PedsQL Publications

Jafari, P., Allahyari, E., Salarzadeh, M., & Bagheri, Z. (in press). Item-level informant discrepancies across obese-overweight children and their parents on the PedsQL™ 4.0 instrument: An iterative hybrid ordinal logistic regression. Quality of Life Research.

Doostfatemeh, M., Ayatollahi, S.M., & Jafari, P. (in press).Testing parent dyad interchangeability in the parent proxy-report of PedsQL™ 4.0: A differential item functioning analysis. Quality of Life Research.

Lee, H., Choi, J., Hwang, J.H., & Park, J.H. (in press). Psychometric evaluation of the scoliosis research society-22 revised questionnaire among adolescents with idiopathic scoliosis. Journal of Pediatric Orthopedics. Part B.

Bal, H.S., Sen, S., Karl, S., Mathai, J., & Thomas, R.J. (in press). An assessment of quality of life of operated cases of esophageal atresia in the community. Journal of Indian Association of Pediatric Surgeons.

Splinter, K., Niemi, A.K., Cox, R., Platt, J., Shah, M., Enns, G.M., Kasahara, M., & Bernstein, J.A. (in press). Impaired health-related quality of life in children and families affected by methylmalonic acidemia. Journal of Genetic Counseling.

Yock, T.I., Bhat, S., Szymonifka, J., Yeap, B.Y., Delahaye, J., Donaldson, S.S., MacDonald, S.M., Pulsifer, M.B., Hill, K.S., DeLaney, T.F., Ebb, D., Huang, M., Tarbell, N.J., Fisher, P.G., & Kuhlthau, K.A. (in press). Quality of life outcomes in proton and photon treated pediatric brain tumor survivors. Radiotherapy and Oncology.

Mutlu, E.K., Mutlu, C., Taskiran, H., & Ozgen, I.T. (in press). Association of physical activity level with depression, anxiety, and quality of life in children with type 1 diabetes mellitus. Journal of Pediatric Endocrinology & Metabolism.

Brulé, D., Gillmeister, B., Lee, M., Alexander, S., Gassas, A., Hendershot, E., Zupanec, S., Dupuis, L., & Sung, L. (in press). A feasibility pilot trial of individualized homeopathic treatment of fatigue in children receiving chemotherapy. Integrative Cancer Therapies.

Stish, B.J., Ahmed, S.K., Rose, P.S., Arndt, C.A., & Laack, N.N. (in press). Patient-reported functional and quality of life outcomes in a large cohort of long-term survivors of Ewing sarcoma. Pediatric Blood & Cancer.

Looi, V., Lee, Z.Z., & Loo, J.H. (in press). Quality of life outcomes for children with hearing impairment in Singapore. International Journal of Pediatric Otorhinolaryngology.

Shapiro, D.R., & Malone, L.A. (in press). Quality of life and psychological affect related to sport participation in children and youth athletes with physical disabilities: A parent and athlete perspective. Disability and Health Journal.

Alpaslan, A.H., Ucok, K., Coşkun, K.Ş., Genc, A., Karabacak, H., & Guzel, H.I. (in press). Resting metabolic rate, pulmonary functions, and body composition parameters in children with attention deficit hyperactivity disorder. Eating and Weight Disorders.

Ward, T.M., Yuwen, W., Voss, J., Foell, D., Gohar, F., & Ringold, S. (in press). Sleep fragmentation and biomarkers in juvenile idiopathic arthritis. Biological Research for Nursing.

Wilmot, I., Cephus, C.E., Cassedy, A., Kudel, I., Marino, B.S., & Jefferies, J.L. (in press). Health-related quality of life in children with heart failure as perceived by children and parents. Cardiology in the Young.

Ananworanich, J., Melvin, D., Amador, J.T., Childs, T., Medin, G., Boscolo, V., Compagnucci, A., Kanjanavanit, S., Montero, S., & Gibb, D.M. (in press). Neurocognition and quality of life after reinitiating antiretroviral therapy in children randomized to planned treatment interruption. AIDS.

Khoshkhui, M., Jafari, P., Afrasiabi, M. Orooj, M., & Kashef, S. (in press). Level of agreement between children with asthma and their parents on quality of life. Iranian Journal of Medical Sciences.

Hwang, J.H., Varte, L., Kim, H.W., Lee, D.H., & Park, H. (2016). Salvage procedures for the painful chronically dislocated hip in cerebral palsy. Bone & Joint Journal, 98-B(1):137-43.

Tran, S.T., Jastrowski Mano, K.E., Hainsworth, K.R., Medrano, G.R., Khan, K.A., Weisman, S.J., & Davies, W.H. (2015). Distinct influences of anxiety and pain catastrophizing on functional outcomes in children and adolescents with chronic pain. Journal of Pediatric Psychology, 40, 744-755.

Bull, K.S., Liossi, C., Peacock, J.L., Yuen, H.M., & Kennedy, C.R. (in press). Screening for cognitive deficits in 8 to 14-year old children with cerebellar tumors using self-report measures of executive and behavioral functioning and health-related quality of life. Neuro-Oncology.

Telo, G.H., Volkening, L.K., Butler D.A., & Laffel, L.M. (2015). Salient characteristics of youth with type 1 diabetes initiating continuous glucose monitoring. Diabetes Technology & Therapeutics, 17, 373-378.

Czosek, R.J., Kaltman, J.R., Cassedy, A.E., Shah, M.J., Vetter, V.L., Tanel, R.E., Wernovksy, G., Wray, J., & Marino, B.S. (in press). Quality of life of pediatric patients with long QT syndrome. American Journal of Cardiology.

Cohen, S., Ter Stege, J.A., Weijsenfeld, A.M., van der Plas, A., Kuijpers, T.W., Reiss, P., Scherpbier, H.J., Haverman, L., & Pajkrt, D. (in press). Health-related quality of life in perinatally HIV-infected children in the Netherlands. AIDS Care.

Ringel-Kulka, T., Kotch, J.B., Jensen, E.T., Savage, E., & Weber, D.J. (in press). Randomized, double-blind, placebo-controlled study of synbiotic yogurt effect on the health of children. Journal of Pediatrics.

Spanaki, A., O'Curry, S., Winter-Beatty, J., Mead-Regan, S., Hawkins, K., English, J., Head, C., Ridout, D., Tome-Esteban, M.T., Elliott, P., & Kaski, J.P. (in press). Psychosocial adjustment and quality of life in children undergoing screening in a specialist paediatric hypertrophic cardiomyopathy clinic. Cardiology in the Young.

Hiscock, H., Sciberras, E., Mensah, F., Gerner, B., Efron, D., Khano, S., & Oberklaid, F. (in press). Impact of a behavioural sleep intervention on symptoms and sleep in children with attention deficit hyperactivity disorder, and parental mental health: Randomised controlled trial. British Medical Journal.

Biagetti, C., Gesuita, R., Gatti, S., & Catassi, C. (in press). Quality of life in children with celiac disease: A paediatric cross-sectional study. Digestive and Liver Disease.

Winger, A., Kvarstein, G., Wyller, V.B., Ekstedt, M., Sulheim, D., Fagermoen, E., Småstuen, M.C., & Helseth, S. (2015). Health related quality of life in adolescents with chronic fatigue syndrome: A cross-sectional study. Health and Quality of Life Outcomes, 13(1):96.

Ilmer, E.C., Lambregts, S.A., Berger, M.A., de Kloet, A.J., Hilberink, S.R., & Roebroeck, M.E. (in press). Health-related quality of life in children and youth with acquired brain injury: Two years after injury. European Journal of Paediatric Neurology.

Sritipsukho, P., Satdhabudha, A., & Nanthapisal, S. (2015). Effect of allergic rhinitis and asthma on the quality of life in young Thai adolescents. Asian Pacific Journal of Allergy and Immunology, 33, 222-226.

Crowell, M.D., Murphy, T.B., Levy, R.L., Langer, S.L., Kunin-Batson, A., Seburg, E.M., Senso, M., & Sherwood, N.E. (2015). Eating behaviors and quality of life in preadolescents at risk for obesity with and without abdominal pain. Journal of Pediatric Gastroenterology & Nutrition, 60, 217-223.

Yau, M., Vogiatzi, M., Lewkowitz-Shpuntoff, A., Nimkarn, S., & Lin-Su, K. (in press). Health-related quality of life in children with congenital adrenal hyperplasia. Hormone Research in Pædiatrics.

Kruszewski, P.G., Russo, J.M., Franciosi, J.P., Varni, J.W., Platts-Mills, T.A.E., & Erwin, E.A. (in press). Prospective, comparative effectiveness trial of cow’s milk elimination and swallowed fluticasone for pediatric eosinophilic esophagitis. Diseases of the Esophagus.

Sheikh, F., Akinkuotu, A., Clark, S.J., Zamora, I.J., Cass, D.L., Olutoye, O., & Lee, T.C. (in press). Assessment of quality of life outcomes using the Pediatric Quality of Life Inventory survey in prenatally diagnosed congenital diaphragmatic hernia patients. Journal of Pediatric Surgery.

Ng, J., Ford, K., Dalton, S., McDowell, S., Charlesworth, P., & Cleeve, S. (in press). Transanal irrigation for intractable faecal incontinence and constipation: Outcomes, quality of life and predicting non-adopters. Pediatric Surgery International.

Maher, C.A., Toohey, M., & Ferguson, M. (in press). Physical activity predicts quality of life and happiness in children and adolescents with cerebral palsy. Disability and Rehabilitation.

Miller, J.R., Boston, U.S., Epstein, D.J., Henn, M.C., Lawrance, C.P., Kallenbach, J., Simpson, K.E., Canter, C.E., & Eghtesady, P. (in press). Pediatric quality of life while supported with a ventricular assist device. Congenital Heart Disease.

Mianowska, B., Fendler, W., Tomasik, B., Młynarski, W., & Szadkowska, A. (in press). Effect of insulin dilution on lowering glycemic variability in pump-treated young children with inadequately controlled type 1 diabetes. Diabetes Technology & Therapeutics.

Rabbitts, J.A., Groenewald, C.B., Tai, G.G., & Palermo, T.M. (2015). Presurgical psychosocial predictors of acute postsurgical pain and quality of life in children undergoing major surgery. The Journal of Pain, 16, 226-234.

Kovacic, K., Sood, M.R., Mugie, S., Di Lorenzo, C., Nurko, S., Heinz, N., Ponnambalam, A., Beesley, C., Sanghavi, R., & Silverman, A.H. (2015). A multicenter study on childhood constipation and fecal incontinence: Effects on quality of life. Journal of Pediatrics, 166, 1482-1487.

Viecili, M.A., & Weiss, J.A. (2015). Reliability and validity of the Pediatric Quality of Life Inventory with individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 120, 289-301.

Bugescu, N., Alioto, A., Segal, S., Cordova, M., & Packman, W. (2015). The neurocognitive impact of Fabry disease on pediatric patients. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 168, 204–210.

Darezzo Rodrigues Nunes, M., Jacob, E., Adlard, K., Secola, R., & Nascimento, L. (2015). Fatigue and sleep experiences at home in children and adolescents with cancer. Oncology Nursing Forum, 42, 498-506.

Nicola, K., & Watter, P. (2015). Health-related quality of life from the perspective of children with severe specific language impairment. Health and Quality of Life Outcomes, 13(1):127.

Boogerd, E.A., Damhuis, A.M, van Alfen-van der Velden, J.A., Steeghs, M.C., Noordam, C., Verhaak, C.M., & Vermaes, I.P. (in press). Assessment of psychosocial problems in children with type 1 diabetes and their families: The added value of using standardised questionnaires in addition to clinical estimations of nurses and paediatricians. Journal of Clinical Nursing.

Sulkowski, J.P., Nacion, K.M., Deans, K.J., Minneci, P.C., Levitt, M.A., Mousa, H.M., Alpert, S.A., & Teich, S. (in press). Sacral nerve stimulation: A promising therapy for fecal and urinary incontinence and constipation in children. Journal of Pediatric Surgery.

Mulcahey, M.J., Haley, S.M., Slavin, M.D., Kisala, P.A., Ni, P., Tulsky, D.S., & Jette, A.M. (in press). Ability of PROMIS pediatric measures to detect change in children with cerebral palsy undergoing musculoskeletal surgery. Journal of Pediatric Orthopedics.

Caferoğlu, Z., İnanç, N., Hatipoğlu, N., & Kurtoğlu, S. (in press). Health-related quality of life is associated with metabolic control in children and adolescents with type 1 diabetes mellitus. Journal of Clinical Research in Pediatric Endocrinology.

de Kloet, A.J., Lambregts, S.A., Berger, M.A., van Markus, F., Wolterbeek, R., & Vliet Vlieland, T.P. (in press). Family impact of acquired brain injury in children and youth. Journal of Developmental and Behavioral Pediatrics.

Turan, E., Kandemir, H., Yeşilova, Y., Ekinci, S., Tanrıkulu, O., Kandemir, S.B., & Gurel, M.S. (in press). Assessment of psychiatric morbidity and quality of life in children and adolescents with cutaneous leishmaniasis and their parents. Postȩpy Dermatologii i Alergologii.

Boonchooduang, N., Louthrenoo, O., Choeyprasert, W., & Charoenkwan, P. (in press). Health-related quality of life in adolescents with Thalassemia. Pediatric Hematology and Oncology.

Sluys, K.P., Lannge, M., Iselius, L., & Eriksson, L.E. (in press). Six years beyond pediatric trauma: child and parental ratings of children's health-related quality of life in relation to parental mental health. Quality of Life Research.

Moreira, J.M., Bouissou Morais Soares, C.M., Teixeira, A.L., Simões, E. Silva, A.C., & Kummer, A.M. (in press). Anxiety, depression, resilience and quality of life in children and adolescents with pre-dialysis chronic kidney disease. Pediatric Nephrology.

Place, A.E., Stevenson, K.E., Vrooman, L.M., Harris, M.H., Hunt, S.K., O'Brien, J.E., Supko, J.G., Asselin, B.L., Athale, U.H., Clavell, L.A., Cole, P.D., Kelly, K.M., Laverdiere, C., Leclerc, J.M., Michon, B., Schorin, M.A., Welch, J.J., Lipshultz, S.E., Kutok, J.L., Blonquist, T.M., Neuberg, D.S., Sallan, S.E., & Silverman, L.B. (in press). Intravenous pegylated asparaginase versus intramuscular native Escherichia colil-asparaginase in newly diagnosed childhood acute lymphoblastic leukaemia (DFCI 05-001): A randomised, open-label phase 3 trial. Lancet. Oncology.

Mulligan, K., Wedderburn, L.R., & Newman, S. (2015). The experience of taking methotrexate for juvenile idiopathic arthritis: Results of a cross-sectional survey with children and young people. Pediatric Rheumatology, 13(1):58.

Fawley, J.A., Peterson, E.L., Christensen, M.A., Rein, L., & Wagner, A.J. (in press). Can omphalocele ratio predict postnatal outcomes? Journal of Pediatric Surgery.

Luyckx, K., Rassart, J., Goossens, E., Apers, S., Oris, L., & Moons, P. (in press). Development and persistence of depressive symptoms in adolescents with CHD. Cardiology in the Young.

Spirkova, A., Dusatkova, P., Peckova, M., Kolouskova, S., Snajderova, M., Obermannova, B., Stechova, K., Hrachovinova, T., Mares, J., Cinek, O., Lebl, J., Sumnik, Z., & Pruhova, S. (in press). Treated autoimmune thyroid disease is associated with a decreased quality of life among young persons with Type 1 Diabetes. International Journal of Endocrinology.

Khalil, M. (in press). Long-term health-related quality of life for patients with Hirschsprung's disease at 5 years after transanal endorectal pull-through operation Quality of Life Research.

Malheiros, C.D., Lisle, L., Castelar, M., Sá, K.N., & Matos, M.A. (in press). Hip dysfunction and quality of life in patients with sickle cell disease. Clinical Pediatrics.

Bosch, A.M., Burlina, A., Cunningham, A., Bettiol, E., Moreau-Stucker, F., Benmedjahed, K., & Regnault, A. (in press). Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries. Orphanet Journal of Rare Diseases.

Murray, C., Holmbeck, G., Ros, A., Flores, D., Mir, S., & Varni, J.W. (2015). A longitudinal examination of health-related quality of life in children and adolescents with spina bifida. Journal of Pediatric Psychology, 40, 419-430.

Vassilyadi, M., Macartney, G., Barrowman, N., Anderson, P., & Dube, K. (in press). Symptom experience and quality of life in children after sport-related head injuries: A cross-sectional study. Pediatric Neurosurgery.

Dalton, A.G., Smith, C., Dalton, W.T., & Slawson, D.L. (in press). Examining general versus condition-specific health-related quality of life across weight categories in an adolescent sample. Journal of Pediatric Health Care.

Valier, A.R., Welch Bacon, C.E., Bay, R.C., Houston, M.N., Valovich McLeod, T.C. (in press). The validity of single-item patient-rated outcomes in concussed adolescent football athletes. Archives of Physical Medicine and Rehabilitation.

Johansen, H., Dammann, B., Øinæs Andersen, L, & Andresen, I.L. (in press). Children with congenital limb deficiency in Norway: Issues related to school life and health-related quality of life. A cross-sectional study. Disability and Rehabilitation.

Shah, P., Rahman, S.A., McElroy, S., Gilbert, C., Morgan, K., Hinchey, L., Senniappan, S., Levy, H., Amin, R., & Hussain, K. (in press). Use of long-acting somatostatin analogue (Lanreotide) in an adolescent with diazoxide-responsive congenital hyperinsulinism and its psychological impact. Hormone Research in Pædiatrics.

Anderson, K., Ritchie, K., Chorney, J.M., Bezuhly, M., & Hong, P. (in press). The impact of septoplasty on health-related quality of life in paediatric patients. Clinical Otolaryngology.

Loh, D.A., Moy, F.M., Zaharan, N.L., & Mohamed, Z. (in press). Disparities in health-related quality of life among healthy adolescents in a developing country - the impact of gender, ethnicity, socio-economic status and weight status. Child: Care, Health and Development.

Arnold, L.M., Bateman, L., Palmer, R.H., & Lin, Y. (2015). Preliminary experience using milnacipran in patients with juvenile fibromyalgia: lessons from a clinical trial program. Pediatric Rheumatology Online Journal, 26; 13(1):27.

Rao, S., Elkon, B., Flett, K.B., Moss, A.F., Bernard, T.J., Stroud, B., & Wilson, K.M. (in press). Long-term outcomes and risk factors associated with acute encephalitis in children. Journal of the Pediatric Infectious Diseases Society.

Steenbruggen, T.G., Hoekstra, S.J., & van der Gaag, E.J. (2015). Could a change in diet revitalize children who suffer from unresolved fatigue? Nutrients, 7, 1965-1977.

Caicedo, C. (in press). Health and functioning of families of children with special health care needs cared for in home care, long-term care, and medical day care settings. Journal of Developmental and Behavioral Pediatrics.

Blair, J., Gregory, J.W., Hughes, D., Ridyard, C.H., Gamble, C., McKay, A., Didi, M., Thornborough, K., Bedson, E., Awoyale, L., Cwiklinski, E., & Peak, M. (2015). Study protocol for a randomised controlled trial of insulin delivery by continuous subcutaneous infusion compared to multiple daily injections. Trials, 16(1):163.

Gandhi, P.K., Revicki, D.A., & Huang, I.C. (2015). Adolescent body weight and health-related quality of life rated by adolescents and parents: The issue of measurement bias. BMC Public Health, 15(1):1192.

Sehlo, M.G., & Kamfar, H.Z. (2015). Depression and quality of life in children with sickle cell disease: The effect of social support. BMC Psychiatry, 15(1):78.

Sheikh, F., Akinkuotu, A., Olutoye, O.O., Pimpalwar, S., Cassady, C.I., Fernandes, C.J., Ruano, R., Lee, T.C., & Cass, D.L. (in press). Prenatally diagnosed neck masses: Long-term outcomes and quality of life. Journal of Pediatric Surgery.

Lim, C.S., Gowey, M.A., Silverstein, J., Dumont-Driscoll, M., & Janicke, D.M. (in press). Depressive symptoms, ethnic identity, and health-related quality of life in obese youth. Journal of Pediatric Psychology.

Van Heest, A.E., Bagley, A., Molitor, F., & James, M.A. (2015). Tendon transfer surgery in upper-extremity cerebral palsy is more effective than botulinum toxin injections or regular, ongoing therapy. Journal of Bone and Joint Surgery, 97, 529-536.

Jiang, X., Ren, X., Liu, H., Tian, J., Du, C., Luo, H., Cheng, Y., & Shang, L. (in press). Health-related quality of life among children with adenoid hypertrophy in Xi'an, China. International Journal of Pediatric Otorhinolaryngology.

Hurrell, R.A., Fullwood, C., Keys, J., Dickson, A.P., Fishwick, J., Whitnall, B., & Cervellione, R.M. (in press). Psychosocial screening at paediatric BEEC clinics: A pilot evaluation study. Journal of Pediatric Urology.

Sorensen, L.G., Katie Neighbors, K., Zhang, S., Limbers, C.A., Varni, J.W., Ng, V.L., Squires, R.H., & Alonso, E.M. (2015). Neuropsychological functioning and health-related quality of life: Pediatric Acute Liver Failure Study Group results. Journal of Pediatric Gastroenterology & Nutrition, 60, 75–83.

Guilfoyle, S.M., Monahan, S., Wesolowski, C., & Modi, A.C. (2015). Depression screening in pediatric epilepsy: Evidence for the benefit of a behavioral medicine service in early detection. Epilepsy & Behavior, 44C, 5-10.

Lord, J.H., Rumburg, T.M., & Jaser, S.S. (2015). Staying positive: Positive affect as a predictor of resilience in adolescents with Type 1 diabetes. Journal of Pediatric Psychology, 40, 968-977.

He, K., Shen, C., Chen, X., Han, L., Xi, Z., Zhou, T., Zhang, J., & Xia, Q. (2015). Health-related quality of life and sleep among Chinese children after living donor liver transplantation. Pediatric Transplantation, 19, 547-554.

Monaghan, M., Clary, L., Stern, A., Hilliard, M.E., & Streisand, R. (2015). Protective factors in young children with Type 1 diabetes. Journal of Pediatric Psychology, 40, 878-887.

Abo-Haded, H.M. (2015). Radiofrequency ablation changes the quality of life of children with supraventricular tachycardias. Archives of Disease in Childhood, 100, 754–757.

Versteegh, H.P., van den Hondel, D., IJsselstijn, H., Wijnen, R.M., Sloots, C.E., & de Blaauw, I. (in press). Cloacal malformation patients report similar quality of life as female patients with less complex anorectal malformations. Journal of Pediatric Surgery.

Silverman, A.H., Berlin, K.S., Di Lorenzo, C., Nurko, S., Kamody, R.C., Ponnambalam, A., Mugie, S., Gorges, C., Sanghavi, R., & Sood, M.R. (in press). Measuring health-related quality of life with the parental opinions of pediatric constipation questionnaire. Journal of Pediatric Psychology.

Mavis, A.M., Ertl, A., Chapman, S., Cassidy, L.D., Lerret, S.M. (2015). Vulnerability and chronic illness management in pediatric kidney and liver transplant recipients. Progress in Transplantation, 25, 139-146.

Selewski, D.T., Troost, J.P., Massengill, S.F., Gbadegesin, R.A., Greenbaum, L.A., Shatat, I.F., Cai, Y., Kapur, G., Hebert, D., Somers, M.J., Trachtman, H., Pais, P., Seifert, M.E., Goebel, J., Sethna, C.B., Mahan, J.D., Gross, H.E., Herreshoff, E., Liu, Y., Song, P.X., Reeve, B.B., DeWalt, D.A., & Gipson, D.S. (in press). The impact of disease duration on quality of life in children with nephrotic syndrome: a Midwest Pediatric Nephrology Consortium study. Pediatric Nephrology.

Arnold, S.D., Jin, Z., Sands, S., Bhatia, M., Kung, A., & Satwani, P. (in press). Allogeneic hematopoietic cell transplantation for children with sickle cell disease is beneficial and cost effective: A single center analysis. Biology of Blood and Marrow Transplantation.

Kwon, H.J., Kim, Y.L., & Lee, S.M. (2015). Relation between functional ability and health-related quality of life of children with juvenile rheumatoid arthritis. Journal of Physical Therapy Science, 27, 837-840.

Pieper, P., & Garvan, C. (in press). Concordance of child and parent reports of health-related quality in children with mild traumatic brain or non-brain injuries and in uninjured children: Longitudinal evaluation. Journal of Pediatric Health Care.

Santos, S., Crespo, C., Canavarro, M.C., & Kazak, A.E (in press). Family rituals and quality of life in children with cancer and their parents: The role of family cohesion and hope. Journal of Pediatric Psychology, 40, 664-671.