PedsQL Publications


PedsQL™ Pediatric Pain Questionnaire



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PedsQL™ Pediatric Pain Questionnaire

PedsQL™ Present Functioning Visual Analogue Scales

Pediatric Pain Coping Inventory™

Peer Reviewed Publications

Pacey, V., Tofts, L., Adams, R.D., Munns, C.F., & Nicholson, L.L. (2015). Quality of life prediction in children with joint hypermobility syndrome. Journal of Paediatrics and Child Health, 51, 689-695.

Vetter, T.R., McGwin, G., Bridgewater, C.L., Madan-Swain, A., & Ascherman, L.I. (2013). Validation and clinical application of a Biopsychosocial Model of Pain intensity and functional disability in patients with a pediatric chronic pain condition referred to a subspecialty clinic. Pain Research and Treatment.

Aviel, Y. B., Stremler, R., Benseler, S.M., Cameron, B., Laxer, R.M., Ota, S., Schneider, R., Spiegel, L., Stinson, J.N., Tse, S.M., & Feldman, B.M. (2011). Sleep and fatigue and the relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile dermatomyositis. Rheumatology, 50, 2051-2060.

Vetter, T.R. (2008). A clinical profile of a cohort of patients referred to an anesthesiology-based pediatric chronic pain medicine program. Anesthesia and Analgesia, 106, 786-794.

Eisen, S.L., Ulrich, R.S., Shepley, M.M., Varni, J.W., & Sherman, S. (2008). The stress-reducing effects of art in pediatric health care: Art preferences of healthy children and hospitalized children. Journal of Child Health Care, 12, 173-190.

Barakat, L.P., Daniel, L.C., Patterson, C.A., & Dampier, C. (2008). Quality of life among adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting stress. Health and Quality of Life Outcomes, 6:60.

Simons, L.E., Claar, R.L., & Logan, D.L. (2008). Chronic pain in adolescence: Parental responses, adolescent coping, and their impact on adolescent’s pain behaviors. Journal of Pediatric Psychology, 33, 894-904.

Sherman, S.A., Eisen, S., Burwinkle, T.M., & Varni, J.W. (2006). The PedsQL™ Present Functioning Visual Analogue Scales: Preliminary reliability and validity. Health and Quality of Life Outcomes, 4:75, 1-10.

Degotardi, P.J., Klass, E.S., Rosenberg, B.S., Fox, D.G., Gallelli, K.A., & Gottlieb, B.S. (2006). Development and evaluation of a cognitive-behavioral intervention for juvenile fibromyalgia. Journal of Pediatric Psychology, 31, 714-723.

Oddson, B.E., Clancy, C.A., & McGrath, P.J. (2006). The role of pain in reduced quality of life and depressive symptomology in children with spina bifida. Clinical Journal of Pain, 22, 784-789.

Sobo, E.J., Eng, B. & Kassity-Krich, N. (2006). Canine visitation (pet) therapy: Pilot data on decreases in child pain perception. Journal of Holistic Nursing, 24, 51-57.

Engel, J.M., Jensen, M.P., & Schwartz, L (2006). Coping with chronic pain associated with cerebral palsy. Occupational Therapy International, 13, 224-233.

Sawyer, M.G., Carbone, J.A., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2005). The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis: A one year prospective study. Quality of Life Research, 14, 1585-1598.

Powell, M., Seid, M., & Szer, I.S. (2005). Efficacy of custom foot orthotics in improving pain and functional status in children with juvenile idiopathic arthritis: A randomized trial. Journal of Rheumatology, 32, 943-950.

Clancy, C.A., McGrath, P.J., & Oddson, B.E. (2005). Pain in children and adolescents with spina bifida. Developmental Medicine and Child Neurology, 47, 27-34.

Konijnenberg, A.Y. et al. (2005). Children with unexplained chronic pain: Substantial impairment in everyday life. Archives of Disease in Childhood, 90, 680-686.

Sawyer, M.G., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2004). The relationship between health-related quality of life, pain, and coping strategies in juvenile idiopathic arthritis. Rheumatology, 43, 325-330.

Varni, J.W., Burwinkle, T.M., & Katz, E.R. (2004). The PedsQL in pediatric cancer pain. A prospective longitudinal analysis of pain and emotional distress. Journal of Developmental and Behavioral Pediatrics, 25, 239-246.

Sandstrom, M.J. and Schanberg, L.E. (2004). Peer rejection, social behavior, and psychological adjustment in children with juvenile rheumatic disease. Journal of Pediatric Psychology, 29, 29-34.

Rapoff, M.A. (2003). Pediatric measures of pain: The Pain Behavior Observation Method, Pain Coping Questionnaire (PCQ), and Pediatric Pain Questionnaire. Arthritis Care & Research, S5, S90-S95.

Eccleston, C. et al. (2003). Chronic pain in adolescents: Evaluation of a programme of interdisciplinary cognitive behaviour therapy. Archives of Disease in Childhood, 88, 881-885.

Foster, R.L. & Varni, J.W. (2002). Measuring the quality of children’s postoperative pain management: Initial validation of the child/parent Total Quality Pain Management (TQPM) instruments. Journal of Pain and Symptom Management, 23, 201-210.

Chambliss, C.R. et al. (2002). The assessment and management of chronic pain in children. Pediatric Drugs, 4, 736-746.

Schanberg, L.E., Anthony, K.K., Gil, K.M. et al. (2001). Family pain history predicts child health status in children with chronic rheumatic disease. Pediatrics, 108(3)/e47, 1-7.

Graumlich, S.E., Powers, S.W., Byars, K.C. et al. (2001). Multidimensional assessment of pain in pediatric sickle cell disease. Journal of Pediatric Psychology, 26, 203-214.

Varni, J.W., Rapoff, M.A., Waldron, S.A., Gragg, R.A., Bernstein, B.H., & Lindsley, C.B. (1996). Chronic pain and emotional distress in children and adolescents. Journal of Developmental and Behavioral Pediatrics, 17, 154-161.

Thastum, M., Zachariae, R., Scholer, M., & Herlin, T. (1999). A Danish adaption of the pain coping questionnaire for children: Preliminary data concerning reliability and validity. Acta Paediatricia, 88, 132-138.

Varni, J.W., Waldron, S.A., Gragg, R.A., Rapoff, M.A., Bernstein, B.H., Lindsley, C.B., & Newcomb, M.D. (1996). Development of the Waldron/Varni Pediatric Pain Coping Inventory. Pain, 67, 141-150.

Varni, J.W., Rapoff, M.A., Waldron, S.A., Gragg, R.A., Bernstein, B.H., & Lindsley, C.B. (1996). Effects of perceived stress on pediatric chronic pain. Journal of Behavioral Medicine, 19, 515-528.

Gragg, R.A., Rapoff, M.A., Danovsky, M.B., Lindsley, C.B., Varni, J.W., Waldron, S.A., & Bernstein, B.H. (1996). Assessing chronic musculoskeletal pain associated with rheumatic disease: Further validation of the Pediatric Pain Questionnaire. Journal of Pediatric Psychology, 21, 237-250.

Benestad, B., Vinje, O., Veierod, M.B., & Vandvik, I.H. (1996). Quantitative and qualitative assessments of pain in children with juvenile chronic arthritis based on the Norwegian version of the Pediatric Pain Questionnaire. Scandinavian Journal of Rheumatology, 25, 293-299.

Walco, G.A., Varni, J.W., & Ilowite, N.T. (1992). Cognitive-behavioral pain management in children with juvenile rheumatoid arthritis. Pediatrics, 89, 1075-1079.

Varni, J.W. (1992). Evaluation and management of pain in children with juvenile rheumatoid arthritis. Journal of Rheumatology, 19, 32-35.

Ilowite, N.T., Walco, G.A., & Pochaczevsky, R. (1992). Assessment of pain in patients with juvenile rheumatoid arthritis: Relation between pain intensity and degree of joint inflammation. Annals of Rheumatic Diseases, 51, 343-346.

Varni, J.W., & Bernstein, B.H. (1991). Evaluation and management of pain in children with rheumatic diseases. Rheumatic Disease Clinics of North America, 17, 985-1000.

Walco, G.A. & Dampier, C.D. (1990). Pain in children and adolescents with sickle cell disease: A descriptive study. Journal of Pediatric Psychology, 15, 643-658.

Varni, J.W., Wilcox, K.T., Hanson, V. & Brik, R. (1988). Chronic musculo­skeletal pain and functional status in juvenile rheumatoid arthritis: An empirical model. Pain, 32, 1-7.

Thompson, K.L., Varni, J.W., & Hanson, V. (1987). Comprehensive assessment of pain in juvenile rheumatoid arthritis: An empirical model. Journal of Pediatric Psychology, 12, 241-255.

Varni, J.W., Thompson, K.L., & Hanson, V. (1987). The Varni/Thompson Pediatric Pain Questionnaire: I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28, 27-38.





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