, N., Mungai, P.L., Muchiri, E.M., Kitron, U., King, C.H., & Mutuku, F.M. (in press). Evaluation of the health-related quality of life of children in schistosoma haematobium-endemic communities in Kenya: A cross-sectional study. PLoS Neglected Tropical Diseases, 7(3):e2106.

Sanchez, S.E., McAteer, J.P., Goldin, A.B., Horslen, S., Huebner, C.E., & Javid, P.J. (2013). Health-related quality of life in children with intestinal failure. Journal of Pediatric Gastroenterology and Nutrition, 57, 330–334.

Harder, L.L., Holland, A.A., Frohman, E., Graves, D., & Greenberg, B.M. (2013). Cognitive functioning in pediatric transverse myelitis. Multiple Sclerosis Journal, 19, 947-952.

Abdul-Sattar, A., Magd, S.A., & Negm, M.G. (in press). Associates of school impairment in Egyptian patients with juvenile idiopathic arthritis: Sharkia Governorate. Rheumatology International.

Nascimento Moraes, A., Ramos Ascenção Terreri, M.T., Esteves Hilário, MO, & Len, C.A. (2013). Health related quality of life of children with rheumatic heart diseases: Reliability of the Brazilian version of the Pediatric Quality of Life Inventory™ Cardiac Module scale. Health and Quality of Life Outcomes, 15; 11(1):198.

Smith, T.F., Russell, H.F., Kelly, E.H., Mulcahey, M.J., Betz, R.R., & Vogel, L.C. (in press). Examination and measurement of coping among adolescents with spinal cord injury. Spinal Cord.

Bianchini, J.A., da Silva, D.F., Nardo, C.C., Carolino, I.D., Hernandes, F., & Nardo Junior, N. (2013). Parent-proxy perception of overweight adolescents' health-related quality of life is different according to adolescent gender and age and parent gender. European Journal of Pediatrics, 172, 1371–1377.

Petersen, S., Moodie, M., Mavoa, H., Waqa, G., Goundar, R., & Swinburn, B. (in press). Relationship between overweight and health-related quality of life in secondary school children in Fiji: Results from a cross-sectional population based study. International Journal of Obesity.

Azar, M., Reuveny, R., Yalon, M., Koren, A., & Constantini, N. (in press). The effect of physical activity on the mental and physical health of childhood cancer survivors. British Journal of Sports Medicine.

Al-Uzri, A., Matheson, M., Gipson, D.S., Mendley, S.R., Hooper, S.R., Yadin, O., Rozansky, D.J., Moxey-Mims, M., Furth, S.L., Warady, B.A., & Gerson, A.C. (in press). The impact of short stature on health-related quality of life in children with chronic kidney disease. Journal of Pediatrics.

Carroll, D., Duffy, T., & Martin, C.R. (in press). Assessment of the quality of life of vulnerable young males with severe emotional and behaviour difficulties in a residential setting. Scientific World Journal.

Kiliś-Pstrusińska, K., Wasilewska, A., Medyńska, A., Bałasz-Chmielewska, I., Grenda, R., Kluska-Jóźwiak, A., Leszczyńska, B., Olszak-Szot, I., Miklaszewska, M., Szczepańska, M., Tkaczyk, M., Urzykowska, A., Zachwieja, K., Zajączkowska, M., Ziółkowska, H., Zagożdżon, I., & Zwolińska, D. (in press). Psychosocial aspects of children and families of children treated with automated peritoneal dialysis. Pediatric Nephrology.

Ainuddin, H.A., Loh, S.Y., Chinna, K., Low, W.Y., & Roslani, A.C. (in press). Psychometric properties of the self-report Malay version of the Pediatric Quality of Life (PedsQL™) 4.0 Generic Core Scales among multiethnic Malaysian adolescents. Journal of Child Health Care.

Dalton, W.T., Schetzina, K.E., McBee, M.T., Maphis, L., Fulton-Robinson, H., Ho, A.L., Tudiver, F., & Wu, T. (in press). Parent report of child's health-related quality of life after a primary-care-based weight management program. Childhood Obesity.

Lepeytre, C., De Lagausie, P., Merrot, T., Baumstarck, K., Oudyi, M., & Dubus, J.C. (in press). Medium-term outcome, follow-up, and quality of life in children treated for type III esophageal atresia. Archives de Pédiatrie.

Snyder Valier, A.R., Swank, E.M., Lam, K.C., Hansen, M.L., & Valovich McLeod, T.C. (2013). Comparison of patient and proxy reporting of health-related quality of life in adolescent athletes who suffer a sports-related injury and require orthopedic consultation. Journal of Sport Rehabilitation, 22, 248-253.

Broder, H.L., Norman, R.G., Sischo, L., & Wilson-Genderson, M. (in press). Evaluation of the similarities and differences in response patterns to the Pediatric Quality of Life Inventory and the Child Oral Health Impact Scores among youth with cleft. Quality of Life Research.

Isa, S.N., Aziz, A.A., Rahman, A.A., Ibrahim, M.I., Ibrahim, W.P., Mohamad, N., Othman, A, Rahman, N.A., Harith, S., & Van Rostenberghe, H. (in press). The impact of disabled children on parent health-related quality of life and family functioning in Kelantan and its associated factors. Journal of Developmental and Behavioral Pediatrics.

Johansen, H., Dammann, B., Andresen, I.L., & Fagerland, M.W. (in press). Health-related quality of life for children with rare diagnoses, their parents' satisfaction with life and the association between the two. Health and Quality of Life Outcomes.

Ruccione, K., Lu, Y., & Meeske, K. (in press). Adolescents' psychosocial health-related quality of life within 6 months after cancer treatment completion. Cancer Nursing.

Lukács, A., Kiss-Tóth, E., Varga, B., Soós, A., Takác, P., & Barkai, L. (in press). Benefits of continuous subcutaneous insulin infusion on quality of life. International Journal of Technology Assessment in Health Care.

Jalali-Farahani, S., Chin, Y.S., Amiri, P., & Mohd Taib, M.N. (in press). Body mass index (BMI)-for-age and health-related quality of life (HRQOL) among high school students in Tehran. Child: Care, Health and Development.

Puder, J., Pinto, A.M., Bonvin, A., Bodenman, P., Munsch, S., Kriemler, S., & Marques-Vidal, P. (in press). Health-related quality of life in migrant preschool children. BMC Public Health.

Smith, A.W., Bellizzi, K.M., Keegan, T.H.M., Zebrack, B., Chen, V., Neale, A.V., Hamilton, A.S., Shnorhavorian, M., & Lynch. C.F. (in press). Health-related quality of life of adolescent and young adult cancer patients in the United States: The AYA HOPE study. Journal of Clinical Oncology.

Hu, J., Jiang, L., Hong, S., Cheng, L., Kong, M., & Ye, Y. (2013). Reliability and validity of the Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) 3.0 Neuromuscular Module in children with Duchenne muscular dystrophy. Health and Quality of Life Outcomes, 11:47, 1-9.

Snyder, A.R., Swank, E.M., Lam, K.C., Hansen, M.L., & Valovich McLeod, T.C. (in press). Comparison of patient and proxy reporting of health-related quality of life in adolescent athletes who suffer a sports-related injury and require orthopaedic consultation. Journal of Sport Rehabilitation.

Song, B., Schulze, M., Goldschmidt, I., Haux, R., Baumann, U., & Marschollek, M. (2013). Home monitoring and decision support for international liver transplant children. Studies in Health Technology and Informatics, 192, 268-272.

Lam KC, Valier AR, Bay RC, McLeod TC. (2013). A unique patient population? Health-related quality of life in adolescent athletes versus general, healthy adolescent individuals. Journal of Athletic Training, 48, 233-241.

Flanagan, A., Kelly, E.H., & Vogel, L.C. (2013). Psychosocial outcomes of children and adolescents with early-onset spinal cord injury and those with Spina Bifida. Pediatric Physical Therapy, 25, 452–459.

Ezzahri, M., Amine, B., Rostom, S., Rifay, Y., Badri, D., Mawani, N., Gueddari, S., Shyen, S., Wabi, M., Moussa, F., Abouqal, R., Chkirate, B., & Hajjaj-Hassouni, N. (in press). The uveitis and its relationship with disease activity and quality of life in Moroccan children with juvenile idiopathic arthritis. Clinical Rheumatology.

Aldaqal, S.M., & Sehlo, M.G. (in press). Self-esteem and quality of life in adolescents with extreme obesity in Saudi Arabia: The effect of weight loss after laparoscopic sleeve gastrectomy. General Hospital Psychiatry.

Atilola, O., & Stevanovic, D. (in press). PedsQL™ 4.0 Generic Core Scales for adolescents in the Yoruba language: Translation and general psychometric properties. Clinical Child Psychology and Psychiatry.

Knibb, R.C., & Hourihane, J.O. (in press). The psychosocial impact of an activity holiday for young children with severe food allergy: A longitudinal study. Pediatric Allergy and Immunology.

Wallander, J.L., Kerbawy, S., Toomey, S., Lowry, R., Elliott, M.N., Escobar-Chaves, S.L., Franzini, L., & Schuster, M.A. (in press). Is obesity associated with reduced health-related quality of life in Latino, black and white children in the community? International Journal of Obesity.

Tupper, S.M., Rosenberg, A.M., Pahwa, P., & Stinson, J.N. (2013). Pain intensity variability and relationship with quality of life in youth with juvenile idiopathic arthritis. Arthritis Care & Research, 65, 563-570.

Green, L., Godfrey, C., Soo, C., Anderson, V., & Catroppa, C. (2013). A preliminary investigation into psychosocial outcome and quality-of-life in adolescents following childhood traumatic brain injury. Brain Injury, 27, 872-877.

Arslan, F.T., Basbakkal, Z., & Kantar, M. (2013). Quality of life and chemotherapy-related symptoms of Turkish cancer children undergoing chemotherapy. Asian Pacific Journal of Cancer Prevention, 14, 1761-1768.

Abu-Saad Huijer, H., & Sagherian, K., & Tamim, H. (2013). Quality of life and symptom prevalence as reported by children with cancer in Lebanon. European Journal of Oncology Nursing, 17, 704-710.

Ezzahri, M., Amine, B., Rostom, S., Badri, D., Mawani, N., Gueddari, S., Shyen, S., Wabi, M., Moussa, F., Abouqal, R., Chkirate, B., & Hajjaj-Hassouni, N. (in press). Factors influencing the quality of life of Moroccan patients with juvenile idiopathic arthritis. Clinical Rheumatology.

Yürümez, E., & Kiliç, B.G. (in press). Relationship between sleep problems and quality of life in children with ADHD. Journal of Attention Disorders.

Kurbet, S.B., Prashanth G.P., Patil, M.V., & Mane, S. (2013). A retrospective analysis of early experience with modified complete primary repair of exstrophy bladder (CPRE) in neonates and children. Indian Journal of Plastic Surgery, 46(3):549-54.

Mensah, F.K., Bayer, J.K., Wake, M., Carlin, J.B., Allen, N.B., & Patton, G.C. (in press). Early puberty and childhood social and behavioral adjustment. Journal of Adolescent Health.

Ul-Haq, Z., Mackay, D.F., Fenwick, E., & Pell, J.P. (in press). Meta-analysis of the association between body mass index and health-related quality of life among children and adolescents assessed using the Pediatric Quality of Life Inventory Index. Journal of Pediatrics.

Rivara, F.P., Vavilala, M.S., Dennis, D.R., Temkin, N.R., Wang, J., O'Connor, S., Koepsell, T., Dorsch, A, & Jaffe, K. (in press). Persistence of disability 24 to 36 months after pediatric traumatic brain injury: A cohort study. Journal of Neurotrauma.

Uzark, K., King, E., Spicer, R., Beekman, R., Kimball, T., & Varni, J.W. (2013). The clinical utility of health-related quality of life assessment in pediatric cardiology outpatient practice. Congenital Heart Disease, 8, 211-218.

Colville, G.A., & Pierce, C.M. (2013). Children's self-reported quality of life after intensive care treatment. Pediatric Critical Care Medicine, 14, e85–e92.

Lin, C.Y., Luh, W.M., Cheng, C.P., Yang, A.L., Su, C.T., & Ma, H.I. (2013). Measurement equivalence across child self-reports and parent-proxy reports in the Chinese version of the Pediatric Quality of Life Inventory Version 4.0. Child Psychiatry and Human Development, 44, 583–590.

Tsai, M.H., Hsu, J.F., Chou, W.J., Yang, C.P., Jaing, T.H., Hung, I.J., Liang, H.F., Huang, H.R., & Huang, Y.S. (in press). Psychosocial and emotional adjustment for children with pediatric cancer and their primary caregivers and the impact on their health-related quality of life during the first 6 months. Quality of Life Research.

Greenley, R.N., Kunz J.H., Schurman, J.V., & Swanson, E. (2013). Abdominal pain and health related quality of life in pediatric inflammatory bowel disease. Journal of Pediatric Psychology, 38, 63–71.

Hoffman, S., Lambert, M.C., Nelson, T.D., Trout, A.L., Epstein, M.H., & Pick, R. (in press). Confirmatory factor analysis of the PedsQL among youth in a residential treatment setting. Quality of Life Research.

Menezes, A.S., Len, C.A., Hilário, M.O., Terreri, M.T., & Braga, J.A. (2013). Quality of life in patients with sickle cell disease. Revista Paulista de Pediatria, 31, 24-29.

Ringlever, L., Otten, R., van Schayck, O.C., & Engels, R.C. (in press). The role of maternal illness perceptions in perceived asthma symptoms in school-aged children. Journal of Asthma.

Neul, S.K., Minard, C.G., Currier, H., & Goldstein, S.L. (2013). Health-related quality of life functioning over a 2-year period in children with end-stage renal disease. Pediatric Nephrology, 28, 285-293.

Gopinath, B., Baur, L.A., Burlutsky, G., & Mitchell, P. (in press). Adiposity adversely influences quality of life among adolescents. Journal of Adolescent Health.

O'Donnell, C.M., & Harvey, A.R. (in press). An outpatient low-intensity locomotor training programme for paediatric chronic incomplete spinal cord injury. Spinal Cord.

Mittal R, Sciberras E, Sewell J, Efron D. (in press). Assessment of children with learning and behavioural problems: Comparison of a multidisciplinary and sole paediatrician model. Journal of Paediatrics and Child Health.

Rachakonda, T., Jeffe, D.B., Shin, J.J., Mankarious, L., Fanning, R.J., Lesperance, M.M., & Lieu, J.E. (in press). Validity, discriminative ability and reliability of the hearing-related quality of life (HEAR-QL) questionnaire for adolescents. The Laryngoscope.

Golubović, S., & Skrbić, R. (2013). Agreement in quality of life assessment between adolescents with intellectual disability and their parents. Research in Developmental Disabilities, 34, 1863-1869.

Incledon, E., Gerner, B., Hay, M., Brennan, L., & Wake, M. (in press). Psychosocial predictors of 4-year BMI change in overweight and obese children in primary care. Obesity.

Pakpour, A., Zeidi, I., Hashemi, F., Saffri, M., & Burri, A. (2013). Health-related quality of life in young adult patients with rheumatoid arthritis in Iran: Reliability and validity of the Persian translation of the PedsQL™ 4.0 Generic Core Scales young adult version. Clinical Rheumatology, 32, 15-22.

Chan, C.M., & Wang, W.C. (2013). Quality of life in overweight and obese young Chinese children: A mixed-method study. Health and Quality of Life Outcomes, 6; 11(1):33.

Oberg, J.A., Bender, J.G., Morris, E., Harrison, L., Basch, C.E., Garvin, J.H., Sands, S.A., & Cairo, M.S. (in press). Pediatric allo-SCT for malignant and non-malignant diseases: Impact on health-related quality of life outcomes. Bone Marrow Transplantation.

Li, H.C., Williams, P.D., Williams, A.R., Chung, J.O., Chiu, S.Y., & Lopez, V. (in press). Confirmatory factor analysis of the Chinese version of the Pediatric Quality-of-Life Inventory Cancer Module. Cancer Nursing.

Nur Azurah, A.G., Sanci, L., Moore, E., & Grover, S. (in press). The quality of life of adolescents with menstrual problems. Journal of Pediatric and Adolescent Gynecology.

McGrath-Morrow, S.A., Ryan, T., Riekert, K., Lefton-Greif, M.A., Eakin, M., & Collaco, J.M. (in press). The impact of bronchopulmonary dysplasia on caregiver health related quality of life during the first 2 years of life. Pediatric Pulmonology.

Jafari, P., Bagheri, Z., Hashemi, S.Z., & Shalileh, K. (2013). Assessing whether parents and children perceive the meaning of the items in the PedsQL™ 4.0 quality of life instrument consistently: A differential item functioning analysis. Global Journal of Health Science, 5, 80-88.

Tofts, L.J., & Hamblin, N. (in press). C-Leg(R) improves function and quality of life in an adolescent traumatic trans-femoral amputee - a case study. Prosthetics and Orthotics International.

Abu-Saad Huijer, H., Sagherian, K., & Tamim, H. (2013). Quality of life and symptom prevalence in children with cancer in Lebanon: The perspective of parents. Annals of Palliative Medicine, 2, 59-70.

Uzark, K., Griffin, L., Rodriguez, R., Zamberlan, M., Murphy, P., Nasman, C., Dupuis, J., Rodgers, S., Limbers, C.A., & Varni, J.W. (2012). Quality of life in pediatric heart transplant recipients: A comparison to children with and without heart disease. Journal of Heart and Lung Transplantation, 31, 571-578.

Schuster, M.A., Elliott, M.N., Kanouse, D.E., Wallander, J.L., Tortolero, S.R., Ratner, J.A., Klein, D.J., Cuccaro, P.M., Davies, S.L., & Banspach, S.W. (2012). Racial and ethnic health disparities among fifth-graders in three cities. New England Journal of Medicine, 367, 735-745.

O’Keeffe, F., Ganesan, V., King, J., & Murphy, T. (2012). Quality-of-life and psychosocial outcome following childhood arterial ischaemic stroke. Brain Injury, 26, 1072–1083.

Rajendran, V., Roy, F.G., & Jeevanantham, D. (in press). A preliminary randomized controlled study on the effectiveness of vestibular-specific neuromuscular training in children with hearing impairment. Clinical Rehabilitation.

Wen J, Peng DX, Liu Y. (in press). Quality of life in children with short stature: An analysis using PedsQL. Zhongguo dang dai er ke za zhi (Chinese Journal of Contemporary Pediatrics). Article in Chinese.

Carroll, D., Duffy, T., & Martin, C.R. (in press). A comparison of the quality of life of vulnerable young males with severe emotional and behaviour difficulties in a residential setting and young males in mainstream schooling. Journal of Psychiatric and Mental Health Nursing.

Nedović, G., Marinković, D., Rapaić, D., Berat, S., & Kozomara, R. (2013). Health-related quality of life assessment in Serbian schoolchildren hospitalized for malignant disease. Vojnosanitetski Pregled, 70, 195-199.

Tahirović, H., Toromanović, A., Tahirović, E., & Begić, H. (2013). Impact of socioeconomic status on health-related quality of life in children with type 1 diabetes mellitus in Bosnia and Herze-Govina. Minerva Pediatrica, 65, 207-212.

Ebrahim, S., Singh, S., Hutchison, J.S., Kulkarni, A.V., Sananes, R., Bowman, K.W., & Parshuram, C.S. (in press). Adaptive behavior, functional outcomes, and quality of life outcomes of children requiring urgent ICU admission. Pediatric Critical Care Medicine.

Abdul-Rasoul, M., Alotaibi, F., Abdulla, A., Rahme, Z., & Alshawaf, F. (in press). Quality of life of children and adolescents with Type 1 diabetes in Kuwait. Medical Principles and Practice.

Wallander, J.L., Fradkin, C., Chien, A.T., Mrug, S., Banspach, S.W., Davies, S., Elliott, M.N., Franzini, L., & Schuster, M.A. (in press). Racial/ethnic disparities in health-related quality of life and health in children are largely mediated by family contextual differences. Academic Pediatrics.

Petersen, S., Mavoa, H., Swinburn, B., Waqa, G., Goundar, R., & Moodie, M. (in press). Health-related quality of life is low in secondary school children in Fiji. International Journal of Pediatrics.

Kose, S., Erermis, S., Ozturk, O., Ozbaran, B., Demiral, N., Bildik, T., & Aydin, C. (2013). Health related quality of life in children with Autism Spectrum Disorders: The clinical and demographic related factors in Turkey. Research in Autism Spectrum Disorders, 7, 213–220.

Saltık, S., & Başgül, S.S. (2013). Quality of life in children with neurofibromatosis type 1, based on their mothers' reports. Turkish Journal of Psychiatry, 24, 25-34.

Jiang, X., Sun, L., Wang, B., Yang, X., Shang, L., & Zhang, Y. (2013). Health-related quality of life among children with recurrent respiratory tract infections in Xi'an, China. PLoS One, 8(2): e56945.

Hansson, H., Kjaergaard, H., Johansen, C., Hallström, I., Christensen, J., Madsen, M., & Schmiegelow, K. (in press). Hospital-based home care for children with cancer: Feasibility and psychosocial impact on children and their families. Pediatric Blood & Cancer.

Kerkar, N., D’Urso, C., Van Nostrand, K., Kochin, I., Gault, A., Suchy, F., Miloh, T., Arnon, R., Chu, J., & Annunziato, R. (2013). Psychosocial outcomes for children with nonalcoholic fatty liver disease over time and compared with obese controls. Journal of Pediatric Gastroenterology & Nutrition, 56, 77–82.

Hsieh, R.L., Hsueh, Y.M., Huang, H.Y., Lin, M.I., Tseng, W.C., & Lee, W.C. (in press). Quality of life and impact of children with unclassified developmental delays. Journal of Paediatrics and Child Health.

Stephany, H.A., Juliano, T.M., Clayton, D.B., Tanaka, S.T., Thomas, J.C., Adams, M.C., Brock, J.W., & Pope, J.C. (in press). Prospective evaluation of sacral nerve modulation in children with validated questionnaires. Journal of Urology.

Kuhlthau, K.A., Pulsifer, M.B., Yeap, B.Y., Rivera Morales, D., Delahaye, J., Hill, K.S., Ebb, D., Abrams, A.N., Macdonald, S.M., Tarbell, N.J., & Yock, T.I. (in press). Prospective study of health-related quality of life for children with brain tumors treated with proton radiotherapy. Journal of Clinical Oncology.

Barber, S.E., Jackson, C., Akhtar, S., Bingham, D.D., Ainsworth, H., Hewitt, C., Richardson, G., Summerbell, C.D., Pickett, K.E., Moore, H.J., Routen, A.C., O Malley, C.L., Brierley, S., & Wright, J. ( in press). "Pre-schoolers in the playground" an outdoor physical activity intervention for children aged 18 months to 4 years old: study protocol for a pilot cluster randomised controlled trial. Trials.

Henricson, E., Abresch, R., Han, J.J., Nicorici, A., Goude Keller, E., de Bie, E., & McDonald, C.M. (in press). The 6-minute walk test and person-reported outcomes in boys with duchenne muscular dystrophy and typically developing controls: Longitudinal comparisons and clinically-meaningful changes over one year. PLoS Currents.

Quatman-Yates, C.C., Gupta, R., Paterno, M.V., Schmitt, L.C., Quatman, C.E., & Ittenbach, R.F. (in press). Internal consistency and validity of the QuickDASH instrument for upper extremity injuries in older children. Journal of Pediatric Orthopedics.

Roy K.M., Roberts, M.C., & Canter, K.S. (2013). Anomalies in measuring health-related quality of life: Using the PedsQL™ 4.0 with children who have peanut allergy and their parents. Applied Research Quality Life, 8, 511–518.

Cohen-Barak, E., Rozenman, D., & Shani Adir, A. (in press). Infantile haemangiomas and quality of life. Archives of Disease in Childhood.

Fano, V., Del Pino, M., Rodríguez Celin, M., Buceta. S., & Obregón, M.G. (2013). Osteogenesis imperfecta: Quality of life in children. Archivos Argentinos de Pediatría, 111, 328-331.

Bomba, M., Meini, A., Molinaro, A., Cattalini, M., Oggiano, S., Fazzi, E., Neri, F., Plebani, A., & Nacinovich, R. (in press). Body experiences, emotional competence, and psychosocial functioning in juvenile idiopathic arthritis. Rheumatology International.

Martinelli, D., Catteruccia, M., Piemonte, F., Pastore, A., Tozzi, G., Dionisi-Vici, C., Pontrelli, G., Corsetti, T., Livadiotti, S., Kheifets, V., Hinman, A., Shrader, W.D., Thoolen, M., Klein, M.B., Bertini, E., & Miller, G. (in press). EPI-743 reverses the progression of the pediatric mitochondrial disease-Genetically defined Leigh Syndrome. Molecular Genetics and Metabolism.

Cole, T., McKendrick, F., Titman, P., Cant, A.J., Pearce, M.S., Cale, C.M., Goldblatt, D., & Gennery, A.R. (in press). Health related quality of life and emotional health in children with chronic granulomatous disease: A comparison of those managed conservatively with those that have undergone haematopoietic stem cell transplant. Journal of Clinical Immunology.

Bout-Tabaku, S., Briggs, M.S., & Schmitt, L.C. (in press). Lower extremity pain is associated with reduced function and psychosocial health in obese children. Clinical Orthopaedics and Related Research.

An, K.J., Joung, Y.S., Sung, K.W., & Kim, J.H. (2013). Health-related quality of life and cognitive functioning at on- and off-treatment periods in children aged between 6-13 years old with brain tumors: A prospective longitudinal study. Yonsei Medical Journal, 54, 306-314.

Bazo, M., & Bailez, M. (2013). Health-related quality of life in children and adolescents undergoing surgery for Hirschsprung´s disease and anorectal malformations. Archivos Argentinos de Pediatría, 111, 37-44.

Uchida, K., Kawamata, A., Hashimoto, K., Inoue, M., Otake, K., Koike, Y., Matsushita, K., Fujikawa, H., Okita, Y., Araki, T., Tanaka, K., & Kusunoki, M. (in press). Self-reported assessment of health-related quality of life in children who underwent restorative proctocolectomy with ileal J-pouch anal anastomosis for ulcerative colitis. Pediatric Surgery International.

Bansal, M., Sharma, K.K., Vatsa, M., & Bakhshi, S. (in press). Comparison of health-related quality of life of children during maintenance therapy with acute lymphoblastic leukemia versus siblings and healthy children in India. Leukemia & Lymphoma.

Skrbić, R., Milankov, V., Veselinović, M., & Todorović, A. (2013). Impact of hearing impairment on quality of life of adolescents. Medicinski Pregled, 66, 32-39.

Zekry, O.A., Ahmed, M.A., Elsayed, H.A., & Elwahid, A. (2013). The impact of fatigue on health related quality of life in adolescents with benign joint hypermobility syndrome. The Egyptian Rheumatologist, 35, 77–85.

Litzelman, K., Barker, E., Catrine, K., Puccetti, D., Possin, P., & Witt, W.P. (in press). Socioeconomic disparities in the quality of life in children with cancer or brain tumors: The mediating role of family factors. Psycho-Oncology.

Finkelstein, E.A., Tan, Y.T., Malhotra, R., Lee, C.F., Goh, S.S., & Saw, S.M. (in press). A cluster randomized controlled trial of an incentive-based outdoor physical activity program. Journal of Pediatrics.

Park, C., Wethe, J.V., & Kerrigan, J.F. (2013). Decreased quality of life in children with hypothalamic hamartoma and treatment-resistant epilepsy. Journal of Child Neurology, 28, 50-55.

Slater, S.K., Kashikar-Zuck, S.M., Allen, J.R., Lecates, S.L., Kabbouche, M.A., O'Brien, H.L., Hershey, A.D., & Powers, S.W. (in press). Psychiatric comorbidity in pediatric chronic daily headache. Cephalalgia.

Wu, H.H., Li, H., & Gao, Q. (2013). Psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales among children with short stature. Health and Quality of Life Outcomes, 11:87.

Pakpour AH. (2013). Psychometric properties of the Iranian version of the Pediatric Quality of Life Inventory™ Short Form 15 Generic Core Scales. Singapore Medical Journal, 54, 309-314.

Castello, F., Louis, B., Cheng, J., Armento, M., & Santos, A.M. (in press). The use of functional electrical stimulation cycles in children and adolescents with spinal cord dysfunction: A pilot study. Journal of Pediatric Rehabilitation Medicine.

Choi, L.J., & Huang, J.S. (2013). A pilot study of s-adenosylmethionine in treatment of functional abdominal pain in children. Alternative Therapies in Health and Medicine, 19, 61-64.

Garcia Guerra, G., Robertson, C.M., Alton, G.Y., Joffe, A.R., Dinu, I.A., Nicholas, D., Ross, D.B., & Rebeyka, I.M. (in press). Quality of life 4 years after complex heart surgery in infancy. Journal of Thoracic and Cardiovascular Surgery.

Kelly, E.H., Klaas, S.J., Garma, S., Russell, H.F., & Vogel, L.C. (in press). Participation and quality of life among youth with spinal cord injury. Journal of Pediatric Rehabilitation Medicine.

Yeung, N.C., Lau, J.T., Yu, X.N., Chu, Y., Shing, M.M., Leung, T.F., Li, C.K., Fok, T.F., & Mak, W.W. (in press). Psychometric properties of the Chinese Version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales among pediatric cancer patients. Cancer Nursing.

Durmaz Y, Alayli G, Canbaz S, Zahiroglu Y, Bilgici A, Ilhanli I, Kuru O. (2013). Prevalence of juvenile fibromyalgia syndrome in an urban population of Turkish adolescents: Impact on depressive symptoms, quality of life and school performance. Chinese Medical Journal, 126, 3705-3711.

Kim, H.S. Park, J., Ma, Y., & Ham, O.K, (2013). Factors influencing health-related quality of life of overweight and obese children in South Korea. Journal of School Nursing, 29, 361-369.

Koren, EV, Stepunina NE. (2013). Influence of psychosocial therapy on funcioning of adolescents with schizophrenia spectrum disorders (a pilot study). Zh Nevrol Psikhiatr Im S Korsakova, 113, 54-58. (Russian).

Ayoub, M.D., Radi, S.A., Azab, A.M., Abulaban, A.A., Balkhoyor, A.H., Bedair, S.W., Aljaouni, S.K., & Kari, J.A. (2013). Quality of life among children with beta-thalassemia major treated in Western Saudi Arabia. Saudi Medical Journal, 34, 1281-1286.

Lawrence, J.M., Yi-Frazier, J.P., Black, M.H., Anderson, A., Hood, K., Imperatore, G., Klingensmith, G.J., Naughton, M., Mayer-Davis, E.J., & Seid, M. (2012). Demographic and clinical correlates of diabetes-related quality of life among youth with type 1 diabetes. Journal of Pediatrics, 161, 201-207.

Tarakci, E., Yeldan, I., Baydogan, S.N., Olgar, S., & Kasapcopur, O. (in press). Efficacy of a land-based home exercise programme for patients with juvenile idiopathic arthritis: A randomized, controlled, single-blind study. Journal of Rehabilitation Medicine.

Alba, A., Uribe, M., Hunter, B., Monzón, P., Ferrada, C., Heine, C., & Auad, H. (2013). Health-related quality of life after pediatric liver transplant: Single-center experience in Chile. Transplantation Proceedings, 45, 3728-3730.

Kul, M., Cengel Kültür, E., Senses Dinç, G., Bilginer, Y., Uluç, S., & Baykan, H. (2013). Quality of life in children and adolescents with chronic kidney disease: A comparative study between different disease stages and treatment modalities. Turkish Journal of Pediatrics, 55, 493-499.

Young, N.L., Wakefield, C., Burke, T.A., Ray, R., McCusker, P.J., & Blanchette, V. (2013). Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0). Value in Health, 16, 837-841.

Abdul-Rasoul, M., AlOtaibi, F., AlMahdi, M., & AlKandari, H. (2012). Reliability and validity of the Arabic version of the PedsQL™ 4.0 Generic Core Scales and PedsQL™ 3.0 Diabetes Module. Journal of Diabetes Mellitus, 2, 301-307.

Swanson, J.O., Vavilala, M.S., Wang, J., Pruthi, S., Fink, J., Jaffe, K.M., Durbin, D., Koepsell, T., Temkin, N., & Rivara, F.P. (2012). Association of initial CT findings with quality-of-life outcomes for traumatic brain injury in children. Pediatric Radiology, 42, 974–981.

Sand, P., Kljajić, M., Schaller, J., & Forsander, G. (2012). The reliability of the health related quality of life questionnaire PedsQL 3.0 Diabetes Module for Swedish children with Type 1 diabetes. Acta Paediatrica, 101, e344–e349.

Turco, G., Bobbio, T., Reimão, R., Rossini, S., Pereira, H., & Barros Filho, A. (in press). Quality of life and sleep in obese adolescents. Arquivos de Neuro-Psiquiatria.

Cohen, E., Mahant, S., Dell, S.D., Traubici, J., Ragone, A., Wadhwa, A., Connolly, B., & Weinstein, M. (in press). The long-term outcomes of pediatric pleural empyema: A prospective study. Archives of Pediatrics & Adolescent Medicine.

Mazaheri, M.M., Rae-Seebach, R.D., Preston, H.E., Schmidt, M., Field, N., Cassidy, S., & Packman, W. (in press). The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment. Journal of Intellectual Disability Research.

Menteer, J., Beas, V.N., Chang, J.C., Reed, K., & Gold, J.I. (in press). Mood and health-related quality of life among pediatric patients with heart failure. Pediatric Cardiology.

Gopinath, B., Hardy, L.L., Baur, L.A., Burlutsky, G., & Mitchell, P. (in press). Physical activity and sedentary behaviors and health-related quality of life in adolescents. Pediatrics.

Lin, C.Y., Su, C.T., Der Wang, J., & Ma, H.I. (in press). Self-rated and parent-rated quality of life (QoL) for community-based obese and overweight children. Acta Paediatrica.

Kuhl, E.S., Rausch, J.R., Varni, J.W., & Stark, L.J. (2012). Impaired health-related quality of life in preschoolers with obesity. Journal of Pediatric Psychology, 37, 1148-1156.

Vetter, T.R., Bridgewater, C.L., & McGwin, G. (2012). An observational study of patient versus parental perceptions of health-related quality of life in children and adolescents with a chronic pain condition: Who should the clinician believe? Health and Quality of Life Outcomes, 10:85, 1-12.

Gordijn, M.S., van Litsenburg, R.R., Gemke, R.J., Huisman, J., Bierings, M.B., Hoogerbrugge, P.M., & Kaspers, G.J. (in press). Sleep, fatigue, depression, and quality of life in survivors of childhood acute lymphoblastic leukemia. Pediatric Blood & Cancer.

Sysko, R., Devlin, M.J., Hildebrandt, T.B., Brewer, S.K., Zitsman, J.L., & Walsh, B.T. (2012). Psychological outcomes and predictors of initial weight loss outcomes among severely obese adolescents receiving laparoscopic adjustable gastric banding. Journal of Clinical Psychiatry, 73, 1351-1357.

Sikora, D.M., Vora, P., Coury, D.L., & Rosenberg, D. (2012). Attention-deficit/hyperactivity disorder symptoms, adaptive functioning, and quality of life in children with autism spectrum disorder. Pediatrics, 130 Suppl 2, S91-97.

Tantilipikorn, P., Watter, P., & Prasertsukdee, S. (in press). Comparison between utility of the Thai Pediatric Quality of Life Inventory 4.0 Generic Core Scales and 3.0 Cerebral Palsy Module. International Journal of Rehabilitation Research.

Apers, S., Luyckx, K., Rassart, J., Goossens, E., Budts, W., & Moons, P. (in press). Sense of coherence is a predictor of perceived health in adolescents with congenital heart disease: A cross-lagged prospective study. International Journal of Nursing Studies.

Tian, W., Jia, Z., Duan, G., Liu, W., Pan, X., Guo, Q., Chen, R., & Zhang, X. (in press). Longitudinal study on health-related quality of life among child and adolescent survivors of the 2008 Sichuan earthquake. Quality of Life Research.

Omori, C.H., Silva, C.A., Sallum, A.M., Pereira, R.M., Sá-Pinto, A.L., Roschel, H., & Gualano, B. (in press). Exercise training in juvenile dermatomyositis. Arthritis Care & Research.

Park, K.S., Cho, M.H., Ha, I.S., Kang, H.G., Cheong, H.I., Park, Y.S., Lee, J.H., Lee, Y.J., & Cho, H.Y. (in press). Validity and reliability of the Korean version of the Pediatric Quality of Life ESRD Module. Health and Quality of Life Outcomes.

Stevanovic, D., & Susic, G. (in press). Health-related quality of life and emotional problems in juvenile idiopathic arthritis. Quality of Life Research.

Seid, M., D’Amico, E.J., Varni, J.W., Munafo, J., Britto, M., Kercsmar, C., Drotar, D., King, E., & Darbie, L. (2012). The In Vivo adherence intervention for at risk adolescents with asthma: Report of a randomized pilot trial. Journal of Pediatric Psychology, 37, 390-403.

Haverman, L., Grootenhuis, M.A., van den Berg, J.M., van Veenendaal, M., Dolman, K.M., Swart, J.F., Kuijpers, T.W., & van Rossum, M.A. (in press). Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web-based survey. Arthritis Care & Research.

French, A.E., Tsangaris, E., Barrera, M., Guger, S., Brown, R., Urbach, S., Stephens, D., & Nathan, P.C. (in press). School attendance in childhood cancer survivors and their siblings. Journal of Pediatrics.

Limbers, C.A., Emery, K., & Uzark, K. (in press). Factors associated with perceived cognitive problems in children and adolescents with congenital heart disease. Journal of Clinical Psychology in Medical Settings.

Park, K.S., Hwang, Y.J., Cho, M.H., Ko, C.W., Ha, I.S., Kang, H.G., Cheong, H.I., Park, Y.S., Lee, Y.J., Lee, J.H., & Cho, H.Y. (in press). Quality of life in children with end-stage renal disease based on a PedsQL ESRD module. Pediatric Nephrology.

Verberne, L.M., Maurice-Stam, H., Grootenhuis, M.A., Van Santen, H.M., Schouten-Van Meeteren, A.Y. (2012). Sleep disorders in children after treatment for a CNS tumour. Journal of Sleep Research, 21, 461-469.

Khodaverdi, F., Bahram, A., & Jafarabadi, M.A. (2012). Quality of life, motor ability, and weight status among school-aged children of Tehran. Iranian Journal of Public Health, 41, 97-102.

Olieman, J.F., Penning, C., Poley, M.J., Utens, E.M., Hop, W.C., & Tibboel, D. (2012). Impact of infantile short bowel syndrome on long-term health-related quality of life: A cross-sectional study. Journal of Pediatric Surgery, 47, 1309-1316.

Legrand, C., Michaud, L., Salleron, J., Neut, D., Sfeir, R., Thumerelle, C., Bonnevalle, M., Turck, D., & Gottrand, F. (in press). Long-term outcome of children with oesophageal atresia type III. Archives of Disease in Childhood.

Ng, V.L., Alonso, E.M., Bucuvalas, J.C., Cohen, G., Limbers, C.A., Varni, J.W., Mazariegos, G., Magee, J., McDiarmid, S.V., & Anand, R. (2012). Health status of children alive 10 years after pediatric liver transplantation performed in the US and Canada: Report of the Studies of Pediatric Liver Transplantation experience. Journal of Pediatrics, 160, 820-826.

Mohammad, S., Hormaza, L., Neighbors, K., Boone, P., Tierney, M., Azzam, R. K., Butt, Z., & Alonso, E.M. (2012). Health status in young adults two decades after pediatric liver transplantation. American Journal of Transplantation, 12, 1486–1495.

Tomlinson, D., Hinds, P.S., Ethier, M.C., Ness, K.K., Zupanec, S., & Sung, L. (in press). Psychometric properties of instruments used to measure fatigue in children and adolescents with cancer: A systematic review. Journal of Pain and Symptom Management.

Goldstein N.A., Stefanov, D.G., Graw-Panzer, K.D., Fahmy, S.A., Fishkin, S., Jackson, A., Sarhis, J.S., & Weedon J. (in press). Validation of a clinical assessment score for pediatric sleep-disordered breathing. Laryngoscope.

Jensen, C.D., & Steele, R.G. (2012). Longitudinal associations between teasing and health-related quality of life among treatment-seeking overweight and obese youth. Journal of Pediatric Psychology, 37, 438–447.

Lundberg, V., Lindh, V., Eriksson, C., Petersen, S., & Eurenius, E. (2012). Health-related quality of life in girls and boys with juvenile idiopathic arthritis: Self- and parental reports in a cross-sectional study. Pediatric Rheumatology Online Journal, 10(1):33.

Rhodes, E.T., Goran, M.I., Lieu, T.A., Lustig, R.H., Prosser, L.A., Songer, T.J., Weigensberg, M.J., Weinstock, R.S., Gonzalez, T., Rawluk, K., Zoghbi, R.M., Ludwig, D.S., & Laffel, L.M. (2012). Health-related quality of life in adolescents with or at risk for Type 2 diabetes mellitus. Journal of Pediatrics, 160, 911-917.

Parrish, J.B., Weinstock-Guttman, B., Smerbeck, A., Benedict, R.H., & Yeh, E.A. (2013). Fatigue and depression in children with demyelinating disorders. Journal of Child Neurology, 28, 713-718.

Claar, R.L., Kaczynski, K.J., Minster, A., McDonald-Nolan, L., & Lebel, A.A. (in press). School functioning and chronic tension headaches in adolescents: Improvement only after multidisciplinary evaluation. Journal of Child Neurology.

Danansuriya, M.N., & Rajapaksa, L.C. (2012). Psychometric properties of the Sinhala version of the PedsQL™ 4.0 Generic Core Scales in early adolescents in Sri Lanka. Health and Quality of Life Outcomes, 10:105.

Poon, J.L., Zhou, Z.Y., Doctor, J.N., Wu, J., Ullman, M.M., Ross, C., Riske, B., Parish, K.L., Lou, M., Koerper, M.A., Gwadry-Sridhar, F., Forsberg, A.D., Curtis, R.G., & Johnson, K.A. (in press). Quality of life in Haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va). Haemophilia.

Pohl, J.F., Limbers, C.A., Kay, M., Harman, A., Rollins, M., & Varni, J.W. (2012). Health-related quality of life in pediatric patients with long-standing pancreatitis. Journal of Pediatric Gastroenterology & Nutrition, 54, 657-663.

Franciosi, J.P., Hommel, K.A., DeBrosse, C.W., Greenberg, A.B., Greenler, A.J., Abonia, J.P., Rothenberg, M.E., & Varni, J.W. (2012). Quality of life in paediatric eosinophilic esophagitis: What is important to patients? Child: Care, Health & Development, 38, 477-483.

Schlenz, A.M., Schatz, J., McClellan, C.B., & Roberts, C.W. (2012). Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric Sickle Cell Disease. Journal of Pediatric Psychology, 37, 798-807.

Mahrer, N.E., Montaño, Z., & Gold, J.I. (2012). Relations between anxiety sensitivity, somatization, and health-related quality of life in children with chronic pain. Journal of Pediatric Psychology, 37, 808-816.

Pratt, K.J., Lamson, A.L., Swanson, M.S., Lazorick, S., & Collier, D.N. (2012). The importance of assessing for depression with HRQOL in treatment seeking obese youth and their caregivers. Quality of Life Research, 21, 1367–1377.

Quach, J., Hiscock, H., & Wake, M. (in press). Sleep problems and mental health in primary school new entrants: Cross-sectional community-based study. Journal of Paediatrics and Child Health.

Beri, A., & Rajendran, V. (2012). Reliability of PedsQL Neuromuscular module in assessing health related quality of life in children with Down syndrome. International Journal of Therapies and Rehabilitation Research, 1, 6-11.

Chaudhry, Z., & Siddiqui, S. (2012). Health related quality of life assessment in Pakistani paediatric cancer patients using PedsQL™ 4.0 Generic Core Scale and PedsQL™ Cancer Module. Health and Quality of Life Outcomes, 18; 10(1):52.

Demuth, S.K., Knutson, L.M., & Fowler, E.G. (in press). The PEDALS stationary cycling intervention and health-related quality of life in children with cerebral palsy: A randomized controlled trial. Developmental Medicine and Child Neurology.

Ardon, M.S., Selles, R.W., Roebroeck, M.E., Hovius, S.E., Stam, H.J., & Janssen, W.G. (in press). Poor agreement on health-related quality of life between children with congenital hand differences and their parents. Archives of Physical Medicine and Rehabilitation.

Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N., Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (in press). Factors influencing self- and parent-reporting health-related quality of life in children with brain tumors. Quality of Life Research.

Czosek, R.J., Bonney, W.J., Cassedy, A., Mah, D.Y., Tanel, R.E., Imundo, J.R., Singh, A.K., Cohen, M.I., Miyake, C.Y., Fawley, K., & Marino, B.S. (in press). Impact of cardiac devices on the quality of life in pediatric patients. Circulation. Arrhythmia and Electrophysiology.

Peterson, C.C., Cousino, M.K., Donohue, J.E., Schmidt, M.L., & Gurney, J.G. (2012). Discordant parent reports of family functioning following childhood neuroblastoma: A report from the Children's Oncology Group. Journal of Psychosocial Oncology, 30, 503-518.

Oriel, K.N., Marchese, V.G., Shirk, A., Wagner, L., Young, E., & Miller, L. (2012). The psychosocial benefits of an inclusive community-based aquatics program. Pediatric Physical Therapy, 24, 361-367.

Klaassen, R.J., Blanchette, V., Burke, T.A., Wakefield, C., Grainger, J.D., Gaedicke, G., Riedlinger, A., Dufort, G., Citrin, E., Reguerre, Y., Pellier, I., Curtis, C., & Young, N.L. (in press). Quality of life in childhood immune thrombocytopenia: International validation of the kids' ITP tools. Pediatric Blood & Cancer.

Robert, R.S., Paxton, R.J., Palla, S.L., Yang, G., Askins, M.A., Joy, S.E., & Ater, J.L. (in press). Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales, Cancer Module, and Multidimensional Fatigue Scale in long-term adult survivors of pediatric cancer. Pediatric Blood & Cancer.

Castro, T.M., Marinho, D.R., & Cavalcante, C.C. (2013). The impact of environmental factors on quality of life and symptoms of children with allergic rhinitis. Brazilian Journal of Otorhinolaryngology, 79, 569-574.

Dolgun, E., Yavuz, M., Celik, A., & Ergün, M.O. (2013). The effects of constipation on the quality of life of children and mothers. Turkish Journal of Pediatrics, 55, 180-185.

Buck, D. (2012). The PedsQL™ as a measure of parent-rated quality of life in healthy UK toddlers: Psychometric properties and cross-cultural comparisons. Journal of Child Health Care, 16, 331-338.

Kashikar-Zuck, S., Ting, T.V., Arnold, L.M., Bean, J., Powers, S.W., Graham, T.B., Passo, M.H., Schikler, K.N., Hashkes, P.J., Spalding, S., Lynch-Jordan, A.M., Banez, G., Richards, M.M., & Lovell, D.J. (2012). Cognitive behavioral therapy for the treatment of juvenile fibromyalgia: A multisite, single-blind, randomized, controlled clinical trial. Arthritis and Rheumatism, 64, 297-305.

Ihara, E.S., Wolf-Branigin, M., & White, P. (2012). Quality of life and life skill baseline measures of urban adolescents with disabilities. Social Work in Public Health, 27, 658-670.

Bendixen, R.M., Senesac, C., Lott, D.J., & Vandenborne, K. (2012) Participation and quality of life in children with Duchenne muscular dystrophy using the international classification of functioning, disability, and health. Health and Quality of Life Outcomes, 30:10,43.

Shikako-Thomas, K., Dahan-Oliel, N., Shevell, M., Law, M., Birnbaum, R., Rosenbaum, P., Poulin, C., & Majnemer, A. (in press). Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsy. International Journal of Pediatrics.

Sritipsukho, P., Wisai, M., & Thavorncharoensap, M. (in press). Reliability and validity of the Thai version of the Pediatric Quality of Life Inventory 4.0. Quality of Life Research.

Tarakci, E., Baydogan, S.N., Kasapcopur, O., & Dirican, A. (in press). Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: A quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey. Quality of Life Research.

Stevens, M.W., Hainsworth, K.R., Weisman, S.J., & Layde, P.M. (2012). Health-related quality of life in pediatric minor injury: Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory in the emergency department. Archives of Pediatrics & Adolescent Medicine, 166, 74-81.

Sumpter, R., Dorris, L., Brannan, G., & Carachi, R. (2012). Quality of life and behavioural adjustment in childhood hydrocephalus. Scottish Medical Journal, 57, 18-25.

Biaukula, V.L., Tikoduadua, L., Azzopardi, K., Seduadua, A., Temple, B., Richmond, P., Robins-Browne, R., Mulholland, E.K., & Russell, F.M. (in press). Meningitis in children in Fiji: Etiology, epidemiology, and neurological sequelae. International Journal of Infectious Diseases.

Duan, X., Zhang, S., & Xiao, N. (in press). Reliability and validity of the PedsQL™ Generic Core Scales 4.0 for Chinese children with epilepsy. Epilepsy and Behavior.

Bendo, C. B., Paiva, S.M., Viegas, C.M., Vale, M.P., & Varni, J.W. (2012). The PedsQL™ Oral Health Scale: Feasibility, reliability and validity of the Brazilian Portuguese version. Health and Quality of Life Outcomes, 10:42, 1-11.

Tavernor, L., Barron, E., Rodgers, J., & McConachie, H. (in press). Finding out what matters: Validity of quality of life measurement in young people with ASD. Child: Care, Health and Development.

de Kloet, AJ., Berger, M.A., Verhoeven, I.M., van Stein Callenfels, K., & Vliet Vlieland, T.P. (in press). Gaming supports youth with acquired brain injury? A pilot study. Brain Injury.

Karakaya, I., Sismanlar, S.G., Atmaca, H., Gök, U., & Sarlak, A.Y. (in press). Outcome in early adolescent idiopathic scoliosis after deformity correction: Assessed by SRS-22, psychometric and generic health measures. Journal of Pediatric Orthopaedics.

Stevanovic, D. (in press). Impact of emotional and behavioral symptoms on quality of life in children and adolescents. Quality of Life Research.

Tantilipikorn, P., Watter, P., & Prasertsukdee S. (in press). Feasibility, reliability and validity of the Thai version of the Pediatric Quality of Life Inventory 3.0 Cerebral Palsy Module. Quality of Life Research.

Stasiak, K., Hatcher, S., Frampton, C., & Merry, S.N. (in press). A pilot double blind randomized placebo controlled trial of a prototype computer-based cognitive behavioural therapy program for adolescents with symptoms of depression. Behavioural and Cognitive Psychotherapy.

Tahirović, E., Begić, H., Tahirović, H., & Varni, J.W. (2012). Health-related quality of life and metabolic control in children with type 1 diabetes mellitus in Bosnia and Herzegovina. Collegium Antropologicum, 36, 117–121.

Mackenzie, H., Roberts, G., Van Laar, D., & Dean, T. (in press). A new quality of life scale for teenagers with food hypersensitivity. Pediatric Allergy and Immunology.

Sheldrick, R.C., Neger, E.N., Shipman, D., & Perrin, E.C. (2012). Quality of life of adolescents with autism spectrum disorders: Concordance among adolescents' self-reports, parents' reports, and parents' proxy reports. Quality of Life Research, 21, 53–57.

Madderom, M.J., Gischler, S.J., Duivenvoorden, H., Tibboel, D., & Ijsselstijn, H. (in press). Neonatal extracorporeal membrane oxygenation: Impaired health at 5 years of age. Pediatric Critical Care Medicine.

Sumpter, R., Brunklaus, A., McWilliam, R., & Dorris, L. (in press). Health-related quality-of-life and behavioural outcome in survivors of childhood meningitis. Brain Injury.

Davis, I.D., Greenbaum, L.A., Gipson, D., Wu, L.L., Sinha, R., Matsuda-Abedini, M., Emancipator, J.L., Lane, J.C., Hodgkins, K., Nailescu, C., Barletta, G.M., Arora, S., Mahan, J.D., & Rosen, C.L. (in press). Prevalence of sleep disturbances in children and adolescents with chronic kidney disease. Pediatric Nephrology.

Huang, J.B., Cao, Y.T., Liang, J., & Lv, X.D. (2012). Quality of life after children undergo a radical arterial switch operation at an older age. Heart Surgery Forum, 15, E103-7.

Chang, A.B., Robertson, C.F., Van Asperen, P.P., Glasgow, N., Mellis, C.M., Masters, I.B., Teoh, L., Tjhung, I., Morris, P.S., Petsky, H.L., Willis, C., & Landau, L.I. (in press). A multi-centre study on chronic cough in children: burden and etiologies based on a standardized management pathway. Chest.

Akber, A., Portale, A.A., & Johansen, K.L. (in press). Pedometer-assessed physical activity in children and young adults with CKD. Clinical Journal of the American Society of Nephrology.

Stevanovic, D., Jancic, J., & Lakic, A. (in press). The impact of depression and anxiety disorder symptoms on the health-related quality of life of children and adolescents with epilepsy. Epilepsia.

Zafar, A.B., Ness, J., Dowdy, S., Avis, K., & Bashir, K. (in press). Examining sleep, fatigue, and daytime sleepiness in pediatric multiple sclerosis patients. Multiple Sclerosis Journal.

Tacke, C.E., Haverman, L., Berk, B.M., van Rossum, M.A., Kuipers, I.M., Grootenhuis, M.A., & Kuijpers, T.W. (in press). Quality of life and behavioral functioning in Dutch children with a history of Kawasaki Disease. Journal of Pediatrics.

Khodaverdi, F., Bahram, A., & Jafarabadi, M.A. (2012). Quality of life, motor ability, and weight status among school-aged children of Tehran. Iranian Journal of Public Health, 41, 97-102.

Cloonan, Y.K., Collett, B.R., Speltz, M.L., Anderka, M., & Werler, M.M. (in press). Psychosocial outcomes in children with and without non-syndromic craniosynostosis: Findings from two studies. Cleft Palate-Craniofacial Journal.

Steele, R.C., Aylward, B.S., Jensen, C.D., Cushing, C.C, Davis, A.M., & Bovaird, J.A. (2012). Comparison of a family-based group intervention for youths with obesity to a brief individual family intervention: A practical clinical trial of Positively Fit. Journal of Pediatric Psychology, 37, 53–63.

Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood Markous, R.S., Collins, G.S., Ciceri, F., Mandelli, F., Marktel, S., & La Nasa, G. (in press). Health related quality of life in Middle Eastern children with beta-thalassemia. BMC Blood Disorders.

Seburg, E.M., Horvath, K.J., Garwick, A.W., McMorris, B.J., Vehe, R.K., & Scal, P. (2012). Complementary and alternative medicine use among youth with Juvenile Arthritis: Are youth using CAM, but not talking about it? Journal of Adolescent Health, 51, 200-202.

Uygun, V., Tayfun, F., Akcan, M., Karasu, G.T., Kupesiz, A., Hazar, V., & Yeşilipek, A. (in press). Quality of life assessment in hematopoietic stem cell transplantation performed on Thalassemia Major Patients. Pediatric Hematology and Oncology.

Parsons, S.K., Fairclough, D.L., Wang, J., & Hinds, P.S. (in press). Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: The value of both raters’ perspectives. Quality of Life Research.

Lacy, K.E., Allender, S.E., Kremer, P.J., de Silva-Sanigorski, A.M., Millar, L.M., Moodie, M.L., Mathews, L.B., Malakellis, M., & Swinburn, B.A. (in press). Screen time and physical activity behaviours are associated with health-related quality of life in Australian adolescents. Quality of Life Research.

Pound, C.M., Clark, C., Ni, A., Athale, U., Lewis, V., & Halton, J.M. (in press). Corticosteroids, behavior, and quality of life in children treated for acute lymphoblastic leukemia: A multicentered trial. Journal of Pediatric Hematology/Oncology.

Yağc-Küpeli, B., Akyüz, C., Küpeli, S., & Büyükpamukçu, M. (2012). Health-related quality of life in pediatric cancer survivors: A multifactorial assessment including parental factors. Journal of Pediatric Hematology/Oncology, 34, 194-199.

Jafari, P., Bagheri, Z., Ayatollahi, S. M. T., & Soltani, Z. (2012). Using Rasch rating scale model to reassess the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core Scales in school children. Health and Quality of Life Outcomes, 10:27, 1-11.

Green, L., Godfrey, C., Soo, C., Anderson, V., & Catroppa, C. (in press). Agreement between parent-adolescent ratings on psychosocial outcome and quality-of-life following childhood traumatic brain injury. Developmental Neurorehabilitation.

Chang, S.C., Lin, C.K., Tung, L.C., & Chang, N.Y. (2012). The association of drooling and health-related quality of life in children with cerebral palsy. Neuropsychiatric Disease and Treatment, 8, 599-604.

Sciberras, E., Fulton, M., Efron, D., Oberklaid, F., & Hiscock, H. (in press). Managing sleep problems in school aged children with ADHD: A pilot randomised controlled trial. Sleep Medicine.

Moorthy, L., Saad-Magalhães, C., Sato, J.O., Len, C., Vasco, M.B., Appenzeller, S., Marini, R., Oliveira, S.F., Rodrigues, M., Sztajnbok, F., Almeida, R.G., Jesus, A.A., Campos, L., Silva, C., Peterson, M., Hassett, A., Weiss, E., Verma, S., Dahodwala, M., & Lehman, T. (in press). Validation of the Portuguese simple measure of impact of lupus erythematosus in youngsters (SMILEY) in Brazil. Lupus.

Brunklaus A., Dorris, L., & Zuberi, SM. (in press). Comorbidities and predictors of health-related quality of life in Dravet syndrome. Epilepsia.

Vinney, L.A., Grade, J.D., & Connor, N.P. (2012). Feasibility of using a handheld electronic device for the collection of patient reported outcomes data from children. Journal of Communication Disorders, 45, 12-19.

Goretti, B., Portaccio, E., Ghezzi, A., Lori, S., Moiola, L., Falautano, M., Viterbo, R., Patti, F., Vecchio, R., Pozzilli, C., Bianchi, V., Cappiello, S., Comi, G., Trojano, M., & Amato, M. (in press). Fatigue and its relationships with cognitive functioning and depression in paediatric multiple sclerosis. Multiple Sclerosis.

Ramstad, K., Jahnsen, R., Skjeldal, O.H., & Diseth, T.H. (in press). Mental health, health related quality of life and recurrent musculoskeletal pain in children with cerebral palsy 8-18 years old. Disability and Rehabilitation.

Damnjanović, M., Lakić, A., Stevanović, D., Jovanović, A., Jancić, J., Jovanović, M., & Leposavić, L. (2012). Self-assessment of the quality of life of children and adolescents in the child welfare system of Serbia. Vojnosanitetski Pregled, 69, 469-474.

Gheissari, A., Farajzadegan, Z., Heidary, M., Salehi, F., Masaeli, A., Mazori, A., Varni, J.W., Fallah, Z., & Mazori, A. (2012). Validation of Persian version of PedsQL™ 4.0 Generic Core Scales in toddlers and children. International Journal of Preventive Medicine, 3, 37-46.

Yam, P.S., Morrison, R., Penpraze, V., Westgarth, C., Ward, D.S., Mutrie, N., Hutchison, P., Young, D., & Reilly, J.J. (in press). Children, parents, and pets exercising together (CPET) randomised controlled trial: Study rationale, design, and methods. BMC Public Health.

Fredericks, E.M., Dore-Stites, D., Calderon, S.Y., Well, A., Eder, S.J., Magee, J.C., & Lopez, M. (2012). The relationship between sleep problems and health related quality of life among pediatric liver transplant recipients. Liver Transplantation, 18, 707-715.

Bernstein, K., D'Angelo, L.J., & Lyon, M.E. (in press). An exploratory study of HIV+ adolescents' spirituality: Will you pray with me? Journal of Religion and Health.

Yik, Y.I., Ismail, K.A., Hutson, J.M., & Southwell, B.R. (2012). Home transcutaneous electrical stimulation to treat children with slow-transit constipation. Journal of Pediatric Surgery, 47, 1285-1290.

Lin, C.Y., Luh, W.M., Yang, A.L., Su, C.T., Wang, J.D., & Ma, H.I. (2012). Psychometric properties and gender invariance of the Chinese version of the self-report Pediatric Quality of Life Inventory Version 4.0: Short Form is acceptable. Quality of Life Research, 21, 177-182.

Amiri, P., Eslamian, G., Mirmiran, P., Shiva, N., Jafarabadi, M.A., & Azizi, F. (2012). Validity and reliability of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in children. Health and Quality of Life Outcomes, 10:3, 1-9.

Dibiasio, P.A., & Lewis, C.L. (in press). Exercise training utilizing body weight-supported treadmill walking with a young adult with cerebral palsy who was non-ambulatory. Physiotherapy Theory and Practice.

Gazini, C.C., Reimão, R.N., Rossini, S.R., Centeville, M., Mazzola, T.N., Vilela, M.M., & Silva, M.T. (2012). Quality of sleep and quality of life in adolescents infected with human immunodeficiency virus. Arquivos de Neuro-Psiquiatria, 70, 422-427.

Oren, A., Benoit, M.A., Murphy, A., Schulte, F., & Hamilton, J. (in press). Quality of life and anxiety in adolescents with differentiated thyroid cancer. Journal of Clinical Endocrinology & Metabolism.

Lyon, M.E., Garvie, P., He, J., Malow, R., McCarter, R., & D'Angelo, L.J. (in press). Spiritual well-being among HIV-infected adolescents and their families. Journal of Religion and Health.

Appleton, R., Jones, A., Gamble, C., Williamson, P., Wiggs, L., Montgomery, P., Sutcliffe, A., Barker, C., & Gringras, P. (2012). The use of melatonin in children with neurodevelopmental disorders and impaired sleep: A randomised, double-blind, placebo-controlled, parallel study (MENDS). Health Technology Assessment, 16, 1-239.

González-Gil, T., Mendoza-Soto, A., Alonso-Lloret, F., Castro-Murga, R., Pose-Becerra, C., & Martín-Arribas, M.C. (in press). The Spanish version of the health-related quality of life questionnaire for children and adolescents with heart disease (PedsQL™). Revista Española de Cardiología.

Ardon, M.S., Janssen, W.G., Hovius, S.E., Stam, H.J., & Selles R.W. (2012). Low impact of congenital hand differences on health-related quality of life. Archives of Physical Medicine and Rehabilitation, 93, 351-357.

Shipman, D.L., Sheldrick, R.C., & Perrin EC. (2011). Quality of life in adolescents with Autism Spectrum Disorders: Reliability and validity of self-reports. Journal of Developmental and Behavioral Pediatrics, 32, 85-89.

Kelly, E.H., Klaas, S.J., Garma, S., Russell, H.F., & Vogel, L.C. (2012). Participation and quality of life among youth with spinal cord injury. Journal of Pediatric Rehabilitation Medicine, 5, 315-325.

de Souza, F.M., Molina, J., Terreri, M.T., Hilário, M.O., & Len, CA. (2012). Reliability of the Pediatric Quality of Life Inventory - Healthcare Satisfaction Generic Module 3.0 version for the assessment of the quality of care of children with chronic diseases. Journal of Pediatrics (Rio J), 88, 54-60.

Tomlinson, D., Hinds, P.S., Bartels, U., Hendershot, E., & Sung, L. (2011). Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure. Journal of Clinical Oncology, 29, 639-645.

Sung, L., Yanofsky, R., Klaassen, R.J., Dix, D., Pritchard, S., Winick, N., Alexander, S., & Klassen, A. (2011). Quality of life during active treatment for pediatric acute lymphoblastic leukemia. International Journal of Cancer, 128, 1213-1220.

Tomlinson, D., Hendershot, E., Bartels, U., Maloney, A.M., Armstrong, C., Wrathall, G., & Sung, L. (2011). Concordance between couples reporting their child's quality of life and their decision making in pediatric oncology palliative care. Journal of Pediatric Oncology Nursing, 28, 319-325.

Aviel, Y. B., Stremler, R., Benseler, S.M., Cameron, B., Laxer, R.M., Ota, S., Schneider, R., Spiegel, L., Stinson, J.N., Tse, S.M., & Feldman, B.M. (2011). Sleep and fatigue and the relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile dermatomyositis. Rheumatology, 50, 2051-2060.

Pieper, P., & Bear, M. (2011). Child and proxy perspectives of the child's health-related quality of life 1 month after a mild traumatic brain injury. Journal of Trauma Nursing, 18, 11-17.

Rivara, F.P., Koepsell, T.D., Wang, J., Temkin, N., Dorsch, A., Vavilala, M.S., Durbin, D., & Jaffe, K.M. (2011). Disability 3, 12, and 24 months after traumatic brain injury among children and adolescents. Pediatrics, 128, e1129–e1138.

Anderson, B.J., Edelstein, S., Abramson, N.W., Katz, L.L., Yasuda, P.M., Lavietes, S.J., Trief, P.M., Tollefsen, S.E., McKay, S.V., Kringas, P., Casey, T.L., & Marcus, M.D. (2011). Depressive symptoms and quality of life in adolescents with Type 2 diabetes: Baseline data from the TODAY study. Diabetes Care, 34, 2205-2207.

Wilfley, D.E. & The TODAY Study Group (2011). Binge eating, mood, and quality of life in youth with Type 2 diabetes. Diabetes Care, 34, 858–860.

Sawyer, M.G., Harchak, T., Wake, M., & Lynch, J. (in press). Four-year prospective study of BMI and mental health problems in young children. Pediatrics.

Kunz, J.H., Greenley, R.N., & Howard, M. (2011). Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease. Quality of Life Research, 20, 1197–1204.

Wakimizu, R., Hiraga, N., Furuya, K., Fukushima, T., Tsuchida, M., Koike, K., & Yamamoto, T. (2011). Depression and health-related quality of life after discharge and associated factors in childhood cancer patients in Japan. Bioscience Trends, 5, 264-272.

Awasthi, S., Agnihotri, K., Chandra, H., Singh, U., & Thakur, S. (2012). Assessment of health-related quality of life in school-going adolescents: Validation of PedsQL instrument and comparison with WHOQOL-BREF. National Medical Journal of India, 25, 74-79.

Rayens, M.K., Svavarsdottir, E.K., & Burkart, P.V. (2011). Cultural differences in parent-adolescent agreement on the adolescent's asthma-related quality of life. Pediatric Nursing, 37, 311-321.

Sawyer, M.G., Harchak, T., Wake, M., & Lynch, J. (2011). Four-year prospective study of BMI and mental health problems in young children. Pediatrics, 128, 677-684.

Huang, I.C., Leite, W.L., Shearer, P., Seid, M., Revicki, D.A., & Shenkman, E.A. (2011). Differential item functioning in quality of life measure between children with and without special health-care needs. Value in Health, 14, 872-883.

Wysocki, T., Buckloh, L.M., Antal, H., Lochrie, A., & Taylor, A. (in press). Validation of a self-report version of the diabetes self-management profile. Pediatric Diabetes.

Hamblion, E.L., Moore, A.T., & Rahi, J.S. (in press). The health-related quality of life of children with hereditary retinal disorders and the psycho-social impact on their families. Investigative Ophthalmology & Visual Science.

Mano, K.E., Khan, K.A., Ladwig, R.J., & Weisman, S.J. (2011). The impact of pediatric chronic pain on parents' health-related quality of life and family functioning: Reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of Pediatric Psychology, 36, 517-527.

Chen, R., Hao, Y., Feng, L., Zhang, Y., & Huang, Z. (2011). The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: Cross-cultural adaptation and psychometric evaluation. Health and Quality of Life Outcomes, 9:16, 1-10.

Ji, Y., Chen, S., Li, K., Xiao, N., Yang, X., Zheng, S., & Xiao, X. (2011). Measuring health-related quality of life in children with cancer living in mainland China: feasibility, reliability and validity of the Chinese mandarin version of PedsQL™ 4.0 Generic Core Scales and 3.0 Cancer Module. Health and Quality of Life Outcomes, 9(1):103.

Jafari, P., Forouzandeh, E., Bagheri, Z., Karamizadeh, Z., & Shalileh K. (2011). Health related quality of life of Iranian children with type 1 diabetes: Reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module. Health and Quality of Life Outcomes, 9(1):104, 1-6.

An, K.J., Song, M.S., Sung, K.W., & Joung, Y.S. (2011). Health-related quality of life, activities of daily living and parenting stress in children with brain tumors. Psychiatry Investigation, 8, 250-255.

Young, N.L., St-Louis, J., Burke, T., Hershon, L., & Blanchette. V. (in press). Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French. Haemophilia