PedsQL Publications

Klaassen, R.J., Barr, R.D., Hughes, J., Rogers, P., Anderson, R., Grundy, P., Ali, S.K., Yanofsky, R., Abla, O., Silva, M., Carret, A.S., & Cappelli, M. (2010). Nurses provide valuable proxy assessment of the health-related quality of life of children with Hodgkin disease. Cancer, 116, 1602-1607.

Alonso, E.M., Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., & Varni, J.W. (2010). Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients. Journal of Pediatrics, 156, 270-276.

Ingerski, L.M., Modi, A.C., Hood, K.K., Pai, A.L., Zeller, M., Piazza-Waggoner, C., Driscoll, K.A., Rothenberg, M.E., Franciosi, J.F., & Hommel, K.A. (2010). Health-related quality of life across pediatric chronic conditions. Journal of Pediatrics, 156, 639-644.

Mowry, E.M, Julian, L.J, Im-Wang, S., Chabas, D., Galvin, A.J., Strober, J.B., & Waubant, E. (2010). Health-related quality of life is reduced in pediatric multiple sclerosis. Pediatric Neurology, 43, 97-102.

Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., Smith-Whitley, K., & Wang, W. (2010). Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium. Pediatric Blood & Cancer, 55, 485-494.

Langley, R.G., Paller, A.S., Hebert, A.A., Creamer, K., Weng, H.H., Jahreis, A., Globe, D., Patel, V., & Orlow, S.J. (in press). Patient-reported outcomes in pediatric patients with psoriasis undergoing etanercept treatment: 12-week results from a phase III randomized controlled trial. Journal of the American Academy of Dermatology.

Baggott, C.R., Dodd, M., Kennedy, C., Marina, N., Matthay, K.K., Cooper, B., & Miaskowski C. (in press). An evaluation of the factors that affect the health-related quality of life of children following myelosuppressive chemotherapy. Supportive Care in Cancer.

Pogorzala, M., Styczynski, J., Kurylak, A., Debski, R., Wojtkiewicz, M., & Wysocki, M. (2010). Health-related quality of life among pediatric survivors of primary brain tumors and acute leukemia. Quality of Life Research, 19, 191–198.

Roumelioti, M.E., Wentz, A., Schneider, M.F., Gerson, A.C., Hooper, S., Benfield, M., Warady, B.A., Furth, S.L., & Unruh, M.L. (2010). Sleep and fatigue symptoms in children and adolescents with CKD: A cross-sectional analysis from the Chronic Kidney Disease in Children (CKiD) Study. American Journal of Kidney Diseases, 55, 269-280.

Gerson, A.C., Wentz, A., Abraham, A.G., Mendley, S.R., Hooper, S.R., Butler, R.W., Gipson, D.S., Lande, M.B., Shinnar, S., Moxey-Mims, M.M., Warady, B.A., & Furth S.L. (2010). Health-related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125, e349-57.

Howard, K., Lo, E., Sheppard, S., Stargatt, R., & Davidson, A. (2010). Behavior and quality of life measures after anesthesia for tonsillectomy or ear tube insertion in children. Paediatric Anaesthesia, 20, 913-923.

Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N., Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (2010). Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module. Health and Quality of Life Outcomes, 8:38, 1-14.

de Wit, M., Delemarre-van de Waal, H.A., Bokma, J.A., Haasnoot, K., Houdijk, M.C., Gemke, R.J., & Snoek, F.J. (2010). Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: Benefits do not sustain in routine practice. Pediatric Diabetes, 11, 175-181.

Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams, A., Pollock-Barziv, S.M. (2010). Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatric Transplantation, 14, 249–256.

Panepinto, J.A., Hoffmann, R.G., & Pajewski, N.M. (2010). The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease. Pediatric Blood & Cancer, 55, 714–721.

Lloyd, A., Swinburn, P., Boye, K.S., Curtis, B., Sarpong, E., Goldsmith, K., Bode, B., & Aronoff, S. (2010). A valuation of infusion therapy to preserve islet function in type 1 diabetes. Value in Health, 13, 636-642.

Wen, G., McKean-Cowdin, R., Varma, R., Tarczy-Hornoch, K., Cotter, S.A., Borchert, M., & Azen. S. (in press). General health-related quality of life in preschool children with strabismus or amblyopia. Ophthalmology.

McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press). Relationship between neighborhood disadvantage and social function of Wisconsin 2- and 3-year-olds born at very low birth weight. Archives of Pediatrics & Adolescent Medicine.

Bray P., Bundy, A.C., Ryan, M.M., North, K.M., & Everett, A. (in press). Health-related quality of life in boys with Duchenne Muscular Dystrophy: Agreement between parents and their sons. Journal of Child Neurology.

Schurman, J.V., Wu, Y.P., Grayson, P., & Friesen, C.A. (2010). Pilot study to assess the efficacy of biofeedback-assisted relaxation training as an adjunct treatment for pediatric functional dyspepsia associated with duodenal eosinophilia. Journal of Pediatric Psychology, 35, 837–847.

Punpanich, W., Boon-Yasidhi, V., Chokephaibulkit, K., Prasitsuebsai, W., Chantbuddhiwet, U., Leowsrisook, P., Hays, R.D., & Detels, R. (in press). Health-related quality of life of Thai children with HIV infection: A comparison of the Thai Quality of Life in Children (ThQLC) with the Pediatric Quality of Life Inventory™ version 4.0 (PedsQL™ 4.0) Generic Core Scales. Quality of Life Research.

McDonald, C.M., McDonald, D.A., Bagley, A.M., Sienko-Thomas, S., Buckon, C., Henricson, E., Nicorici, A., & Sussman, M.D. (in press). Relationship between clinical outcome measures and parent proxy reports of health-related quality of life in ambulatory children with Duchenne Muscular Dystrophy. Journal of Child Neurology.

Seid, M., Varni, J.W., Gidwani, P., Gelhard, L.R, & Slymen, D.J. (2010). Problem-solving skills training for vulnerable families of children with persistent asthma: Report of a randomized trial on health-related quality of life outcomes. Journal of Pediatric Psychology, 35, 1133-1143.

Nyame, Y.A., Ambrosy, A.P., Saps, M., Adams, P.N., Dhroove, G.N., & Suresh, S. (2010). Recurrent headaches in children: An epidemiological survey of two middle schools in inner city Chicago. Pain Practice, 10, 214–221.

Xu, C., Jackson, M., Scuffham, P.A., Wootton, R., Simpson, P., Whitty, J., Wolfe, R., & Wainwright, C.E. (in press). A randomized controlled trial of an interactive voice response telephone system and specialist nurse support for childhood asthma management. Journal of Asthma.

Gabbe, B.J., Simpson, P.M., Sutherland, A.M., Palmer, C.S., Williamson, O.D., Butt, W., Bevan, C., & Cameron, P.A. (in press). Functional and health-related quality of life outcomes after pediatric trauma. Journal of Trauma.

Ab Rahman, A., Ariffin, N.H., Musa, K.I., Wan Ibrahim, W.P., Ibrahim, M.I., Othman,

A., Abd Aziz, A., Harith, S., Abd Rahman, N., & Van Rostenberghe H. (2011). A preliminary study on the reliability of the Malay version of the Quality of Life Inventory ™ Version 4.0 (PEDSQL) Generic Core Scales among children with disabilities in Kelantan, Malaysia: Parent-proxy report. International Journal of Collaborative Research on Internal Medicine & Public Health, 3, 588-596.

Garma, S.I., Kelly, E.H., Daharsh, E.Z., & Vogel, L.C. (2011). Health-related quality of life after pediatric spinal cord injury. Journal of Pediatric Psychology, 36, 226-236.

Moon, R.J., Sutton, T., Wilson, P.M., Kirkham, F.J., & Davies, J.H. (in press). Pituitary function at long-term follow up of childhood traumatic brain injury. Journal of Neurotrauma.

Gorzkowski, J.A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Girls with spinal cord injury: Social and job-related participation and psychosocial outcomes. Rehabilitation Psychology.

Boyle, S.E., Jones, G.L., & Walters, S.J. (in press). Physical activity, quality of life, weight status and diet in adolescents. Quality of Life Research.

Clarke, S.A., Skinner, R., Guest, J., Darbyshire, P., Cooper, J., Shah, F., Roberts, I., & Eiser, C. (in press). Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK. Child: Care, Health and Development.

Kobayashi, K., & Kamibeppu, K. (2010). Measuring quality of life in Japanese children: Development of the Japanese version of the PedsQL™. Pediatrics International, 52, 80-88.

Natesan, P., Limbers, C.A., & Varni, J.W. (2010). Bayesian estimation of graded response multilevel models using Gibbs sampling: Formulation and illustration. Educational and Psychological Measurement, 70, 420–439.

Lima, L., Guerra, M.P., & de Lemos, M.S. (2010). The psychological adjustment of children with asthma: Study of associated variables. Spanish Journal of Psychology, 13, 353-363.

Irwin, D.E., Stucky, B.D., Thissen, D., DeWitt, E.M., Lai, J.S., Yeatts, K., Varni, J.W., & DeWalt, D.A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Quality of Life Research, 19, 585-594.

Kistler, K.D., Molleston, J., Unalp, A., Abrams, S.H., Behling, C., & Schwimmer, J.B. (2010). Symptoms and quality of life in obese children and adolescents with nonalcoholic fatty liver disease. Alimentary Pharmacology & Therapeutics, 31, 396–406.

Thurston, S., Paul, L., Loney, P., Wong, M., & Browne, G. (in press). The quality of life of a multidiagnosis group of special needs children: Associations and costs. International Journal of Pediatrics.

Berkes, A., Pataki, I., Kiss, M., Kemény, C., Kardos, L., Varni, J.W., & Mogyorósy, G. (2010). Measuring health-related quality of life in Hungarian children with heart disease: Psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales and the Cardiac Module. Health and Quality of Life Outcomes, 8:14, 1-12.

Malone, L.A., & Vogtle, L.K. (in press). Pain and fatigue consistency in adults with cerebral palsy. Disability and Rehabilitation.

Kernick, D., Reinhold, D., Campbell, J.L. (in press). Impact of headache on young people in a school population. British Journal of General Practice.

O'Neil, M.E., Shewokis, P.A., Falkenstein, K.K., Delago, C.W., Smith, S.A., Vaughn, N., & Costigan, T.E. (in press). Psychosocial factors and health perceptions in parents and children who are overweight or obese. Obesity.

Peng, Y.F., & Cheng, Q. (2010). Validity and reliability of the Chinese version of Pediatric Quality of Life Inventory Version 3.0 Asthma Module. Zhongguo Dang Dai Er Ke Za Zhi, 12, 943-946. (Article in Chinese).

Moorthy, L.N., Peterson, M.G., Hassett, A., Baratelli, M., & Lehman, T.J. (in press). Impact of lupus on school attendance and performance. Lupus.

Svavarsdottir, E.K., Burkhart, P.V., Rayens, M.K., Orlygsdottir, B., & Oakley, M.G. (in press). Icelandic and United States families of adolescents with asthma: predictors of health-related quality of life from the parents' perspective. Journal of Clinical Nursing.

Ostbye, T., Malhotra, R., Wong, H.B., Tan. S.B., & Saw, S.M. (in press). The effect of body mass on health-related quality of life among Singaporean adolescents: Results from the SCORM study. Quality of Life Research.

Das, S., Mukherjee, A., Lodha, R., & Vatsa, M. (in press). Quality of life and psychosocial functioning of HIV infected children. Indian Journal of Pediatrics.

Cummings, A.J., Knibb, R.C., Erlewyn-Lajeunesse, M., King, R.M., Roberts, G., & Lucas, J.S. (2010). Management of nut allergy influences quality of life and anxiety in children and their mothers. Pediatric Allergy and Immunology, 21, 586-594.

Noyes, J.P., Williams, A., Allen, D., Brocklehurst, P., Carter, C., Gregory, J.W., Jackson, C., Lewis, M., Lowes, L., Russell, I.T., Rycroft-Malone, J., Sharp, J., Samuels, M., Tudor Edwards, R., & Whitaker, R. (in press). Evidence into practice: evaluating a child-centred intervention for diabetes medicine management The EPIC Project. BMC Pediatrics.

Xu, T., Wu, Z., Yan, Z., Rou, K., & Duan, S. (2010). Measuring health-related quality of life in children living in HIV/AIDS-affected families in rural areas in Yunnan, China: Preliminary reliability and validity of the Chinese version of PedsQL 4.0 Generic Core Scales. Journal of Acquired Immune Deficiency Syndromes, 53, Suppl 1:S111-115.

Soyupek, F., Aktepe, E., Savas, S., & Askin, A. (in press). Do the self-concept and quality of life decrease in CP patients? Focusing on the predictors of self-concept and quality of life. Disability and Rehabilitation.

Pek, J.H., Chan, Y.H., Yeoh, A.E., Quah, T.C., Tan, P.L., & Aung. L. (2010). Health-related quality of life in children with cancer undergoing treatment: A first look at the Singapore experience. Annals of the Academy of Medicine, Singapore, 39, 43-6.

Laaksonen, C.B., Aromaa, M.E., Asanti, R.E., Heinonen, O.J., Koivusilta, L.K., Koski, P.J., Suominen, S.B., Vahlberg, T.J., & Salanterä, S. (in press). The change of child self-assessed and parent proxy-assessed Health Related Quality of Life (HRQL) in early adolescence (age 10-12). Scandinavian Journal of Public Health.

Paulsen, E.K., Friedman, L.S., Myers, L.M., & Lynch, D.R. (2010). Health-related quality of life in children with Friedreich ataxia. Pediatric Neurology, 42, 335-337.

McCarty, R.L., Weber, W.J., Loots, B., Breuner, C.C., Vander Stoep, A., Manhart, L., & Pihoker, C. (in press). Complementary and alternative medicine use and quality of life in pediatric diabetes. Journal of Alternative and Complementary Medicine.

Cotton, S., Humenay Roberts, Y., Tsevat, J., Britto, M.T., Succop, P., McGrady, M.E., & Yi, M.S. (2010). Mind-body complementary alternative medicine use and quality of life in adolescents with inflammatory bowel disease. Inflammatory Bowel Diseases, 16, 501–506.

Norris, J.M., Moules, N., Pelletier, G., & Culos-Reed, S.N. (in press). Families of young pediatric cancer survivors: A cross-sectional survey examining physical activity behavior and health-related quality of life. Journal of Pediatric Oncology Nursing.

Areemit, R.S., Katzman, D.K., Pinhas, L., & Kaufman, M. (in press). The experience of siblings of adolescents with eating disorders. Journal of Adolescent Health.

Berkes, A., Varni, J.W., Pataki, I., Kardos, L., Kemény, C., & Mogyorósy, G. (2010). Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory. European Journal of Pediatrics, 169, 333–347.

Tahirović, E., Begić, H., Nurkić, M., Tahirović, H., & Varni, J.W. (2010). Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? European Journal of Pediatrics, 169, 349–353.

Looman W.S., Thurmes, A.K., & O'Conner-Von, S.K. (2010) Quality of life among children with velocardiofacial syndrome. Cleft Palate-Craniofacial Journal, 47, 273-283.

Strieper, M., Leong, T., Bajaj, T., Huckaby, J., Frias, P., & Campbell, R. (2010). Does ablation of supraventricular tachycardia in children with a structurally normal heart improve quality of life? Congenital Heart Disease, 5, 587-593.

Yamada, T., Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Health-related quality of life in parents of children with intermittent exotropia. Journal of the American Association for Pediatric Ophthalmology and Strabismus.

Knapp, C.A., Madden, V.L., Curtis, C.M., Sloyer, P., & Shenkman, E.A. (2010). Family support in pediatric palliative care: How are families impacted by their children’s illnesses? Journal of Palliative Medicine, 13, 1-6.

Thavorncharoensap, M., Torcharus, K., Nuchprayoon, I., Riewpaiboon, A., Indaratna, K., & Ubol, B.O. (2010). Factors affecting health-related quality of life in Thai children with thalassemia. BMC Blood Disorders, 10:1, 1-10.

Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (2010). Quality of life of children living in HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care, 22, 390-396.

Rivas, M.B.V., & Gómez-Maqueo, M.E.L (2010). Psychometric properties of the Paediatric Life Quality Inventory, versión 4.0, in Mexican adolescents. Psicología y Salud, 20, 5-12.

Postans, N., Wright, P., Bromwich, W., Wilkinson, I., Farmer, S.E., & Swain, I. (2010). The combined effect of dynamic splinting and neuromuscular electrical stimulation in reducing wrist and elbow contractures in six children with cerebral palsy. Prosthetics and Orthotics International, 34, 10-19.

Simons, L., Logan, D., Chastain, L., & Stein, M. (2010). The relation of social functioning to school impairment among adolescents with chronic pain. Clinical Journal of Pain, 26, 16-22.

Erickson, S.J., Montague, E.Q., & Gerstle, M.A. (2010). Health-related quality of life in children with moderate-to-severe traumatic brain injury. Developmental Neurorehabilitation, 13,175-81.

Bomba, M., Nacinovich, R., Oggiano, S., Cassani, M., Baushi, L., Bertulli, C., Longhi, D., Coppini, S., Parrinello, G., Plebani, A., & Badolato R. (2010). Poor health-related quality of life and abnormal psychosocial adjustment in Italian children with perinatal HIV infection receiving highly active antiretroviral treatment. AIDS Care, 22, 858-865.

Boles, R.E., Scharf, C.S., & Stark, L.J. (2010). Developing a treatment program for obesity in preschool-age children: Preliminary data. Children’s Health Care, 39, 34–58.

Lyon, M.E., Garvie, P.A., Briggs, L., He, J., Malow, R., D’Angelo, L.J., & McCarter, R. (2010). Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of Family Centered Advance Care (FACE) planning – Anxiety, depression, quality of life HIV/AIDS - Research and Palliative Care, 2, 27–37.

Modi, A.C., Lim, C.S., Driscoll, K.A., Piazza-Waggoner, C., Quittner, A.L., & Wooldridge, J. (2010). Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic treatment for pulmonary exacerbations. Journal of Clinical Psychology in Medical Settings, 17, 49–55.

Chandra, A., Lara-Cinisomo, S., Jaycox, L.H., Tanielian, T., Burns, R.M., Ruder, T., & Han, B. (2010). Children on the homefront: The experience of children from military families. Pediatrics, 125, 16-25.

Klatchoian, D.A., Len, C.A., Terreri, M.T., & Hilário, M.O. (2010). Quality of life among children from São Paulo, Brazil: The impact of demographic, family and socioeconomic variables. Cadernos de Saúde Pública, 26, 631-636.

Poeta, L.S., Duarte, Mde. F., & Giuliano, Ide. C. (2010). Health-related quality of life of obese children. Revista da Associação Médica Brasileira, 56, 168-172.

D.S., Ollis, S., Thomas, N.E., & Baker. J.S. (2010). The influence of a high intensity physical activity intervention on a selection of health related outcomes: an ecological approach. BMC Public Health, 10:8.

Lee, G.H., McGrath, C., Yiu, C.K., & King, N.M. (in press). A comparison of a generic and oral health-specific measure in assessing the impact of early childhood caries on quality of life. Community Dentistry and Oral Epidemiology.

Dinomais, M., Gambart, G., Bruneau, A., Bontoux, L., Deries, X., Tessiot, C., & Richard, I. (2010). Social functioning and self-esteem in young people with disabilities participating in adapted competitive sport. Neuropediatrics, 41, 49-54.

Becker, E., & Dusing, S. (2010). Participation is possible: A case report of integration into a community performing arts program. Physiotherapy Theory and Practice, 26, 275-280.

Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Comparison of quality-of-life instruments in childhood intermittent exotropia. Journal of the American Association for Pediatric Ophthalmology and Strabismus.

Tahirović, E., Begić, H., Sutović, A., & Tahirović H. (2010). Impact of the family socioeconomic status on health related quality of life in children operated on for congenital heart defects. (Article in Croatian). Acta Medica Croatica, 64, 9-16.

Krishna, Y.R., Yachha, S.K., Srivastava, A., Negi, D., Lal, R., & Poddar, U. (2010). Quality of life in children managed for extrahepatic portal venous obstruction. Journal of Pediatric Gastroenterology and Nutrition, 50, 531-536.

Huang, I.C., Shenkman, E.A., Madden, V.L., Vadaparampil, S., Quinn, G., & Knapp, C.A. (2010). Measuring quality of life in pediatric palliative care: Challenges and potential solutions. Palliative Medicine, 24, 175–182.

Huang, I.C., Thompson, L.A., Chi, Y.Y., Knapp, C.A., Revicki, D.A., Seid, M., & Shenkman, E.A. (2009). The linkage between pediatric quality of life and health conditions: Establishing clinically meaningful cutoff scores for the PedsQL™. Value in Health, 12, 773-781.

Macallister, W.S., Christodoulou, C., Troxell, R., Milazzo, M., Block, P., Preston, T.E., Bender, H.A., Belman, A., & Krupp, L.B. (2009). Fatigue and quality of life in pediatric multiple sclerosis. Multiple Sclerosis, 15, 1502-1508.

Izquierdo, R., Morin, P.C., Bratt, K., Moreau, Z., Meyer, S., Ploutz-Snyder, R., Wade, M., & Weinstock, R.S. (2009). School-centered telemedicine for children with Type 1 diabetes mellitus. Journal of Pediatrics, 155, 374-379.

Dodson, J.L., Cohn, S.E., Cox, C., Hmiel, P.S., Wood, E., Mattoo, T.K., Warady, B.A., & Furth, S.L. (2009). Urinary Incontinence in the CKiD cohort and health related quality of life. Journal of Urology, 182 (4 Suppl), 2007-2014.

Petersen, S., Hägglöf, B.L., & Bergström, E.I. (2009). Impaired health-related quality of life in children with recurrent pain. Pediatrics, 124, e759-e767.